Overview
What is The Association For Frontotemporal Degeneration?
The Association for Frontotemporal Degeneration (AFTD) is a nonprofit organization situated in King of Prussia, Pennsylvania. Its primary focus is to advance research aimed at developing more accurate diagnostic processes, therapies, and potential cures for Frontotemporal Degeneration (FTD). During FY23, they awarded nine research grants, including three pilot grants and two through collaborative programs with the Alzheimer's Drug Discovery Foundation. These grants aim to create a blood-based assay for detecting biomarkers linked to FTD and develop drugs to prevent or reverse disease-causing brain changes. The organization also provided scholarships for postdoctoral fellows and clinical research training. Collaborating with the ALS Association, AFTD launched awards for digital assessment tool development at the intersection of FTD and ALS. Additionally, AFTD supports the FTD Disorder Registry, an electronic database collecting firsthand accounts about FTD, which benefits researchers and clinicians. As of FY23, 6,081 individuals had joined the registry. AFTD also provides information, education, support, and advocacy to individuals diagnosed with FTD, their families, and caregivers, and educates healthcare professionals about FTD. They advocate for better long-term health care and social services for those affected by FTD.
Official website here: www.theaftd.org
What are the reviews and ratings of this charity?
The Association For Frontotemporal Degeneration (EIN: 412073220) has an impressive rating of 97% from Charity Navigator, earning it a Four-Star out of Four Star rating. This high score reflects outstanding accountability and financial practices, as well as strong impact measurement. With 100% of its board members being independent and a program expense ratio of over 82%, the organization demonstrates a commitment to transparency and efficient use of funds.
The nonprofit is dedicated to improving the quality of life for individuals affected by frontotemporal degeneration and prioritizes research efforts toward finding a cure. It shows significant strengths in leadership, adaptability, and engagement with constituents. Its strategic goals encompass advancing diagnosis and expanding public awareness about frontotemporal degeneration, showcasing a proactive approach in its mission.
While the organization has received exemplary marks across multiple accountability and impact measures, user reviews from GreatNonprofits are currently unavailable for further insights. However, the organization’s strong financial practices and strategic initiatives suggest a solid foundation for delivering its mission effectively.
This AI summary has been generated from information found on Charity Navigator.
Is The Association For Frontotemporal Degeneration legitimate?
The Association For Frontotemporal Degeneration is a legitimate nonprofit organization registered as a 501(c)(3) entity. The Association For Frontotemporal Degeneration submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $672,161
Professional Fundraising Fees: $70,000
Other Salaries and Wages: $3,909,426
For more financial information, click here
Official website here: www.theaftd.org
What is the mission statement of The Association For Frontotemporal Degeneration?
The Association for Frontotemporal Degeneration is committed to advancing research aimed at developing improved diagnostic processes, therapies, and potential cures for Frontotemporal Degeneration (FTD). They provide information, education, support, and advocacy to individuals diagnosed with FTD, their families, and caregivers. Furthermore, the organization works to educate healthcare professionals about FTD and enhance patient care. The Association for Frontotemporal Degeneration also strives to raise public awareness about the nature and prevalence of FTD and the needs of those affected by it. Additionally, they advocate with public officials to promote appropriate, affordable, and high-quality long-term health care and social services for individuals with FTD.
Official website here: www.theaftd.org
Who is the CEO of The Association For Frontotemporal Degeneration?
Susan L-J Dickinson is the CEO of The Association For Frontotemporal Degeneration The CEO's salary of The Association For Frontotemporal Degeneration is $299,604 and their total compensation is $326,881.
Official website here: www.theaftd.org
What is the revenue of The Association For Frontotemporal Degeneration?
The Association For Frontotemporal Degeneration's revenue in 2024 was $13,139,120.
Official website here: www.theaftd.org
Who are the executives of The Association For Frontotemporal Degeneration and what are their salaries?
The average compensation at The Association For Frontotemporal Degeneration during 2024 was $83,302. There are 55 employees and 398 volunteers at The Association For Frontotemporal Degeneration.
Here are 27 key members and their salaries (The Association For Frontotemporal Degeneration's CEO's salary is $299,604 and their total compensation is $326,881):
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Official website here: www.theaftd.org
Where can I find the form 990 for The Association For Frontotemporal Degeneration?
The Association For Frontotemporal Degeneration's most recent form 990 was submitted in 2024 and can be accessed here.
Official website here: www.theaftd.org
Learn more at the official website: www.theaftd.org
Mission Statement of The Association For Frontotemporal Degeneration
The Association for Frontotemporal Degeneration is dedicated to advancing research aimed at improving diagnostic processes, therapies, and potential cures for Frontotemporal Degeneration (FTD). This nonprofit organization actively strives to provide information, education, support, and advocacy to individuals diagnosed with FTD, their families, and caregivers. It also plays a significant role in educating physicians and other health professionals about FTD, helping them enhance patient care.
Beyond research and education, The Association for Frontotemporal Degeneration works tirelessly to raise public awareness about the nature and prevalence of FTD. By promoting understanding of the challenges faced by those coping with the condition, the organization aims to advocate for appropriate, affordable, and high-quality long-term healthcare and social services. This advocacy effort extends to lobbying public officials, encouraging them to support programs that cater to the unique needs of individuals with FTD and their families.
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Impact
July, 2024
The Association For Frontotemporal Degeneration plays a crucial role in advancing research and improving the lives of individuals affected by Frontotemporal Degeneration (FTD). By promoting and funding research initiatives aimed at enhancing diagnostic processes, developing effective therapies, and ultimately finding cures for FTD, the Association is at the forefront of driving scientific discoveries in this field. Through their support, education, and advocacy efforts, they provide essential information and resources to individuals diagnosed with FTD, their families, and caregivers. Additionally, their initiatives aim to raise public awareness about the nature and prevalence of FTD, highlighting the needs of those coping with this condition. Through collaborations and programs such as the Diagnostics Accelerator and Accelerating Drug Discovery, the Association facilitates the development of innovative solutions to address FTD, offering hope and support to those impacted by the disease.
This information is meant to be a general summary of The Association For Frontotemporal Degeneration. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2024.
- Investment Income: $1,153,617
- Program Service Revenue: $2,204
- Gross Receipts: $28,443,219
Assets and Liabilities:
- Total Assets: $47,470,345
- Total Liabilities: $2,415,381
- Net Assets: $45,054,964
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
EDUC & AWARENESS PRODUCT SALES
Revenue
$2,204
Organization Details
Founding Year
2002
Principal Officer
Susan L-J Dickinson
Website
www.theaftd.orgNTEE Category
Code: H124 - Medical research
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