Overview
What is Turner Syndrome Society Of The United States?
The Turner Syndrome Society of the United States (TSSUS), based in Houston, Texas, is a dedicated nonprofit organization focused on Turner Syndrome (TS). They offer a range of programs, including organizing national events for individuals with TS and their families, creating and maintaining TS content and resources, connecting people to relevant information, sustaining a research registry and professional provider directory, and raising TS awareness. In 2021, they supported over 2,500 individuals, managed 20 support groups, attracted 84,000 unique website visitors, and engaged 500+ attendees in 52 webinars. TSSUS advances knowledge, facilitates research, and provides support for all individuals impacted by Turner Syndrome, reaching out to approximately 75,000 people during Awareness Month. With a team of three dedicated employees, TSSUS is committed to making a difference in the lives of those with Turner Syndrome.
Official website here: www.turnersyndrome.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 96%
The Turner Syndrome Society of the United States (TSSUS) has earned a Four-Star out of Four Star rating from Charity Navigator, reflecting its strong performance in accountability and transparency. With a high Accountability & Finance Score of 97 and a Program Expense Ratio of 67.79%, the organization demonstrates a commitment to utilizing funds effectively for its mission. It has also achieved perfect scores in feedback collection and usage, highlighting its engagement with the community it serves.
User feedback reinforces the nonprofit's reputation as a crucial resource for individuals and families affected by Turner Syndrome. Many clients have praised the organization for its informative educational resources and supportive community, particularly through its annual conferences. Reviewers mention the society's role in providing valuable medical information and fostering connections among those affected, which has been immensely beneficial in navigating the challenges associated with Turner Syndrome.
However, some limitations have been noted, particularly regarding the management of social media interactions and community engagement on platforms like Facebook. A few users expressed dissatisfaction with how differing opinions are handled in online groups, suggesting that this could alienate community members seeking support. Despite these concerns, the overall sentiment reflects a deep appreciation for TSSUS's efforts in advocacy, education, and creating a sense of belonging for those affected by Turner Syndrome.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
What do the Facebook reviews say about Turner Syndrome Society Of The United States?
92% of 344 reviewers on Facebook recommend the Turner Syndrome Society of the United States. Here is a summary of their reviews:
Many users express their appreciation for the organization, highlighting its supportive nature. Reviewers consistently describe it as a wonderful resource for individuals affected by Turner Syndrome, noting the compassion and understanding demonstrated by the staff and community. The society appears to excel in providing vital information and fostering connections among those involved.
Overall, the sentiment surrounding this nonprofit is very positive, with individuals feeling empowered and supported through their services. The organization holds a strong reputation for delivering meaningful assistance and nurturing a sense of belonging among its members.
This AI summary has been generated from reviews found on Facebook.
Is Turner Syndrome Society Of The United States legitimate?
Turner Syndrome Society Of The United States is a legitimate nonprofit organization registered as a 501(c)(3) entity. Turner Syndrome Society Of The United States submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $95,529
Professional Fundraising Fees: $0
Other Salaries and Wages: $111,821
For more financial information, click here
Official website here: www.turnersyndrome.org
What is the mission statement of Turner Syndrome Society Of The United States?
The Turner Syndrome Society of the United States (TSSUS) is dedicated to advancing knowledge, facilitating research, and providing support for individuals impacted by Turner Syndrome. Their mission encompasses organizing events, creating and maintaining resources, connecting people to information, sustaining research registries, and fostering professional provider directories. Through these efforts, they aim to increase awareness and provide assistance to over 2,500 individuals annually, as well as support various groups and reach a wide online audience. In 2021, they also facilitated 9 Turner Syndrome research studies.
Official website here: www.turnersyndrome.org
Who is the CEO of Turner Syndrome Society Of The United States?
Cindy Scurlock is the CEO of Turner Syndrome Society Of The United States The CEO's salary of Turner Syndrome Society Of The United States is $90,729 and their total compensation is $95,529.
Official website here: www.turnersyndrome.org
What is the revenue of Turner Syndrome Society Of The United States?
Turner Syndrome Society Of The United States's revenue in 2023 was $1,110,552.
Official website here: www.turnersyndrome.org
Who are the executives of Turner Syndrome Society Of The United States and what are their salaries?
The average compensation at Turner Syndrome Society Of The United States during 2023 was $69,117. There are 3 employees and 100 volunteers at Turner Syndrome Society Of The United States.
Here are 12 key members and their salaries (Turner Syndrome Society Of The United States's CEO's salary is $90,729 and their total compensation is $95,529):
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- Compensation: $90,729
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- Other: $4,800
Official website here: www.turnersyndrome.org
Where can I find the form 990 for Turner Syndrome Society Of The United States?
Turner Syndrome Society Of The United States's most recent form 990 was submitted in 2023 and can be accessed here.
Official website here: www.turnersyndrome.org
Learn more at the official website: www.turnersyndrome.org
Mission Statement of Turner Syndrome Society Of The United States
The Turner Syndrome Society of the United States (TSSUS) is dedicated to advancing knowledge, facilitating research, and providing support for all individuals impacted by Turner Syndrome. This esteemed organization plays a crucial role in promoting understanding and offering assistance to those affected by this condition.
In executing its mission, TSSUS organizes national events targeted at individuals with Turner Syndrome and their families. These events serve as platforms for fostering a sense of community and sharing experiences. Additionally, the society maintains and curates Turner Syndrome-related content and resources, connecting individuals to vital information. TSSUS also manages the Turner Syndrome Research Registry and a Professional Provider Directory, ensuring that researchers and healthcare providers have access to valuable data and resources. Moreover, the society raises awareness of Turner Syndrome through various channels, reaching out to an estimated 75,000 people during Awareness Month alone.
Furthermore, TSSUS supports 20 Turner Syndrome support groups and attended by 500+ individuals in 52 webinars in 2021. The society also reached out to 84,000 unique website visitors and boasts over 15,000 Facebook followers. These efforts underscore TSSUS's commitment to providing support, resources, and community for individuals affected by Turner Syndrome. In summary, the Turner Syndrome Society of the United States serves as a beacon of hope and support for individuals and families impacted by Turner Syndrome, working tirelessly to advance knowledge, facilitate research, and provide much-needed resources and connections.
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Impact
July, 2024
The Turner Syndrome Society of the United States (TSSUS) impacts thousands of individuals by advancing knowledge, facilitating research, and providing support for all persons touched by Turner Syndrome. In 2021 alone, TSSUS supported 2,500 individual requests for help, organized national Turner Syndrome events for those affected and their families, sustained the Turner Syndrome research registry and professional provider directory, and created awareness about Turner Syndrome. Additionally, TSSUS hosted 20 support groups, reached 84,000 unique website visitors, engaged with 15,000 Facebook followers, and had over 500 attendees in 52 webinars. The organization also supported 9 Turner Syndrome research studies and reached 75,000 people during Turner Syndrome Awareness Month. Through these efforts, TSSUS plays a vital role in providing resources, connections, and support for individuals and families impacted by Turner Syndrome.
This information is meant to be a general summary of Turner Syndrome Society Of The United States. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2023.
- Investment Income: $136
- Program Service Revenue: $183,691
- Gross Receipts: $1,123,618
Assets and Liabilities:
- Total Assets: $723,870
- Total Liabilities: $20,559
- Net Assets: $703,311
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
CONFERENCE AND EVENT
Revenue
$183,691
Organization Details
Founding Year
2001
Principal Officer
Cindy C Scurlock
Website
www.turnersyndrome.orgNTEE Category
Code: G20 - Disease
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