Overview
What is American Behcets Disease Association Inc?
The American Behcets Disease Association Inc, situated in Rochester, Michigan, is a nonprofit organization that plays a significant role in supporting individuals with Behcet's disease. They offer 247 free literature kits and provide assistance to 76 members. The association actively advocates for better research, diagnostics, treatment, and a potential cure at medical conferences. Moreover, the ABDA serves as a platform for individuals with Behcet's to connect and support each other, thereby empowering the Behcet's community. Their mission is driven by a commitment to education, support, and advocacy, striving to improve the lives of those affected by this disease.
Official website here: www.behcets.com
What are the reviews and ratings of this charity?
Charity Navigator Rating: 43%, Zero-Star out of Four Star rating.
The American Behcets Disease Association Inc has received a low rating of 43% from Charity Navigator, primarily due to a lack of transparency and financial management indicators. While the organization scores highly in terms of having a majority of independent board members and no reported diversion of assets, it falls short in critical areas like having a whistleblower policy and a document retention policy. Additionally, its program expense ratio of 33.90% raises concerns about its allocation of funds towards mission-related activities.
User feedback on Great Nonprofits provides a more positive perspective, with a client rating of 4 out of 5 stars. A user suffering from Behcet's Disease highlighted the invaluable support provided by the association, including vital information, access to doctors, medications, and support groups. The reviewer expressed appreciation for the organization's growth and efforts to bring back resources from international conferences, indicating that it plays a significant role in the lives of those affected by this rare disease.
Despite its strengths in community support, the organization faces challenges in accountability and financial health that need to be addressed to improve its overall standing and effectiveness. The mixed feedback reflects the need for better organizational practices while acknowledging the critical services it provides to a underserved patient population.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is American Behcets Disease Association Inc legitimate?
American Behcets Disease Association Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. American Behcets Disease Association Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $61,827
Professional Fundraising Fees: $0
Other Salaries and Wages: $6,799
For more financial information, click here
Official website here: www.behcets.com
What is the mission statement of American Behcets Disease Association Inc?
The American Behcets Disease Association Inc, in its mission, strives to support, educate, and empower individuals affected by Behcet's disease. They continuously advocate for improved research, diagnostics, treatments, and ultimately, a cure. Their activities are centered around providing resources, such as free literature kits, and fostering a community where patients can connect and offer mutual support. They also actively participate in medical conferences to advocate for the disease and its patients.
Official website here: www.behcets.com
Who is the CEO of American Behcets Disease Association Inc?
Deb Kleber-Struzyna is the President of American Behcets Disease Association Inc.
Official website here: www.behcets.com
What is the revenue of American Behcets Disease Association Inc?
American Behcets Disease Association Inc's revenue in 2022 was $77,883.
Official website here: www.behcets.com
Who are the executives of American Behcets Disease Association Inc and what are their salaries?
There 9 volunteers at American Behcets Disease Association Inc.
Here are 10 key members and their salaries:
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- Compensation: $55,000
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Official website here: www.behcets.com
Where can I find the form 990 for American Behcets Disease Association Inc?
American Behcets Disease Association Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.behcets.com
Learn more at the official website: www.behcets.com
Mission Statement of American Behcets Disease Association Inc
The American Behcets Disease Association Inc, in its mission, works tirelessly to support, educate, and empower the community affected by Behcet's disease. This nonprofit organization is committed to advocating for better research, diagnostics, treatment, and ultimately, a cure for this condition. By doing so, the American Behcets Disease Association Inc aims to improve the lives of those living with Behcet's disease and their families.
The ABDA's efforts are multifaceted. They provide resources and support to their community, including supplying free literature kits and offering opportunities for individuals with Behcet's disease to connect and provide mutual support. Furthermore, the organization actively advocates for their cause at medical conferences and other relevant forums, working towards improved understanding and care for those affected by Behcet's disease.
In essence, the American Behcets Disease Association Inc serves as a beacon of hope for those affected by this complex and often misunderstood condition. By supporting, educating, and advocating on behalf of the Behcet's community, the organization works towards a future where better treatments and, eventually, a cure are within reach.
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Impact
August, 2024
The American Behcets Disease Association Inc has made a significant impact by supporting, educating, and empowering the Behcet's community. They have provided 247 free literature kits, supported 76 members, advocated at medical conferences, and facilitated opportunities for those with Behcets to meet and support each other. Through their efforts, they have played a crucial role in raising awareness about Behcet's disease, advocating for better research, diagnostics, treatment, and ultimately, a cure. Their dedication to improving the lives of individuals affected by Behcet's disease demonstrates their commitment to making a difference in the community.
This information is meant to be a general summary of American Behcets Disease Association Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $18
- Gross Receipts: $77,883
Assets and Liabilities:
- Total Assets: $279,646
- Total Liabilities: $6,186
- Net Assets: $273,460
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Organization Details
Founding Year
1978
Phone
(800) 723-4238Principal Officer
Deb Kleber-Struzyna
Main Address
PO Box 80576, Rochester, MI, 48308
Website
www.behcets.comNTEE Category
Code: G90 - Disease
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