Overview
What is Prader-Willi Syndrome Association (Usa)?
Prader-Willi Syndrome Association (USA) is a nonprofit organization dedicated to supporting individuals diagnosed with Prader-Willi Syndrome (PWS), their families, and care providers. Based in Brandon, Florida, the association offers critical information and resources through their Family Support Team. This team responds to inquiries, providing assistance to families in all 50 U.S. states and over 20 countries. They also conduct training programs for medical providers, schools, and professional caregivers, equipping them with valuable resources. The association's mission is to enhance the quality of life and empower those affected by PWS, responding to 3,447 family support inquiries in 2022 alone. With a team of 17 employees, Prader-Willi Syndrome Association (USA) strives to support families and individuals from the NICU stage through various stages of the PWS journey.
Official website here: www.pwsausa.org
What do the Facebook reviews say about Prader-Willi Syndrome Association (Usa)?
94% of the 89 reviewers on Facebook recommend the Prader-Willi Syndrome Association (USA). Here is a summary of their reviews:
The organization appears to be well-regarded, with many users expressing appreciation for their support and dedication to individuals with Prader-Willi Syndrome and their families. Reviewers highlight the compassion and understanding of the staff, suggesting that the nonprofit effectively fulfills its mission.
Overall, the sentiment towards the Prader-Willi Syndrome Association is overwhelmingly positive, indicating that they are making a meaningful impact in the community they serve.
This AI summary has been generated from reviews found on Facebook.
Is Prader-Willi Syndrome Association (Usa) legitimate?
Prader-Willi Syndrome Association (Usa) is a legitimate nonprofit organization registered as a 501(c)(3) entity. Prader-Willi Syndrome Association (Usa) submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $198,926
Professional Fundraising Fees: $0
Other Salaries and Wages: $558,396
For more financial information, click here
Official website here: www.pwsausa.org
What is the mission statement of Prader-Willi Syndrome Association (Usa)?
The Prader-Willi Syndrome Association (USA) is committed to enhancing the quality of life and empowering individuals affected by Prader-Willi Syndrome. They achieve this mission by providing critical information and resources to diagnosed individuals, their families, and care providers. The association offers ongoing training, toolkits, and valuable resources to medical providers, schools, and professional caregivers, supporting families from the neonatal intensive care unit (NICU) through all stages of the PWS journey. In 2022, their family support team responded to over 3,400 inquiries, providing support to families in all 50 U.S. states and various countries. Additionally, they trained 10 schools and 9 provider agencies, hosting virtual events aimed at sleep summits and healthcare advocacy webinars.
Official website here: www.pwsausa.org
What is the revenue of Prader-Willi Syndrome Association (Usa)?
Prader-Willi Syndrome Association (Usa)'s revenue in 2023 was $1,577,352.
Official website here: www.pwsausa.org
Who are the executives of Prader-Willi Syndrome Association (Usa) and what are their salaries?
The average compensation at Prader-Willi Syndrome Association (Usa) during 2023 was $47,333. There are 16 employees and 350 volunteers at Prader-Willi Syndrome Association (Usa).
Here are 15 key members and their salaries:
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- Compensation: $110,878
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- Other: $3,429
Official website here: www.pwsausa.org
Where can I find the form 990 for Prader-Willi Syndrome Association (Usa)?
Prader-Willi Syndrome Association (Usa)'s most recent form 990 was submitted in 2023 and can be accessed here.
Official website here: www.pwsausa.org
Learn more at the official website: www.pwsausa.org
Mission Statement of Prader-Willi Syndrome Association (Usa)
Prader-Willi Syndrome Association (USA) is dedicated to enhancing the quality of life and empowering individuals affected by Prader-Willi Syndrome. The organization's mission is multifaceted, focusing on providing critical support and resources to those diagnosed with the syndrome, their families, and their care providers. The association achieves this goal through its family support team, which offers a wealth of information and resources on Prader-Willi Syndrome.
In addition to supporting families, Prader-Willi Syndrome Association (USA) also educates medical providers, schools, and professional caregivers. They achieve this by providing ongoing training, toolkits, and valuable resources. This proactive approach helps ensure that those caring for individuals with Prader-Willi Syndrome have the necessary knowledge and skills to provide the best possible care.
The association's support extends from the Neonatal Intensive Care Unit (NICU) through all stages of the Prader-Willi Syndrome journey. In 2022 alone, Prader-Willi Syndrome Association (USA)'s family support team responded to over 3,400 family support inquiries, providing support to families in all 50 U.S. states and over 20 different countries. They also trained 10 schools and 9 provider agencies, and hosted virtual events, such as a sleep summit and a healthcare advocacy webinar series, reaching over 700 registrants for each event. The association's comprehensive approach to support and education is a testament to their commitment to enhancing the quality of life and empowering those affected by Prader-Willi Syndrome.
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Impact
October, 2024
The Prader-Willi Syndrome Association (USA) significantly enhances the quality of life for individuals affected by Prader-Willi Syndrome (PWS) and empowers their families. Through extensive family support initiatives, the organization provides crucial information and resources tailored to those diagnosed with PWS, their families, and caregivers.
In 2022, the Family Support Team addressed 3,447 inquiries, reaching families across all 50 U.S. states and over 20 countries. This outreach plays a vital role in guiding families from the NICU stage and throughout all phases of the PWS journey.
Additionally, the association emphasizes education for medical professionals, schools, and caregivers, equipping them with the necessary tools and training to support individuals with PWS effectively. By training 10 schools and 9 provider agencies, they help create a better-informed community capable of meeting the unique needs of those with PWS.
Moreover, the Prader-Willi Syndrome Association hosts events such as a virtual sleep summit and a healthcare advocacy webinar series, engaging more than 700 participants in each event. These efforts not only foster a supportive environment but also advocate for the rights and needs of individuals with PWS, promoting their well-being and integration into society.
This information is meant to be a general summary of Prader-Willi Syndrome Association (Usa). Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2023.
- Investment Income: $58,198
- Program Service Revenue: $181,970
- Gross Receipts: $1,630,271
Assets and Liabilities:
- Total Assets: $2,880,192
- Total Liabilities: $112,201
- Net Assets: $2,767,991
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
CONVENTION REVENUE
Revenue
$159,487
RESIDENTIAL CARE TRAIN
Revenue
$14,539
SCHOOL TRAINING
Revenue
$4,998
EDUCATION MATERIAL
Revenue
$2,946
Organization Details
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