Overview
What is National Ataxia Foundation Incorporated?
The National Ataxia Foundation Incorporated is a nonprofit organization situated in Minneapolis, Minnesota. Committed to its mission, the foundation works tirelessly to improve the lives of individuals living with Ataxia. Through their patient education program, they organize annual conferences, webinars, and distribute fact sheets, empowering individuals to better manage their health and enhance their quality of life. The advocacy program engages policy makers and pharmaceutical companies, fostering awareness about Ataxia and expediting the development of treatments. Additionally, the foundation offers support groups, enabling the Ataxia community to connect, share experiences, and learn from one another. With a dedicated team of 17 employees, the National Ataxia Foundation is a vital resource for those affected by Ataxia, striving to accelerate treatment advancements and enhance patient well-being.
Official website here: www.ataxia.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 99%, Four-Star out of Four Star rating
The National Ataxia Foundation (NAF) has earned an impressive 99% score on Charity Navigator, reflecting its high standards in accountability and finance as well as its strong leadership. The organization excels particularly in its Accountability & Finance and Leadership & Adaptability scores, both of which are rated at 100. This suggests that NAF operates with a high level of transparency and effective management, which is essential for maintaining donor trust and ensuring the efficient use of resources.
NAF's mission to accelerate the development of treatments for Ataxia while enhancing the lives of those affected by the condition is clearly articulated. With a vision of a world without Ataxia, the foundation actively works to connect individuals and mobilize the community for research participation. The high Culture & Community score of 91 indicates a strong fostering of relationships and support within the Ataxia community, enhancing engagement and collaboration.
However, the ratings reveal a relatively lower score in the Leadership & Adaptability category, at 16. This may suggest some challenges in the organization's ability to adapt to changing environments or circumstances, although its overall financial health and accountability remain robust. Overall, NAF appears to be a reliable organization making significant strides in improving the lives of those impacted by Ataxia.
This AI summary has been generated from information found on Charity Navigator.
Is National Ataxia Foundation Incorporated legitimate?
National Ataxia Foundation Incorporated is a legitimate nonprofit organization registered as a 501(c)(3) entity. National Ataxia Foundation Incorporated submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $553,270
Professional Fundraising Fees: $0
Other Salaries and Wages: $922,520
For more financial information, click here
Official website here: www.ataxia.org
What is the mission statement of National Ataxia Foundation Incorporated?
The National Ataxia Foundation Incorporated's mission is focused on accelerating the advancement of treatments and ultimately finding a cure for Ataxia. Simultaneously, they strive to enhance the lives of those currently living with this condition. To accomplish this, they provide various educational, advocacy, and support programs. Their patient education initiatives include annual conferences, webinars, and informational fact sheets, aiming to assist individuals in managing their health and improving their quality of life. Through advocacy, they engage with policy makers and pharmaceutical companies, raising awareness of Ataxia and pushing for increased drug development and access to care and treatment services. Additionally, their support group program allows the Ataxia community to connect and learn from one another.
Official website here: www.ataxia.org
Who is the CEO of National Ataxia Foundation Incorporated?
Andrew Rosen is the CEO of National Ataxia Foundation Incorporated The CEO's salary of National Ataxia Foundation Incorporated is $186,696 and their total compensation is $199,072.
Official website here: www.ataxia.org
What is the revenue of National Ataxia Foundation Incorporated?
National Ataxia Foundation Incorporated's revenue in 2023 was $3,981,625.
Official website here: www.ataxia.org
Who are the executives of National Ataxia Foundation Incorporated and what are their salaries?
The average compensation at National Ataxia Foundation Incorporated during 2023 was $70,276. There are 21 employees and 350 volunteers at National Ataxia Foundation Incorporated.
Here are 19 key members and their salaries (National Ataxia Foundation Incorporated's CEO's salary is $186,696 and their total compensation is $199,072):
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- Compensation: $186,696
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- Compensation: $151,534
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- Other: $7,856
- Compensation: $189,726
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- Other: $5,083
Official website here: www.ataxia.org
Where can I find the form 990 for National Ataxia Foundation Incorporated?
National Ataxia Foundation Incorporated's most recent form 990 was submitted in 2023 and can be accessed here.
Official website here: www.ataxia.org
Learn more at the official website: www.ataxia.org
Mission Statement of National Ataxia Foundation Incorporated
The National Ataxia Foundation, a notable organization, is committed to accelerating the discovery of treatments and working towards finding a cure for Ataxia. Their primary mission is to enhance the lives of individuals living with this condition. By engaging with policy makers and pharmaceutical companies, the foundation aims to raise awareness about Ataxia and expedite drug development. Additionally, the National Ataxia Foundation provides valuable resources to its community through patient education programs. These initiatives include an annual conference, webinars, and fact sheets, all designed to empower individuals to manage their health and improve their quality of life. Furthermore, the foundation offers a support group program, enabling those affected by Ataxia to connect and learn from one another, fostering a sense of community and shared understanding.
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Impact
July, 2024
The National Ataxia Foundation Incorporated works diligently to accelerate the development of treatments and a cure for Ataxia while also striving to enhance the lives of those affected by this condition. Through their patient education initiatives, including annual conferences, webinars, and informational materials, they empower individuals to better manage their health and quality of life. Additionally, the Foundation's advocacy efforts engage policymakers and pharmaceutical companies to raise awareness about Ataxia, expedite drug development, and advocate for access to necessary care and treatment services. By providing support group programs that facilitate community connections and shared learning, the National Ataxia Foundation plays a crucial role in fostering a supportive environment for individuals impacted by Ataxia.
This information is meant to be a general summary of National Ataxia Foundation Incorporated. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2023.
- Investment Income: $73,728
- Program Service Revenue: $835,649
- Gross Receipts: $3,992,596
Assets and Liabilities:
- Total Assets: $5,008,595
- Total Liabilities: $581,978
- Net Assets: $4,426,617
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
Drug Development Colla
Revenue
$570,833
Conference income
Revenue
$264,816
Organization Details
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