Overview
What is Ibc Network Foundation?
The IBC Network Foundation is a nonprofit organization dedicated to funding high-quality research and proactive education focused on inflammatory and triple-negative breast cancer. Located in Sealy, Texas, the foundation supports underrepresented forms of breast cancer, such as inflammatory and triple-negative, which often affect younger women and have a high fatality rate. In 2022, they funded several projects, including a research grant, a CME, an international meeting, and the establishment of an IBC program in Ohio. They also offered matching grants and hosted virtual events to connect patients with the best care options. Recently, they completed funding for a research project at Vanderbilt University and launched a podcast called "Talk IBC" to provide information and education to the public and medical community. The IBC Network Foundation aims to empower advocates to improve patient outcomes and bridge the gap between patients, healthcare providers, and policymakers.
Official website here: www.theibcnetwork.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 81% (Three-Star out of Four Star Rating)
The IBC Network Foundation has earned a Three-Star rating from Charity Navigator, reflecting an 81% overall score. The organization demonstrates strong accountability and finance practices, with a notable program expense ratio of 86.51%. Additionally, all board members are independent, ensuring unbiased governance. The foundation has also shown an impressive commitment to leadership development, providing free training opportunities, and it has effectively adapted to external changes in the nonprofit landscape.
User reviews highlight the foundation's impactful work in funding research for inflammatory breast cancer, a rare and aggressive form of the disease. Volunteers, such as Terry and Hannah, express deep personal connections to the cause, emphasizing the importance of grassroots support and the charity's all-volunteer operation. They commend the organization for its commitment to directing all funds raised towards research rather than administrative costs, which resonates strongly with donors and those affected by the disease.
While the reviews are overwhelmingly positive, they also underscore the challenges faced by patients with inflammatory breast cancer, stressing the urgency of funding for research in this area. The heartfelt testimonials convey a sense of community and shared purpose among supporters, reinforcing the importance of the foundation's mission in the fight against cancer.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is Ibc Network Foundation legitimate?
Ibc Network Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Ibc Network Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
For more financial information, click here
Official website here: www.theibcnetwork.org
What is the mission statement of Ibc Network Foundation?
The IBC Network Foundation's mission is primarily focused on two main areas: funding research and providing education about Inflammatory Breast Cancer (IBC). The organization aims to advance understanding of IBC, particularly its relationship with triple-negative breast cancer, which is often difficult to treat due to its late-stage presentation and high fatality rate. They fund high-quality research projects and collaborate with institutions like MD Anderson and The Ohio State University to establish specialized IBC programs. Furthermore, the foundation offers proactive education to both the general public and the medical community through various means, such as CMEs, international meetings, Zoom calls, and a podcast called "Talk IBC." In addition, they have initiated an IBC Learning Academy, a course designed to empower advocates and promote the unique needs of IBC patients, thereby improving access to specialty care and increasing education about clinical trials.
Official website here: www.theibcnetwork.org
Who is the CEO of Ibc Network Foundation?
Terry Arnold is the Chair of Ibc Network Foundation.
Official website here: www.theibcnetwork.org
What is the revenue of Ibc Network Foundation?
Ibc Network Foundation's revenue in 2022 was $212,543.
Official website here: www.theibcnetwork.org
Who are the executives of Ibc Network Foundation and what are their salaries?
There 40 volunteers at Ibc Network Foundation.
Here are 3 key members and their salaries:
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
Official website here: www.theibcnetwork.org
Where can I find the form 990 for Ibc Network Foundation?
Ibc Network Foundation's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.theibcnetwork.org
Learn more at the official website: www.theibcnetwork.org
Mission Statement of Ibc Network Foundation
The IBC Network Foundation is an organization dedicated to funding research and providing educational resources related to Inflammatory Breast Cancer (IBC) and its triple-negative subtype. With a mission to support high-quality research, the foundation aims to improve understanding and treatment options for this less common and often fatal form of breast cancer, which predominantly affects younger women.
The foundation's activities are multifaceted. It funds ongoing research projects, organizes conferences and meetings, and collaborates with institutions to establish IBC programs. For instance, the IBC Network Foundation sponsored a research project at Ingrid-Vanderbilt, funded a CME at Baylor Medical College of Medicine, and supported the 7th International IBC Consortium Meeting at MD Anderson. Additionally, they contributed to the establishment of an IBC program at The Ohio State University and offered a matching grant to a major IBC center. These initiatives demonstrate the foundation's commitment to advancing research and education in the field of IBC.
Beyond research, the IBC Network Foundation also prioritizes proactive education. They have launched a podcast titled "Talk IBC," which features interviews with patients, researchers, medical professionals, and counselors. This platform serves as a source of information and education for individuals interested in IBC and its treatment. Furthermore, the foundation has developed an IBC Learning Academy course in collaboration with MD Anderson's Morgan Welch Clinic for Inflammatory Breast Cancer. This resource, offered at no cost, aims to reach a diverse audience, including patients and professionals, and empowers advocates to promote IBC-specific needs in healthcare and policymaking arenas.
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Impact
October, 2024
The IBC Network Foundation has made significant strides in addressing the challenges associated with inflammatory breast cancer (IBC) and its complexities, particularly in relation to triple-negative breast cancer. Focusing on funding high-quality research, the foundation has supported initiatives that directly impact patient care and outcomes in a field that is often overlooked due to the rarity of IBC.
In 2022, the foundation funded several critical projects, including a comprehensive study at Vanderbilt University aimed at exploring the interrelation of triple-negative breast cancer and IBC. Additionally, it co-hosted a continuing medical education (CME) event with prestigious institutions like Baylor Medical College and MD Anderson Cancer Center, ensuring that medical professionals are equipped with the latest knowledge to treat these aggressive forms of breast cancer.
A pivotal achievement of the foundation has been the establishment of the first IBC program in Ohio, a project that took nearly seven years to develop. This program is now one of four specialty centers in the U.S. dedicated to IBC, enhancing the geographic availability of specialized care. Furthermore, the foundation has promoted international collaboration by organizing the 7th International IBC Consortium Meeting, which gathered experts from around the world to foster research and dialogue on effective treatments.
In response to the pandemic's challenges, IBC Network Foundation transitioned to virtual support through Zoom calls, effectively connecting patients with essential resources and care options. The creation of the "Talk IBC" podcast has further expanded outreach, offering a platform for knowledge sharing among patients, researchers, and healthcare providers.
The IBC Learning Academy, developed in collaboration with MD Anderson's Morgan Welch Clinic, provides free, accessible education to a broad audience, empowering advocates and caregivers with the knowledge needed to navigate the complexities of IBC. This initiative has already trained over 50 advocates who can influence and contribute to policy and care standards, ensuring that the specific needs of IBC patients are represented at various levels.
Through these concerted efforts, the IBC Network Foundation is bridging the gap between patients, healthcare providers, and the scientific community, ultimately working to improve outcomes and quality of life for those affected by inflammatory breast cancer.
This information is meant to be a general summary of Ibc Network Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Gross Receipts: $212,543
Assets and Liabilities:
- Total Assets: $58,392
- Total Liabilities: $0
- Net Assets: $58,392
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Organization Details
Founding Year
2011
Phone
(281) 797-5578Principal Officer
Terry Arnold
Main Address
PO Box 908, Sealy, TX, 77474
Website
www.theibcnetwork.orgNTEE Category
Code: T30 - Philanthropy
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