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Neurofibromatosis Michigan

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 383501633 ✦ Grand rapids, MI ✦ Designated as a 501(c)(3)

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Overview

What is Neurofibromatosis Michigan?

Neurofibromatosis Michigan is a nonprofit organization that provides support and resources to individuals dealing with Neurofibromatosis (NF). Their primary objective is to assist individuals in accessing education, quality healthcare, and valuable connections. They offer guidance, friendship, and lobby for increased awareness of NF. Additionally, they have a medical travel program that provides financial aid for individuals requiring medical treatment away from home. Furthermore, Neurofibromatosis Michigan supports research efforts by granting funds to investigators studying treatments for NF.


Official website here: www.nfmich.org

Is Neurofibromatosis Michigan legitimate?

Neurofibromatosis Michigan is a legitimate nonprofit organization registered as a 501(c)(3) entity. Neurofibromatosis Michigan submitted a form 990EZ, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Official website here: www.nfmich.org

What is the mission statement of Neurofibromatosis Michigan?

Neurofibromatosis Michigan, a support group, is committed to assisting individuals dealing with Neurofibromatosis. Their mission is to provide necessary resources such as education, healthcare, friendship, and guidance. They actively engage in advocacy efforts to raise awareness about Neurofibromatosis. Moreover, they offer a medical travel program to provide financial assistance for individuals needing medical care outside their local area. Additionally, the organization provides grants to researchers studying treatments for Neurofibromatosis, aiming to contribute to advancements in its management and potential cure.


Official website here: www.nfmich.org

Who is the CEO of Neurofibromatosis Michigan?

Terri Rausch is the President of Neurofibromatosis Michigan.


Official website here: www.nfmich.org

What is the revenue of Neurofibromatosis Michigan?

Neurofibromatosis Michigan's revenue in 2022 was $64,406.


Official website here: www.nfmich.org

Who are the executives of Neurofibromatosis Michigan and what are their salaries?


Here are 10 key members and their salaries:


Terri Rausch (President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Rosemary Anderson (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Kristin Bradley (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Shelley Volkert (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Stacey Goodwin (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Margaret Crummel (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Tricia Ratell (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Dorothy Pope (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Shane Forfar (Vice President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Hilary Berens (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0


Official website here: www.nfmich.org

Where can I find the form 990EZ for Neurofibromatosis Michigan?

Neurofibromatosis Michigan's most recent form 990EZ was submitted in 2022 and can be accessed here.


Official website here: www.nfmich.org

Learn more at the official website: www.nfmich.org

Mission Statement of Neurofibromatosis Michigan

Neurofibromatosis Michigan, a nonprofit organization, is committed to aiding individuals grappling with the challenges of Neurofibromatosis (Nf). Their mission is threefold: they offer resources, provide support, and actively advocate for awareness. They help individuals find essential resources such as education, quality healthcare, friendship, and guidance. Beyond this, the organization engages in lobbying efforts to raise awareness about Neurofibromatosis.

In addition to resource provision and advocacy, Neurofibromatosis Michigan offers financial assistance through their medical travel program. This program provides travel funds for individuals who require medical care away from their home bases. Furthermore, they offer grants to researchers studying potential treatments for Neurofibromatosis, contributing to the broader goal of finding solutions for those affected by this condition.

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Impact




August, 2024

Neurofibromatosis Michigan has a significant impact on individuals and families affected by Neurofibromatosis (NF) in West Michigan. They provide essential resources for those dealing with the challenges of NF, including education, healthcare options, support, and guidance. Through their lobbying efforts, they raise awareness about NF in the community and advocate for better understanding and support for those with the condition.

The organization's medical travel program offers travel funds for individuals who need medical care outside of their home area, ensuring that they can access the necessary treatment without added financial burden. Additionally, Neurofibromatosis Michigan provides grants to researchers studying potential treatments for Neurofibromatosis, furthering the advancement of knowledge and potential therapies for this condition.

Overall, Neurofibromatosis Michigan plays a crucial role in improving the quality of life for individuals with NF and their families in West Michigan by offering support, resources, and advocating for better care and understanding of the condition.




This information is meant to be a general summary of Neurofibromatosis Michigan. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$64,406 (2022)
Expenses
$64,003 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Gross Receipts: $64,406

Assets and Liabilities:

  • Total Assets: $256,511
  • Total Liabilities: $0
  • Net Assets: $256,511

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Organization Details

Principal Officer

Terri Rausch

Main Address

PO BOX 6026, GRAND RAPIDS, MI, 49516

NTEE Category

Code: E60 - Health

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