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Alternating Hemiplegia Of Childhood Foundation Inc

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 383225425 ✦ Southfield, MI ✦ Designated as a 501(c)(3)

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Overview

What is Alternating Hemiplegia Of Childhood Foundation Inc?

Alternating Hemiplegia of Childhood Foundation Inc, located in Southfield, Michigan, is a nonprofit organization dedicated to addressing Alternating Hemiplegia of Childhood (AHC). Their primary mission is to discover the underlying causes of AHC, develop effective treatments, and ultimately find a cure for this condition. To accomplish these goals, they fund research, provide support to families and children affected by AHC, and engage in educational initiatives. Recently, they granted funds to Dr. Steven Clapcote at Leeds University in the UK to develop mice models and explore an inhibitor-based therapeutic approach for AHC and related diseases.


Official website here: www.ahckids.org

Is Alternating Hemiplegia Of Childhood Foundation Inc legitimate?

Alternating Hemiplegia Of Childhood Foundation Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Alternating Hemiplegia Of Childhood Foundation Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $0

For more financial information, click here


Official website here: www.ahckids.org

What is the mission statement of Alternating Hemiplegia Of Childhood Foundation Inc?

The Alternating Hemiplegia of Childhood Foundation Inc's mission is centered around finding the causes of Alternating Hemiplegia of Childhood (AHC), developing effective treatments, and ultimately discovering a cure. This is done by funding research to accomplish these goals. The organization also provides support to families and children affected by AHC. Additionally, they aim to achieve their mission through a combination of research, education, and family support, with the overarching goal of "END AHC." The foundation has recently granted funds to Dr. Steven Clapcote at Leeds University in the United Kingdom to contribute to the development of mice models and a potential therapeutic approach for AHC using Na/K-ATPase inhibitors.


Official website here: www.ahckids.org

Who is the CEO of Alternating Hemiplegia Of Childhood Foundation Inc?

Joshua Marszalek is the President of Alternating Hemiplegia Of Childhood Foundation Inc.


Official website here: www.ahckids.org

What is the revenue of Alternating Hemiplegia Of Childhood Foundation Inc?

Alternating Hemiplegia Of Childhood Foundation Inc's revenue in 2023 was $349,997.


Official website here: www.ahckids.org

Who are the executives of Alternating Hemiplegia Of Childhood Foundation Inc and what are their salaries?

There 100 volunteers at Alternating Hemiplegia Of Childhood Foundation Inc.


Here are 11 key members and their salaries:


Katelyn Wilson (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Kate Byrne (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Sharon Ciccodicola (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Heather Gates (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Bill Gerber (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Cate Cohen (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Joshua Marszalek (President)
  • Compensation: $0
  • Related: $0
  • Other: $0
April Hawk (Vice-President Of Education & Family Support)
  • Compensation: $0
  • Related: $0
  • Other: $0
Vicky Platt (Vice President Of Research)
  • Compensation: $0
  • Related: $0
  • Other: $0
Gene Andrasco (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Stephen Henderson (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0


Official website here: www.ahckids.org

Where can I find the form 990 for Alternating Hemiplegia Of Childhood Foundation Inc?

Alternating Hemiplegia Of Childhood Foundation Inc's most recent form 990 was submitted in 2023 and can be accessed here.


Official website here: www.ahckids.org

Learn more at the official website: www.ahckids.org

Mission Statement of Alternating Hemiplegia Of Childhood Foundation Inc

The Alternating Hemiplegia of Childhood Foundation Inc is committed to a noble cause: to identify the underlying causes of Alternating Hemiplegia of Childhood (AHC), develop effective treatments, and ultimately find a cure for this debilitating condition. Beyond this medical pursuit, the organization also aims to support the families and children affected by AHC. It accomplishes this goal by funding research initiatives, which is a crucial part of its mission statement.

In essence, the Alternating Hemiplegia of Childhood Foundation Inc is driven by a single mission: to eradicate AHC. This mission is twofold. On one hand, the organization focuses on the scientific aspect, aiming to discover the underlying causes of the condition. On the other hand, it provides emotional and financial support to the families and children affected by AHC. Through its research endeavors, the foundation aims to develop effective treatments and, ultimately, a cure. This holistic approach, combining scientific research and emotional support, is the foundation's unique strategy in its quest to end AHC.

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Impact




October, 2024

Alternating Hemiplegia of Childhood Foundation Inc significantly impacts the landscape of medical research and family support for those affected by Alternating Hemiplegia of Childhood (AHC). By funding innovative research initiatives, such as the recent grant to Dr. Steven Clapcote at Leeds University, the foundation is advancing the understanding of AHC through the development of mouse models and exploring new therapeutic approaches.

Their commitment to uncovering the underlying causes of AHC and identifying effective treatments is central to their mission. This dedication not only drives scientific discovery but also provides hope for families grappling with this complex condition. The foundation's efforts in education and advocacy empower families with information and resources, fostering a supportive community while striving to ultimately find a cure for AHC. Through relentless pursuit of research and support, they aim to end the challenges associated with AHC and improve the quality of life for affected children and their families.




This information is meant to be a general summary of Alternating Hemiplegia Of Childhood Foundation Inc. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$349,997 (2023)
Expenses
$198,796 (2023)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2023.

  • Investment Income: $41,428
  • Gross Receipts: $352,764

Assets and Liabilities:

  • Total Assets: $1,359,089
  • Total Liabilities: $0
  • Net Assets: $1,359,089

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Organization Details

Founding Year

1995

Principal Officer

Joshua Marszalek

Main Address

2000 Town Center Suite 1900, Southfield, MI, 48075

NTEE Category

Code: H80 - Medical research

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