National Spasmodic Dysphonia Association

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 382918042 ✦ Itasca, IL ✦ Designated as a 501(c)(3)

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Overview

What is National Spasmodic Dysphonia Association?

The National Spasmodic Dysphonia Association, based in Itasca, Illinois, is a dedicated nonprofit organization focused on improving the lives of individuals struggling with Spasmodic Dysphonia and related voice conditions. Their mission encompasses four key areas: research, education, awareness, and support. Through funding, they drive advancements in understanding the causes and treatments for these conditions, aiming ultimately to discover a cure. The association also works to reduce diagnosis time by educating professionals and the public. Raising awareness helps reduce feelings of isolation for those affected. Furthermore, they offer symposiums, support groups, and online resources to provide emotional and informational support to patients and their families, ensuring no one feels alone in their journey.


Official website here: www.dysphonia.org

Is National Spasmodic Dysphonia Association legitimate?

National Spasmodic Dysphonia Association is a legitimate nonprofit organization registered as a 501(c)(3) entity. National Spasmodic Dysphonia Association submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $0

For more financial information, click here


Official website here: www.dysphonia.org

What is the mission statement of National Spasmodic Dysphonia Association?

The National Spasmodic Dysphonia Association (NSDA) is committed to improving the lives of individuals affected by spasmodic dysphonia and related voice conditions. They achieve this through various means, including funding research to advance our understanding of the causes and treatments of these conditions, with the ultimate goal of finding a cure. The organization also focuses on education, aiming to reduce the time to diagnosis. They raise awareness to reduce the feelings of isolation that often come with having a voice disorder. Furthermore, NSDA provides support to those affected and their families by offering resources such as symposiums, support groups, and online resources, ensuring no one feels alone in their struggle. The association's mission is to help individuals with these disorders overcome adversity and thrive by creating a supportive community.


Official website here: www.dysphonia.org

Who is the CEO of National Spasmodic Dysphonia Association?

Charlie Reavis is the Director of National Spasmodic Dysphonia Association.


Official website here: www.dysphonia.org

What is the revenue of National Spasmodic Dysphonia Association?

National Spasmodic Dysphonia Association's revenue in 2023 was $0.


Official website here: www.dysphonia.org

Who are the executives of National Spasmodic Dysphonia Association and what are their salaries?


Here are 12 key members and their salaries:


Jane Keller Gordon (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Dot Sowerby (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Charlie Reavis (President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Mary Bifaro (Support Network Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Marcia Sterling (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Beverly Matthews (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Susan Beck (Development Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Dennis Kaszeta (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Bruce Menk (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Dorothy Tannahill-Moran (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Charlie Womble (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Kimberly Kuman (Executive Director)
  • Compensation: $0
  • Related: $0
  • Other: $0


Official website here: www.dysphonia.org

Where can I find the form 990 for National Spasmodic Dysphonia Association?

National Spasmodic Dysphonia Association's most recent form 990 was submitted in 2023 and can be accessed here.


Official website here: www.dysphonia.org

Learn more at the official website: www.dysphonia.org

Mission Statement of National Spasmodic Dysphonia Association

The National Spasmodic Dysphonia Association (NSDA) is committed to enhancing the lives of individuals affected by Spasmodic Dysphonia and related voice conditions. Their mission is multifaceted, encompassing research, education, awareness, and support. In the realm of research, NSDA aims to advance our understanding of the causes and treatments for these conditions, ultimately working towards a cure.

In the realm of education, NSDA strives to reduce the time to diagnosis by disseminating knowledge. Their goal is to break the isolation often associated with having a voice disorder, raising awareness to create a more understanding and compassionate society. To support those affected and their families, NSDA offers a variety of resources, including symposiums, support groups, and online platforms. Their mission is to create a community that cares, ensuring no one feels alone in their struggle with these conditions. The association empowers individuals with Spasmodic Dysphonia and related voice conditions to overcome adversity and thrive.

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Impact




October, 2024

The National Spasmodic Dysphonia Association (NSDA) significantly impacts the lives of individuals affected by spasmodic dysphonia and related voice conditions through a multi-faceted approach. By funding research, the NSDA advances the understanding of the causes and treatments for these voice disorders, ultimately aiming for a cure. Their educational initiatives work to reduce the time to diagnosis, ensuring that individuals receive the help they need more swiftly.

Raising awareness is another crucial aspect of their mission, as it helps lessen the isolation many experience due to their voice disorder. Through this awareness, the NSDA fosters a sense of community where individuals can connect, share experiences, and derive strength from one another.

Support is at the core of the NSDA’s efforts, providing essential resources through symposiums, support groups, and online platforms. This comprehensive support network is designed to ensure that no one feels alone in their journey, helping individuals not just manage their symptoms but also thrive in their everyday lives. The NSDA's commitment to improving quality of life for those affected by spasmodic dysphonia is a testament to their profound and positive impact within the community.




This information is meant to be a general summary of National Spasmodic Dysphonia Association. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$0 (2023)
Expenses
$0 (2023)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2023.

    Assets and Liabilities:

    • Total Assets: $0
    • Total Liabilities: $0
    • Net Assets: $0

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    Organization Details

    Founding Year

    1989

    Principal Officer

    Charlie Reavis

    Main Address

    300 PARK BOULEVARD 175, ITASCA, IL, 60143

    NTEE Category

    Code: G40 - Disease

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