Overview
What is Castleman Disease Collaborative Network?
Castleman Disease Collaborative Network is a nonprofit organization based in Paso Robles, California. Their primary mission is to raise awareness about Castleman's Disease and fund research aiming to determine its cause, treatment, and potential cure. In 2022, they organized an educational summit for patients and their loved ones, providing supportive resources, updated information, and current research findings. Additionally, they made substantial cash contributions to various organizations, totaling $136,405, to support ongoing research on Castleman's Disease. Furthermore, they allocated funds for consulting fees, physician and patient education, promoting their cause, and maintaining a research database. Their activities in 2022 contributed to a better understanding of Castleman's Disease mechanisms and the potential development of personalized therapies. In 2023, they plan to continue soliciting community contributions and hosting fundraising events to further support their mission.
Official website here: www.care4castlemans.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: Needs Improvement (73%, Two-Star out of Four Star rating)
The Castleman Disease Collaborative Network has received a two-star rating from Charity Navigator, indicating that while it demonstrates strong impact measurement and leadership adaptability, it requires improvement in accountability and finance. The organization scored 52 in accountability and finance, highlighting significant concerns such as the absence of independent board members and missing key governance policies, including conflict of interest and whistleblower policies.
Despite its financial challenges, the organization showcases a high program expense ratio of 95.16%, indicating that a substantial portion of its funds goes directly to its programs. Additionally, it has excelled in feedback collection and usage, both scoring 100%, which reflects a commitment to community engagement and responsiveness. However, the lack of transparency in financial statements and governance documentation remains a notable limitation.
Overall, while the Castleman Disease Collaborative Network demonstrates effective leadership and program impact, its governance practices and financial accountability need strengthening to enhance trust and reliability among stakeholders.
This AI summary has been generated from information found on Charity Navigator.
Is Castleman Disease Collaborative Network legitimate?
Castleman Disease Collaborative Network is a legitimate nonprofit organization registered as a 501(c)(3) entity. Castleman Disease Collaborative Network submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
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Official website here: www.care4castlemans.org
What is the mission statement of Castleman Disease Collaborative Network?
The Castleman Disease Collaborative Network's mission is centered around raising awareness about Castleman's Disease and funding research to determine its cause, treatment, and ultimately, a cure. Their primary goal is to educate the public and provide resources, while also funding laboratory studies. In 2022, they utilized community contributions, large grants, and funds from an annual fundraiser to support an educational summit for patients and their loved ones, offering resources, updated information, and current treatment options. Furthermore, they made cash contributions to various research organizations to fund ongoing studies into the cause and treatment of Castleman's Disease, with the aim of understanding its mechanisms and developing personalized therapies.
Official website here: www.care4castlemans.org
What is the revenue of Castleman Disease Collaborative Network?
Castleman Disease Collaborative Network's revenue in 2023 was $1,265,979.
Official website here: www.care4castlemans.org
Who are the executives of Castleman Disease Collaborative Network and what are their salaries?
Here are 11 key members and their salaries:
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Official website here: www.care4castlemans.org
Where can I find the form 990 for Castleman Disease Collaborative Network?
Castleman Disease Collaborative Network's most recent form 990 was submitted in 2023 and can be accessed here.
Official website here: www.care4castlemans.org
Learn more at the official website: www.care4castlemans.org
Mission Statement of Castleman Disease Collaborative Network
The Castleman Disease Collaborative Network, a dedicated organization, aims to foster awareness about Castleman's Disease and raise funds for educational and laboratory research. Their mission is twofold: to determine the cause, treatment, and ultimately, cure for this disease. By doing so, they seek to provide hope and improved health outcomes for those affected by Castleman's Disease.
In pursuit of this mission, the Castleman Disease Collaborative Network engages in various activities. They organize educational summits, like the one held in September 2022, which offer supportive resources, updated information about the disease, current research, and treatment options. These summits also provide opportunities for patients and their loved ones to connect and learn about ways to support ongoing research efforts.
Moreover, the organization directs a significant portion of its funds towards supporting research. In 2022, they made cash contributions totaling $136,405 to institutions such as the University of Pennsylvania, Else Care Carenity in Paris, France, and the Uplifting Athletes Organization. These contributions were aimed at furthering research into the cause and treatment of Castleman's Disease. Additionally, they covered consulting fees, physician and patient education, and maintained a database for research teams involved in various areas of Castleman's Disease research. These studies hold promise in understanding the disease mechanisms and providing insights for the development of personalized therapies.
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Impact
July, 2024
Castleman Disease Collaborative Network has a significant impact on the research and awareness of Castleman's Disease. Through community contributions, grants, and fundraising efforts, the organization has been able to support educational summits for patients and their families, providing crucial information and resources about the disease, current research, and treatment options.
Additionally, the funds raised have been directed towards supporting ongoing research into the cause and treatment of Castleman's Disease. Contributions made to research institutions like the University of Pennsylvania and Carenity in Paris, France, as well as to organizations like Uplifting Athletes, have facilitated studies that aim to uncover the mechanisms of Castleman's Disease and develop personalized therapies.
Looking ahead to 2023, Castleman Disease Collaborative Network plans to continue its community engagement and fundraising activities to further support education, research, and efforts towards finding a cure for Castleman's Disease. This ongoing commitment to raising awareness and funding research is vital in advancing our understanding and treatment options for this rare disease.
This information is meant to be a general summary of Castleman Disease Collaborative Network. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2023.
- Investment Income: $72,815
- Gross Receipts: $4,604,643
Assets and Liabilities:
- Total Assets: $2,521,021
- Total Liabilities: $0
- Net Assets: $2,521,021
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Organization Details
Founding Year
2005
Principal Officer
Greg Pacheco
Website
www.care4castlemans.orgNTEE Category
Code: H12 - Medical research
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