Overview
What is American Porphyria Foundation?
The American Porphyria Foundation is a dedicated nonprofit organization that focuses on porphyria education and research. By sharing vital information with thousands of affected individuals, this organization aims to enhance understanding and awareness about porphyria. Furthermore, they provide research funding to medical professionals, fostering advancements in the field. This commitment to education and research is integral to their mission, aiming to improve the lives of those impacted by porphyria.
Official website here: www.porphyriafoundation.org
What do the Facebook reviews say about American Porphyria Foundation?
96% of 43 reviews on Facebook recommend the American Porphyria Foundation. Many individuals have expressed appreciation for the organization’s support in navigating the complexities of acute intermittent porphyria (AIP). The foundation is recognized for its commitment to providing guidance throughout the diagnosis process, treatment options, and participation in clinical trials.
Reviewers have highlighted how the foundation has positively impacted their health and quality of life, with some noting they have achieved a level of healthfulness they previously thought was unattainable. The gratitude expressed by users reflects a strong belief in the foundation's mission and support systems.
Overall, the sentiment surrounding the American Porphyria Foundation is overwhelmingly positive, with users feeling that the nonprofit delivers on its promises and effectively addresses the needs of those affected by this rare disease.
This AI summary has been generated from reviews found on Facebook.
Is American Porphyria Foundation legitimate?
American Porphyria Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. American Porphyria Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $208,543
For more financial information, click here
Official website here: www.porphyriafoundation.org
What is the mission statement of American Porphyria Foundation?
The American Porphyria Foundation is committed to spreading knowledge about Porphyria and supporting research in this field. Their mission, encompassing both education and research, aims to benefit thousands of individuals affected by Porphyria. To accomplish this, they provide grants to medical professionals for their studies, contributing significantly to the understanding and potential advancements in Porphyria.
Official website here: www.porphyriafoundation.org
Who is the CEO of American Porphyria Foundation?
Warren Hudson is the Trustee of American Porphyria Foundation.
Official website here: www.porphyriafoundation.org
What is the revenue of American Porphyria Foundation?
American Porphyria Foundation's revenue in 2022 was $318,142.
Official website here: www.porphyriafoundation.org
Who are the executives of American Porphyria Foundation and what are their salaries?
The average compensation at American Porphyria Foundation during 2022 was $18,958. There are 11 employees and 20 volunteers at American Porphyria Foundation.
Here are 7 key members and their salaries:
- Compensation: $80,000
- Related: $0
- Other: $0
- Compensation: $50,000
- Related: $0
- Other: $0
- Compensation: $1
- Related: $0
- Other: $0
- Compensation: $1
- Related: $0
- Other: $0
- Compensation: $1
- Related: $0
- Other: $0
- Compensation: $1
- Related: $0
- Other: $0
- Compensation: $1
- Related: $0
- Other: $0
Official website here: www.porphyriafoundation.org
Where can I find the form 990 for American Porphyria Foundation?
American Porphyria Foundation's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.porphyriafoundation.org
Learn more at the official website: www.porphyriafoundation.org
Mission Statement of American Porphyria Foundation
The American Porphyria Foundation, a dedicated organization, is committed to the mission of porphyria education and research. Through its efforts, the foundation disseminates crucial information to numerous individuals who are impacted by this condition. Recognizing the significance of research, the American Porphyria Foundation provides grants to medical professionals, encouraging them to delve deeper into understanding and combating porphyria. By pursuing this dual-pronged approach of education and research, the American Porphyria Foundation aims to make a substantial impact in the lives of those affected by porphyria.
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Impact
October, 2024
The American Porphyria Foundation significantly impacts individuals affected by Porphyria through comprehensive education and research initiatives. By disseminating vital information, it reaches thousands, ensuring that patients and their families are informed about the condition and its management. Additionally, by providing grants to physicians for research, it fosters advancements in understanding and treating Porphyria. This commitment to education and research drives progress in care and empowers the community, ultimately improving the quality of life for those impacted by this rare group of disorders.
This information is meant to be a general summary of American Porphyria Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $3,419
- Gross Receipts: $318,142
Assets and Liabilities:
- Total Assets: $430,311
- Total Liabilities: $18,492
- Net Assets: $411,819
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Organization Details
Founding Year
2000
Phone
(301) 347-7166Principal Officer
Warren Hudson
Main Address
4502 CORTEZ RD W Suite 102, BRADENTON, FL, 34210
Website
www.porphyriafoundation.orgNTEE Category
Code: B90 - Education
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