Overview
What is Citizens United For Research In Epilepsy?
Citizens United for Research in Epilepsy, abbreviated as CURE Epilepsy, is a nonprofit organization established in 1998, based in Chicago, Illinois. With a mission to eradicate epilepsy, they have dedicated significant resources, exceeding 90 million dollars, towards funding research projects worldwide. Their focus is on various epilepsy-related issues, including pediatric epilepsy, post-traumatic epilepsy, treatment-resistant epilepsies, sudden unexplained death in epilepsy (SUDEP), and sleep and epilepsy. By funding grants for young and established investigators in 17 countries, CURE Epilepsy aims to advance cure-seeking research, minimize treatment side effects, and mitigate deficits caused by frequent seizures. With a team of 19 dedicated individuals, the organization continues its quest to find a cure for epilepsy.
Official website here: www.cureepilepsy.org
What are the reviews and ratings of this charity?
Charity Navigator rating: 99%, Four-Star out of Four Star rating.
Citizens United for Research in Epilepsy (CURE) has received an impressive Four-Star rating from Charity Navigator, reflecting its strong accountability and financial integrity. The organization boasts a perfect score in Accountability & Finance and Leadership & Adaptability, which speaks to its effective management and commitment to transparency. The Program Expense Ratio of 85.70% indicates that a significant portion of its budget is directed towards its research initiatives, further emphasizing its focus on advancing the understanding of epilepsy.
User reviews consistently highlight CURE's dedication to funding vital research aimed at finding cures for epilepsy and enhancing community awareness. Many reviewers appreciate the collaborative environment cultivated by the organization, which fosters partnerships between researchers, patients, and advocates. The leadership is noted for being exceptional and committed, driving innovative solutions and scientific advancements in the epilepsy field.
While the organization has received overwhelmingly positive feedback, some reviews suggest a desire for even more extensive outreach and increased funding opportunities for researchers. Nevertheless, the overall sentiment surrounding CURE is one of hope and appreciation for its role as a leader in epilepsy research, positioning itself as an invaluable resource for families affected by the condition.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is Citizens United For Research In Epilepsy legitimate?
Citizens United For Research In Epilepsy is a legitimate nonprofit organization registered as a 501(c)(3) entity. Citizens United For Research In Epilepsy submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $1,276,512
Professional Fundraising Fees: $0
Other Salaries and Wages: $555,921
For more financial information, click here
Official website here: www.cureepilepsy.org
What is the mission statement of Citizens United For Research In Epilepsy?
Citizens United For Research In Epilepsy, established in 1998, is dedicated to finding a cure for epilepsy. They accomplish this by promoting and financially supporting patient-focused research. Over the years, they have raised over 90 million dollars to fund various research projects related to pediatric epilepsy, post-traumatic epilepsy, treatment-resistant epilepsies, sudden unexplained death in epilepsy (SUDEP), sleep issues, and epilepsy. Their grants support both young and established investigators globally, aiming to advance the search for a cure, reduce treatment side effects, and reverse deficits caused by frequent seizures. As of now, they have awarded over 280 grants in 17 countries worldwide.
Official website here: www.cureepilepsy.org
Who is the CEO of Citizens United For Research In Epilepsy?
Beth Dean is the Ceo of Citizens United For Research In Epilepsy. The CEO's salary of Citizens United For Research In Epilepsy is $299,086 and their total compensation is $336,051.
Official website here: www.cureepilepsy.org
What is the revenue of Citizens United For Research In Epilepsy?
Citizens United For Research In Epilepsy's revenue in 2022 was $6,231,376.
Official website here: www.cureepilepsy.org
Who are the executives of Citizens United For Research In Epilepsy and what are their salaries?
The average compensation at Citizens United For Research In Epilepsy during 2022 was $96,444. There are 19 employees and 250 volunteers at Citizens United For Research In Epilepsy.
Here are 21 key members and their salaries (Citizens United For Research In Epilepsy's CEO's salary is $299,086 and their total compensation is $336,051):
- Compensation: $299,086
- Related: $0
- Other: $36,965
- Compensation: $295,325
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- Other: $17,105
- Compensation: $162,707
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- Other: $6,346
- Compensation: $149,182
- Related: $0
- Other: $14,528
- Compensation: $115,032
- Related: $0
- Other: $25,035
- Compensation: $110,734
- Related: $0
- Other: $27,352
- Compensation: $120,690
- Related: $0
- Other: $4,111
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Official website here: www.cureepilepsy.org
Where can I find the form 990 for Citizens United For Research In Epilepsy?
Citizens United For Research In Epilepsy's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.cureepilepsy.org
Learn more at the official website: www.cureepilepsy.org
Mission Statement of Citizens United For Research In Epilepsy
Citizens United For Research In Epilepsy, commonly referred to as CURE Epilepsy, is dedicated to finding a cure for epilepsy. Their mission is twofold: to promote and fund patient-focused research. By investing in novel projects, CURE Epilepsy aims to prevent epilepsy related to various conditions such as pediatric epilepsy, post-traumatic epilepsy, treatment-resistant epilepsies, sudden unexplained death in epilepsy, and sleep and epilepsy. Their goal is not only to find cures but also to minimize treatment side effects and reverse deficits caused by frequent seizures.
CURE Epilepsy supports both young and established investigators by funding their research initiatives worldwide. With over 280 grants awarded in 17 countries, they are actively contributing to the global fight against epilepsy. Their commitment to patient-focused research signifies their determination to improve the lives of those affected by this neurological disorder. By funding groundbreaking research, CURE Epilepsy is leading the way towards a future without epilepsy.
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Impact
October, 2024
Citizens United For Research In Epilepsy (CURE Epilepsy) has significantly impacted the landscape of epilepsy research since its inception in 1998. By raising over $90 million, CURE Epilepsy has actively promoted and funded patient-focused research aimed at finding a cure for various forms of epilepsy. This initiative is critical not only for advancing medical knowledge but also for improving the quality of life for those affected by this condition.
CURE Epilepsy awards grants for innovative research projects that address multiple aspects of epilepsy, including pediatric epilepsy, post-traumatic epilepsy, treatment-resistant forms, and the risk of sudden unexplained death in epilepsy (SUDEP). The organization’s commitment to exploring the intersection of sleep and epilepsy highlights its comprehensive approach to understanding and treating this complex neurological disorder.
By supporting both young and established investigators, CURE Epilepsy has funded over 280 grants across 17 countries, fostering a global research network dedicated to advancing treatments and potential cures. This collaborative effort not only enhances the scientific community's understanding of epilepsy but also works towards eliminating treatment side effects and reversing deficits caused by frequent seizures. Ultimately, CURE Epilepsy plays a pivotal role in driving forward research that could lead to breakthroughs essential for the well-being of those affected by epilepsy.
This information is meant to be a general summary of Citizens United For Research In Epilepsy. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $846,777
- Gross Receipts: $9,748,461
Assets and Liabilities:
- Total Assets: $10,154,743
- Total Liabilities: $4,004,057
- Net Assets: $6,150,686
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Organization Details
Founding Year
1998
Phone
(312) 255-1801Principal Officer
Beth Dean
Main Address
420 N Wabash Ave STE 650, Chicago, IL, 60611
Website
www.cureepilepsy.orgNTEE Category
Code: H125 - Medical research
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