Overview
What is Intl Essential Tremor Foundation?
The International Essential Tremor Foundation is a nonprofit organization situated in Lenexa, Kansas. Their primary objective is to provide global educational resources, services, and support to individuals affected by Essential Tremor, as well as healthcare providers. They accomplish this by maintaining an updated list of physicians specializing in Essential Tremor, assisting in the formation and maintenance of Essential Tremor support groups, and administering clinics and public education in the field of tremor conditions. Furthermore, the Foundation actively promotes and funds research related to Essential Tremor. With a team of three dedicated individuals, they strive to enhance the lives of those impacted by this condition.
Official website here: www.essentialtremor.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 97% (Four-Star out of Four Stars)
The International Essential Tremor Foundation (IETF) has achieved an impressive 97% rating from Charity Navigator, indicating a high level of accountability and financial health. The organization scores exceptionally well on various metrics, including a perfect score for the independence of its board members, strong financial oversight, and a remarkable program expense ratio of 81.40%. This suggests that IETF is highly effective in utilizing its resources towards its mission of supporting those affected by essential tremor and promoting research in this area.
User feedback reflects a strong appreciation for the IETF's role in providing support and information to individuals diagnosed with essential tremor. Many users cite the organization as a critical source of education, community, and hope, with several testimonials highlighting life-changing experiences facilitated by IETF's resources and research initiatives. The foundation's commitment to raising awareness about essential tremor and connecting individuals with relevant medical specialists has been particularly noted as invaluable.
Despite the overwhelmingly positive responses, some feedback indicates a desire for broader public awareness about essential tremor, which remains less recognized compared to other conditions like Parkinson's. Overall, the IETF is celebrated for its dedication, knowledgeable staff, and impactful programs that contribute significantly to improving the lives of those living with essential tremor.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is Intl Essential Tremor Foundation legitimate?
Intl Essential Tremor Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Intl Essential Tremor Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $270,191
For more financial information, click here
Official website here: www.essentialtremor.org
What is the mission statement of Intl Essential Tremor Foundation?
The International Essential Tremor Foundation's mission is to disseminate global educational information, services, and support to individuals impacted by Essential Tremor (ET), as well as healthcare providers. They actively promote and fund research related to ET. The foundation accomplishes this by distributing informational packets about ET, maintaining a directory of specialists in the field, and aiding in the establishment and maintenance of ET support groups. Additionally, they administer clinics and engage in public education regarding tremor conditions.
Official website here: www.essentialtremor.org
Who is the CEO of Intl Essential Tremor Foundation?
Kelly E Lyons is the President of Intl Essential Tremor Foundation.
Official website here: www.essentialtremor.org
What is the revenue of Intl Essential Tremor Foundation?
Intl Essential Tremor Foundation's revenue in 2023 was $2,020,359.
Official website here: www.essentialtremor.org
Who are the executives of Intl Essential Tremor Foundation and what are their salaries?
The average compensation at Intl Essential Tremor Foundation during 2023 was $90,064. There are 3 employees at Intl Essential Tremor Foundation.
Here are 7 key members and their salaries:
- Compensation: $112,000
- Related: $0
- Other: $0
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- Other: $0
- Compensation: $0
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- Other: $0
- Compensation: $0
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- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
Official website here: www.essentialtremor.org
Where can I find the form 990 for Intl Essential Tremor Foundation?
Intl Essential Tremor Foundation's most recent form 990 was submitted in 2023 and can be accessed here.
Official website here: www.essentialtremor.org
Learn more at the official website: www.essentialtremor.org
Mission Statement of Intl Essential Tremor Foundation
The International Essential Tremor Foundation is committed to a mission that encompasses providing comprehensive educational resources, services, and support for individuals grappling with Essential Tremor (ET), as well as healthcare providers. This mission extends beyond the borders of a single nation, aiming to touch lives worldwide. The organization actively promotes and funds research related to ET, with the ultimate goal of advancing understanding and potential treatments for this condition.
In pursuit of its mission, the International Essential Tremor Foundation distributes informational packets about ET, maintaining an updated list of physicians who specialize in this field. Furthermore, the foundation assists in establishing and maintaining Essential Tremor support groups, offering a vital network of understanding and mutual support for those affected by the condition. Additionally, the organization administers clinics and conducts public education programs in the realm of tremor-related conditions, contributing to a broader awareness and understanding of these issues.
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Impact
October, 2024
The Intl Essential Tremor Foundation significantly impacts the lives of individuals affected by essential tremor (ET) by providing vital educational resources, services, and support. It serves as a comprehensive source of information, actively distributing educational packets about essential tremor to raise awareness and understanding of the condition.
The Foundation maintains an up-to-date directory of healthcare professionals specializing in ET, facilitating access to appropriate care for patients. Additionally, it plays a crucial role in establishing and sustaining ET support groups, fostering a sense of community among those impacted by this condition.
By administering clinics and focusing on public education about tremor disorders, the Foundation enhances awareness and promotes better management of essential tremor. Furthermore, it advocates for and funds research initiatives, advancing the medical understanding of ET and contributing to the development of potential treatments. Through these efforts, the Intl Essential Tremor Foundation works to improve the quality of life for individuals with essential tremor and empower both patients and healthcare providers with crucial knowledge and support.
This information is meant to be a general summary of Intl Essential Tremor Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2023.
- Investment Income: $151,857
- Program Service Revenue: $26,390
- Gross Receipts: $2,036,298
Assets and Liabilities:
- Total Assets: $8,330,203
- Total Liabilities: $177,454
- Net Assets: $8,152,749
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
OTHER EXEMPT FUNCTIONS
Revenue
$26,390
Organization Details
Founding Year
1992
Principal Officer
Kelly E Lyons
Main Address
13628 WEST 95TH STREET, LENEXA, KS, 66215
Website
www.essentialtremor.orgNTEE Category
Code: H80J - Medical research
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