Hairy Cell Leukemia Foundation

Learn about this cause: What are the reviews? Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 363327001 ✦ San francisco, CA ✦ Designated as a 501(c)(3)

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Overview

What is Hairy Cell Leukemia Foundation?

The Hairy Cell Leukemia Foundation, situated in San Francisco, California, is a nonprofit organization with a single-minded mission to improve patient outcomes by driving research into the underlying causes and effective treatments of Hairy Cell Leukemia. This foundation also extends its support through educational resources and comfort to those impacted by this condition. With a small team of two dedicated individuals, the Hairy Cell Leukemia Foundation has granted funds to The Ohio State University for the implementation of a registry, which is a crucial step in advancing medical knowledge and patient care.


Official website here: www.hairycellleukemia.org

What are the reviews and ratings of this charity?

Charity Navigator Rating: 92% (Four-Star out of Four Star rating)

The Hairy Cell Leukemia Foundation has received a strong 92% rating from Charity Navigator, indicating high levels of accountability and financial health. This score is based entirely on their Accountability & Finance metrics, which reflect the organization's commitment to responsible management of resources and transparency.

The foundation boasts a fully independent board, achieving a perfect score in board member independence and size. They have implemented rigorous audit and oversight measures, ensuring that there are no material diversions of assets. The organization also maintains high program expense ratios, allocating 96.12% of its resources directly to its mission.

However, some areas for improvement were noted, specifically the absence of a whistleblower policy and document retention and destruction procedures. Despite these gaps, the foundation's financial ratios and operational efficiency indicate a well-managed organization that effectively utilizes its funding to support its objectives.


This AI summary has been generated from information found on Charity Navigator.

What do the Facebook reviews say about Hairy Cell Leukemia Foundation?

A couple of users have shared their thoughts on the Hairy Cell Leukemia Foundation. While there are only two reviews, both highlight the positive impact of the organization.

One user commends the foundation for its dedication to research, describing it as a "great organization doing wonderful work." This sentiment suggests a strong belief in the foundation’s mission and efforts to support those affected by hairy cell leukemia.

Overall, there's a clear endorsement of the nonprofit's commitment to advancing research in this area, indicating a promising reputation among its supporters.


This AI summary has been generated from reviews found on Facebook.

Is Hairy Cell Leukemia Foundation legitimate?

Hairy Cell Leukemia Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Hairy Cell Leukemia Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $140,000
Professional Fundraising Fees: $0
Other Salaries and Wages: $16,611

For more financial information, click here


Official website here: www.hairycellleukemia.org

What is the mission statement of Hairy Cell Leukemia Foundation?

The Hairy Cell Leukemia Foundation is committed to improving the outcomes for patients suffering from Hairy Cell Leukemia. They accomplish this by advancing research into the causes and treatment of this disease. Furthermore, the foundation offers educational resources and provides comfort to all those impacted by Hairy Cell Leukemia. Their mission is to advance scientific knowledge and offer support to patients and their families, aiming to improve the overall quality of life for those affected by this condition. The foundation also provides financial assistance, such as grants, to support research initiatives, as demonstrated by their partnership with the Ohio State University for registry implementation.


Official website here: www.hairycellleukemia.org

What is the revenue of Hairy Cell Leukemia Foundation?

Hairy Cell Leukemia Foundation's revenue in 2023 was $2,473,634.


Official website here: www.hairycellleukemia.org

Who are the executives of Hairy Cell Leukemia Foundation and what are their salaries?

The average compensation at Hairy Cell Leukemia Foundation during 2023 was $78,306. There are 2 employees and 10 volunteers at Hairy Cell Leukemia Foundation.

Here are 11 key members and their salaries:


Keith Markbreiter (President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Adi Weber (Vice President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Michael Margolin (Vice President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Marc Stadtmauer (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Ken Jensen (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Brian Friedman (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Tim Maher (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Scott Svoboda (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Kirk Zachary (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Bobby Patrick (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Anna Lambertson (Executive Director)
  • Compensation: $140,000
  • Related: $0
  • Other: $0


Official website here: www.hairycellleukemia.org

Where can I find the form 990 for Hairy Cell Leukemia Foundation?

Hairy Cell Leukemia Foundation's most recent form 990 was submitted in 2023 and can be accessed here.


Official website here: www.hairycellleukemia.org

Learn more at the official website: www.hairycellleukemia.org

Mission Statement of Hairy Cell Leukemia Foundation

The Hairy Cell Leukemia Foundation is committed to enhancing the prognosis for patients battling Hairy Cell Leukemia. They achieve this by actively supporting research into the disease's origins and effective treatment methods. Furthermore, the foundation extends its reach beyond medical advancements, offering educational resources and emotional support to all those impacted by Hairy Cell Leukemia. This holistic approach aims to provide comfort and understanding during challenging times. Recently, the foundation has granted funds to the Ohio State University for the implementation of a registry, underscoring their dedication to advancing research and improving outcomes for patients battling Hairy Cell Leukemia.

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Impact




October, 2024

The Hairy Cell Leukemia Foundation significantly impacts the landscape of healthcare for patients suffering from hairy cell leukemia. By advancing research into the causes and treatments of this specific type of cancer, the foundation plays a crucial role in improving patient outcomes. One of its key initiatives includes granting funds to the Ohio State University for the implementation of a patient registry, which is essential for tracking treatment effectiveness and patient experiences.

In addition to research contributions, the foundation provides valuable educational resources that inform patients and caregivers about the disease, ensuring they have access to the information and support they need. This dual focus on research and education not only enhances the understanding of hairy cell leukemia but also fosters a greater sense of comfort and community for those affected. Overall, the Hairy Cell Leukemia Foundation is a vital force in enriching the lives of patients and driving forward the science surrounding this rare condition.




This information is meant to be a general summary of Hairy Cell Leukemia Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$2,473,634 (2023)
Expenses
$1,302,800 (2023)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2023.

  • Investment Income: $125,170
  • Gross Receipts: $2,473,634

Assets and Liabilities:

  • Total Assets: $2,739,152
  • Total Liabilities: $5,067
  • Net Assets: $2,734,085

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Organization Details

Founding Year

1984

Principal Officer

Anna Lambertson

NTEE Category

Code: H30 - Medical research

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