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Scleroderma Foundation Of Greater Chicago

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 363238642 ✦ Chicago, IL ✦ Designated as a 501(c)(3)

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Overview

What is Scleroderma Foundation Of Greater Chicago?

The Scleroderma Foundation of Greater Chicago is a nonprofit organization situated in Chicago, Illinois, specifically at 125 S CLARK ST 17TH FLOOR. Their primary mission is threefold, encompassing support, education, and research. In terms of support, they offer various programs to aid patients and their families in managing scleroderma, including peer counseling, physician referrals, and educational information. For the educational aspect, they promote public awareness by hosting seminars, distributing literature, and launching publicity campaigns. Lastly, in their pursuit of a cure, they stimulate and support research to enhance treatment options for scleroderma and related diseases. The foundation carries out these activities through patient support events, maintaining a helpline, answering queries, distributing literature, publishing a newsletter, and conducting educational seminars. They have a team of 2 dedicated individuals working towards these goals.


Official website here: www.scleroderma.org/site/pageserver?pa

Is Scleroderma Foundation Of Greater Chicago legitimate?

Scleroderma Foundation Of Greater Chicago is a legitimate nonprofit organization registered as a 501(c)(3) entity. Scleroderma Foundation Of Greater Chicago submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $108,504
Professional Fundraising Fees: $0
Other Salaries and Wages: $54,596

For more financial information, click here


Official website here: www.scleroderma.org/site/pageserver?pa

What is the mission statement of Scleroderma Foundation Of Greater Chicago?

The Scleroderma Foundation of Greater Chicago has a threefold mission to support, educate, and conduct research related to Scleroderma. In the support aspect, they aim to assist patients and their families in managing the condition through mutual support programs, peer counseling, and physician referrals, as well as providing educational information. Their educational mission involves promoting public awareness and education through patient and health professional seminars, literature, and publicity campaigns. Lastly, the foundation aims to stimulate and support research to improve treatment and, ultimately, find the cause and cure for Scleroderma and related diseases by funding relevant studies.


Official website here: www.scleroderma.org/site/pageserver?pa

Who is the CEO of Scleroderma Foundation Of Greater Chicago?

Stephanie Gresh is the Treasurer of Scleroderma Foundation Of Greater Chicago.


Official website here: www.scleroderma.org/site/pageserver?pa

What is the revenue of Scleroderma Foundation Of Greater Chicago?

Scleroderma Foundation Of Greater Chicago's revenue in 2022 was $427,266.


Official website here: www.scleroderma.org/site/pageserver?pa

Who are the executives of Scleroderma Foundation Of Greater Chicago and what are their salaries?

The average compensation at Scleroderma Foundation Of Greater Chicago during 2022 was $81,550. There are 2 employees and 34 volunteers at Scleroderma Foundation Of Greater Chicago.


Here are 13 key members and their salaries:


Dan Clarin (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jules Cogan (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
David Helfand (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Cleetus Friedman (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Tony Cogan (President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Carol Goldman (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Mary Carns (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Peter Goldman (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
John Varga Md (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Julie L Drewniak (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Eliisa Capstick (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jennifer Bryson (Vice President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Stephanie Gresh (Executive Director)
  • Compensation: $108,504
  • Related: $0
  • Other: $0


Official website here: www.scleroderma.org/site/pageserver?pa

Where can I find the form 990 for Scleroderma Foundation Of Greater Chicago?

Scleroderma Foundation Of Greater Chicago's most recent form 990 was submitted in 2022 and can be accessed here.


Official website here: www.scleroderma.org/site/pageserver?pa

Learn more at the official website: www.scleroderma.org/site/pageserver?pa

Mission Statement of Scleroderma Foundation Of Greater Chicago

The Scleroderma Foundation of Greater Chicago is dedicated to a three-fold mission: support, education, and research. In the realm of support, the organization aims to assist patients and their families in coping with scleroderma. This is achieved through mutual support programs, peer counseling, physician referrals, and the provision of educational information.

In terms of education, the Scleroderma Foundation of Greater Chicago seeks to promote public awareness and education. They accomplish this by organizing patient and health professional seminars, distributing literature, and orchestrating publicity campaigns. The ultimate goal is to increase understanding about scleroderma and related diseases.

Lastly, the foundation is committed to stimulating and supporting research to improve treatment and, ultimately, find a cause and a cure for scleroderma and related diseases. By doing so, they hope to contribute to the medical community's efforts in managing and eradicating this condition.

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Impact




October, 2024

The Scleroderma Foundation of Greater Chicago significantly impacts the lives of patients and their families affected by scleroderma through its comprehensive initiatives focused on support, education, and research.

Through mutual support programs, individuals find comfort and understanding from peers who share similar experiences. Peer counseling, physician referrals, and educational resources empower patients to better navigate their condition. The organization also maintains a helpline, addressing inquiries to provide timely assistance and information.

Educational efforts play a crucial role in raising public awareness about scleroderma. By organizing seminars for both patients and healthcare professionals and distributing informative literature, the foundation enhances knowledge, which is essential for improving early diagnosis and treatment options.

In addition to immediate support and education, the foundation fosters research aimed at improving treatment outcomes and ultimately discovering a cure for scleroderma and related diseases. This dedication to facilitating research underlines the organization's commitment to long-term solutions for those affected by the disease.

Overall, the Scleroderma Foundation of Greater Chicago is instrumental in creating a supportive community, enhancing public understanding, and driving scientific inquiry, all of which contribute to improving the quality of life for individuals dealing with scleroderma.




This information is meant to be a general summary of Scleroderma Foundation Of Greater Chicago. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$427,266 (2022)
Expenses
$266,262 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $209,076
  • Gross Receipts: $531,184

Assets and Liabilities:

  • Total Assets: $3,349,550
  • Total Liabilities: $184,147
  • Net Assets: $3,165,403

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Organization Details

Founding Year

1983

Principal Officer

Stephanie Gresh

Main Address

125 S CLARK ST 17TH FLOOR, CHICAGO, IL, 60603

NTEE Category

Code: G40 - Disease

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