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Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd

Learn about this cause: What are the reviews? Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 362916466 ✦ Skokie, IL ✦ Designated as a 501(c)(3)

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Overview

What is Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd?

The Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd, situated in Skokie, Illinois, is a dedicated nonprofit organization with a mission to eradicate Amyotrophic Lateral Sclerosis (ALS), provide support to patients and their families, and increase public awareness about the disease. The foundation accomplishes this by granting funds to the Les Turner ALS Center at Northwestern Medicine, supporting ALS research and educational activities. In addition, they offer personalized visits, support groups, access to equipment, and various program services to people with ALS and their families. The organization extends its resources nationwide, providing extensive educational materials to ALS patients and families, and fostering public understanding of the disease through educational programs and initiatives. With a team of 22 employees, the Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd is committed to delivering comprehensive care, support, and hope to individuals and families affected by ALS in the Chicagoland area.


Official website here: www.lesturnerals.org

What are the reviews and ratings of this charity?

95% rating from Charity Navigator, earning a Four-Star out of Four Star rating. This high score reflects the organization's strong performance in various key areas, particularly in Accountability & Finance, where it achieved a score of 96. The charity demonstrates fiscal responsibility with a program expense ratio of over 81%, indicating that a significant portion of its funding goes directly to its programs.

The Leadership & Adaptability category stands out with a perfect score of 100, suggesting that the foundation is effectively led and responsive to changing needs. Additionally, the organization boasts a completely independent board, which contributes to its governance quality and overall credibility. The high scores in culture and community further illustrate the foundation's commitment to fostering a positive environment for its stakeholders.

However, the overall score in Leadership & Adaptability represents only a fraction of the total rating, indicating room for improvement in these areas. While the foundation performs well in financial accountability and community engagement, enhancing leadership and adaptability strategies could further bolster its effectiveness. Overall, the Les Turner ALS Foundation exhibits a solid commitment to transparency and fiscal responsibility while seeking avenues for growth and responsiveness.


This AI summary has been generated from information found on Charity Navigator.

Is Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd legitimate?

Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd is a legitimate nonprofit organization registered as a 501(c)(3) entity. Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $230,014
Professional Fundraising Fees: $0
Other Salaries and Wages: $885,927

For more financial information, click here


Official website here: www.lesturnerals.org

What is the mission statement of Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd?

The Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd's mission is centered around finding a cure for ALS, while simultaneously providing support for patients and their families, and increasing public awareness about the disease. The foundation aims to offer comprehensive care and assistance to individuals living with ALS and their families, enabling them to manage the condition with confidence. This is achieved through grants supporting research at the Les Turner ALS Center at Northwestern Medicine, as well as clinical care, educational, and scientific activities. Furthermore, the foundation provides personalized support visits, support groups, access to equipment, and various program services to ALS patients and their families. Additionally, extensive educational resources are made available to people with ALS and their families nationwide, with a focus on raising public awareness of the disease through educational programs and initiatives.


Official website here: www.lesturnerals.org

Who is the CEO of Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd?

Laura Freveletti is the Board Chair of Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd. The CEO's salary of Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd is $207,170 and their total compensation is $230,014.


Official website here: www.lesturnerals.org

What is the revenue of Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd?

Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd's revenue in 2022 was $2,660,033.


Official website here: www.lesturnerals.org

Who are the executives of Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd and what are their salaries?

The average compensation at Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd during 2022 was $50,725. There are 22 employees and 23 volunteers at Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd.


Here are 26 key members and their salaries (Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd's CEO's salary is $207,170 and their total compensation is $230,014):


Erin Reardon Cohn (Board Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Harvey Gaffen (Chair Emeritus)
  • Compensation: $0
  • Related: $0
  • Other: $0
Thomas F Boleky (Vice Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Joel A Schechter (Vice Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
John Coleman Iii Md (Vice Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Robin Fern (Vice Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Ken Hoffman (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Rich Ashlin (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Matthew Brown (Director (Thru Jun. 2022))
  • Compensation: $0
  • Related: $0
  • Other: $0
Tina Cascio (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Deborah Crockett (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Aalok Dave (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Sean Fallon (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Bonny Gaffen (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Frank Granata (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jodi M Harris (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Janene Jonas (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Joshua Newsome (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Mary Lou Pisone (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Diana Pisone (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Philip Schwarz (Director (Thru Nov. 2022))
  • Compensation: $0
  • Related: $0
  • Other: $0
Sarvesh Soi (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Melissa Wilder (Director (Thru Apr. 2022))
  • Compensation: $0
  • Related: $0
  • Other: $0
Andrea Pauls Backman (Chief Executive Officer)
  • Compensation: $207,170
  • Related: $0
  • Other: $22,844
Steve Schapiro (Director Of Development)
  • Compensation: $117,000
  • Related: $0
  • Other: $4,459
Lauren Webb (Dir. Of Support Services)
  • Compensation: $108,753
  • Related: $0
  • Other: $17,268


Official website here: www.lesturnerals.org

Where can I find the form 990 for Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd?

Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd's most recent form 990 was submitted in 2022 and can be accessed here.


Official website here: www.lesturnerals.org

Learn more at the official website: www.lesturnerals.org

Mission Statement of Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd

Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd is committed to finding a cure for ALS, providing support to patients and their families, and raising public awareness about the disease. Its primary mission is to offer comprehensive care and assistance to individuals living with ALS and their families in the Chicago area, enabling them to manage the condition with confidence. The foundation achieves this by making grants for ALS research, supporting the Lois Insolia ALS Clinic, and engaging in various educational and scientific activities.

Beyond research, the foundation provides direct support to ALS patients and their families. This includes personalized visits, support groups, access to equipment, and other program services. Additionally, the foundation offers an extensive range of educational resources to ALS patients and their families nationwide, aiming to increase their understanding of the disease. Furthermore, Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd works to raise public awareness of ALS through educational programs and initiatives. By combining research, support, and education, the foundation strives to make a significant impact in the fight against ALS, ultimately working towards a prevention, treatment, and cure for the disease.

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Impact




October, 2024

Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd significantly impacts the ALS community in multiple ways. By funding vital research at the Les Turner ALS Center at Northwestern Medicine, the foundation plays a crucial role in advancing the scientific understanding of ALS and efforts toward finding effective treatments and a potential cure.

Additionally, the foundation is dedicated to providing personalized support for individuals and families affected by ALS. This includes one-on-one support visits, the organization of support groups, and assistance with accessing necessary equipment. These services empower patients and their families to better navigate the challenges of the disease, fostering a sense of community and alleviating some of the burdens associated with ALS.

Furthermore, through educational resources and public awareness initiatives, the foundation increases recognition and understanding of ALS. By disseminating vital information and offering reliable support, it contributes to better outcomes for those impacted by ALS across the Chicagoland area and beyond. Overall, the foundation's comprehensive approach addresses both the immediate needs of patients and families while also driving forward the quest for a cure.




This information is meant to be a general summary of Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$2,660,033 (2022)
Expenses
$2,786,124 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $28,645
  • Gross Receipts: $3,542,330

Assets and Liabilities:

  • Total Assets: $3,764,134
  • Total Liabilities: $1,598,867
  • Net Assets: $2,165,267

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Organization Details

Founding Year

1977

Principal Officer

Laura Freveletti

Main Address

5550 WEST TOUHY AVE 302, SKOKIE, IL, 600773254

NTEE Category

Code: G50 - Disease

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