Overview
What is The Twin To Twin Transfusion Syndrome Foundation?
The Twin To Twin Transfusion Syndrome Foundation is a nonprofit organization that has been actively supporting families, medical professionals, and other caregivers since 1989. Their primary mission is to provide educational and emotional assistance to individuals dealing with Twin-to-Twin Transfusion Syndrome (TTTS), including related conditions like TAPS, SIUGR, and TRAP. They offer support during various stages, including pre-diagnosis, during treatment, and post-diagnosis. Their services extend to families experiencing bereavement, those with babies in the NICU, and those with special needs. The foundation also plays a significant role in research, aiming to save the lives of twins affected by TTTS. Additionally, they maintain an international website and various social media groups for education and support. Over the years, they have directly assisted over 26,000 families and continue to provide vital resources.
Official website here: www.tttsfoundation.org
Is The Twin To Twin Transfusion Syndrome Foundation legitimate?
The Twin To Twin Transfusion Syndrome Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. The Twin To Twin Transfusion Syndrome Foundation submitted a form 990EZ, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
For more financial information, click here
Official website here: www.tttsfoundation.org
What is the mission statement of The Twin To Twin Transfusion Syndrome Foundation?
The Twin To Twin Transfusion Syndrome Foundation's mission is centered around providing support to families, medical professionals, and other caregivers who are impacted by Twin-to-Twin Transfusion Syndrome (TTTS), including its variants such as TAPS, SIUGR, and TRAP. This support extends from the diagnosis phase through to recovery and beyond, encompassing areas like bereavement, NICU care, and managing special needs. The foundation has aided over 26,000 families directly, and in addition to its physical resources, it also offers an international website and various social media groups for educational and support purposes. These platforms have assisted an additional 29,000 families in their journey. The foundation's primary goal is to save the lives of twins affected by TTTS.
Official website here: www.tttsfoundation.org
What is the revenue of The Twin To Twin Transfusion Syndrome Foundation?
The Twin To Twin Transfusion Syndrome Foundation's revenue in 2023 was $146,006.
Official website here: www.tttsfoundation.org
Who are the executives of The Twin To Twin Transfusion Syndrome Foundation and what are their salaries?
Here are 9 key members and their salaries:
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Official website here: www.tttsfoundation.org
Where can I find the form 990EZ for The Twin To Twin Transfusion Syndrome Foundation?
The Twin To Twin Transfusion Syndrome Foundation's most recent form 990EZ was submitted in 2023 and can be accessed here.
Official website here: www.tttsfoundation.org
Learn more at the official website: www.tttsfoundation.org
Mission Statement of The Twin To Twin Transfusion Syndrome Foundation
The Twin To Twin Transfusion Syndrome Foundation is committed to offering educational and emotional support to families, medical professionals, and other caregivers affected by Twin-to-Twin Transfusion Syndrome (TTTS), including related conditions such as TAPS, SIUGR, and TRAP. Established in 1989, this organization has directly assisted over 26,000 families dealing with this condition. Their mission extends beyond diagnosis, providing aid to families with NICU stays, special needs, and bereavement. The Foundation also maintains an international website and various social media groups, offering a platform for collective learning and support. Through these channels, they have benefited over 29,000 families, providing a vital network for individuals navigating the challenges associated with TTTS.
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Impact
October, 2024
The Twin To Twin Transfusion Syndrome Foundation has made a significant impact by providing vital educational and emotional support to families, medical professionals, and caregivers navigating the challenges posed by Twin to Twin Transfusion Syndrome (TTTS), as well as related conditions like TAPS, SIUGR, and TRAP. Since its inception in 1989, the foundation has directly supported over 29,000 families, offering crucial resources before, during, and after diagnosis.
By fostering awareness through an extensive international website and various social media groups, the foundation serves as a lifeline for families facing the complexities associated with these conditions. Their comprehensive approach includes supporting families in areas such as bereavement, special needs, and NICU challenges, effectively creating a community that shares invaluable insights and experiences.
Moreover, the foundation contributes to research efforts and initiatives aimed at improving outcomes for affected twins, ultimately working to save lives. The extensive reach and ongoing commitment of the foundation to educational outreach and emotional support stand as a crucial resource for those dealing with TTTS and its related challenges.
This information is meant to be a general summary of The Twin To Twin Transfusion Syndrome Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2023.
- Gross Receipts: $146,006
Assets and Liabilities:
- Total Assets: $209,611
- Total Liabilities: $0
- Net Assets: $209,611
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Organization Details
Phone
(800) 815-9211Principal Officer
Alice Slaman
Main Address
411 LONGBEACH PARKWAY, BAY VILLAGE, OH, 441401327
Website
www.tttsfoundation.orgNTEE Category
Code: Z99Z - Unknown
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