Overview
What is National Spasmodic Torticollis?
National Spasmodic Torticollis, abbreviated as NSTA, is a nonprofit association headquartered in Fountain Valley, California. Their primary goal is to support individuals and families affected by spasmodic torticollis, providing them with essential resources and emotional support. Through their quarterly magazine, medical professionals and individuals with the condition share up-to-date information, fostering better communication with healthcare providers. The NSTA also works towards increasing awareness and education about spasmodic torticollis, and advances research to discover more treatments and, ultimately, a cure. With a staff of two dedicated individuals, the association plays a crucial role in the lives of those affected by this condition.
Official website here: www.torticollis.org
Is National Spasmodic Torticollis legitimate?
National Spasmodic Torticollis is a legitimate nonprofit organization registered as a 501(c)(3) entity. National Spasmodic Torticollis submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $122,359
For more financial information, click here
Official website here: www.torticollis.org
What is the mission statement of National Spasmodic Torticollis?
The National Spasmodic Torticollis Association (NSTA) is dedicated to supporting the well-being of individuals and families affected by spasmodic torticollis. Their mission encompasses promoting awareness and education about the condition, as well as advancing research to discover more effective treatments and ultimately, a cure. The NSTA's magazine, ST Quarterly, serves as a valuable resource for those living with spasmodic torticollis, providing them with up-to-date information and acting as a source of emotional support.
Official website here: www.torticollis.org
Who is the CEO of National Spasmodic Torticollis?
Mark Ledoux is the Chairman of National Spasmodic Torticollis.
Official website here: www.torticollis.org
What is the revenue of National Spasmodic Torticollis?
National Spasmodic Torticollis's revenue in 2022 was $411,670.
Official website here: www.torticollis.org
Who are the executives of National Spasmodic Torticollis and what are their salaries?
The average compensation at National Spasmodic Torticollis during 2022 was $61,180. There are 2 employees at National Spasmodic Torticollis.
Here are 5 key members and their salaries:
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Official website here: www.torticollis.org
Where can I find the form 990 for National Spasmodic Torticollis?
National Spasmodic Torticollis's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.torticollis.org
Learn more at the official website: www.torticollis.org
Mission Statement of National Spasmodic Torticollis
The National Spasmodic Torticollis Association (NSTA) is committed to supporting individuals and families affected by spasmodic torticollis, raising awareness, and promoting education. Their mission extends to advancing research with the ultimate goal of discovering more effective treatments and ultimately, a cure for this condition. Through their quarterly magazine, the NSTA provides a continuous stream of up-to-date information, serving as a valuable resource for patients and medical professionals alike. This platform not only offers medical insights but also serves as an emotional support network, reassuring patients that they are not alone in their struggles. The NSTA's efforts aim to improve the lives of those affected by spasmodic torticollis, providing them with the tools and resources necessary to navigate their journey towards wellness.
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Impact
October, 2024
National Spasmodic Torticollis (NST) plays a crucial role in addressing the challenges faced by individuals living with this condition. Spasmodic torticollis, or cervical dystonia, significantly impacts daily life, affecting posture, movement, and overall quality of life. The organization works diligently to support those affected, fostering a sense of community and providing resources that promote awareness and education.
Through initiatives like the ST Quarterly magazine, NST equips individuals with essential information and medical insights, empowering them to engage effectively with healthcare providers. This resource serves not only as a conduit for knowledge but also as a platform for emotional support, connecting individuals who share similar experiences. The shared stories and advice within the magazine help to reduce feelings of isolation and increase understanding among patients and their families.
Moreover, NST's commitment to advancing research is pivotal in finding more effective treatments and ultimately a cure for spasmodic torticollis. By raising awareness and promoting education about the condition, the organization contributes to a broader understanding of its implications, which is vital for improving diagnosis and treatment options. The support provided by NST has a significant positive impact on the well-being of affected individuals, making a real difference in their lives.
This information is meant to be a general summary of National Spasmodic Torticollis. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $22
- Gross Receipts: $411,670
Assets and Liabilities:
- Total Assets: $146,673
- Total Liabilities: $0
- Net Assets: $146,673
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Organization Details
Founding Year
2012
Principal Officer
Mark Ledoux
Main Address
17151 Newhope St Ste 208, Fountain Valley, CA, 92708
Website
www.torticollis.orgNTEE Category
Code: G50 - Disease
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