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Nbia Disorders Association

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 330712327 ✦ El cajon, CA ✦ Designated as a 501(c)(3)

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Overview

What is Nbia Disorders Association?

The Nbia Disorders Association, based in El Cajon, California, is a dedicated nonprofit organization that seeks to find a cure for NBIA Disorders. Their primary focus is on raising funds to support scientific and medical research, investing $120,065 in grants and projects this year alone. In addition to their research efforts, they award annual research grants and collaborate with international researchers at scientific symposiums, such as the recent Eighth International Scientific Symposium held in Lausanne, Switzerland. Moreover, the organization extends its support to families affected by NBIA Disorders and works to educate the public about these conditions. With a small team of two dedicated individuals, the Nbia Disorders Association is committed to accelerating research and improving the lives of those affected by NBIA Disorders.


Official website here: www.nbiadisorders.org

Is Nbia Disorders Association legitimate?

Nbia Disorders Association is a legitimate nonprofit organization registered as a 501(c)(3) entity. Nbia Disorders Association submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $57,200
Professional Fundraising Fees: $0
Other Salaries and Wages: $22,866

For more financial information, click here


Official website here: www.nbiadisorders.org

What is the mission statement of Nbia Disorders Association?

The Nbia Disorders Association is committed to finding a cure for NBIA disorders. They accomplish this by providing support to families, educating the public, and collaborating with researchers from around the world to accelerate research. The association raises funds for grants and clinical projects, investing $120,065 in research this year. This year, they awarded three NBIA research grants totaling $116,989. Additionally, the association organizes International Scientific Symposia every two to three years, providing a platform for researchers to share information and potential collaboration opportunities. The Eighth International Scientific Symposium was held in Lausanne, Switzerland, in 2022, with the Ninth Symposium scheduled for 2024.


Official website here: www.nbiadisorders.org

Who is the CEO of Nbia Disorders Association?

Patricia V Wood is the President of Nbia Disorders Association.


Official website here: www.nbiadisorders.org

What is the revenue of Nbia Disorders Association?

Nbia Disorders Association's revenue in 2022 was $276,389.


Official website here: www.nbiadisorders.org

Who are the executives of Nbia Disorders Association and what are their salaries?

The average compensation at Nbia Disorders Association during 2022 was $40,033. There are 2 employees and 25 volunteers at Nbia Disorders Association.


Here are 12 key members and their salaries:


Patricia V Wood (President)
  • Compensation: $53,733
  • Related: $0
  • Other: $0
Carolyn Banik (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jeff Gartman (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jennifer Sanchez (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Vanessa Smith (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jennifer Wildvank (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
James Bourgeois (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Sara Doerr (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Amber Denton (Vice President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Matthew Ritzman (Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Mary Tapke (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Richard Tifone (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0


Official website here: www.nbiadisorders.org

Where can I find the form 990 for Nbia Disorders Association?

Nbia Disorders Association's most recent form 990 was submitted in 2022 and can be accessed here.


Official website here: www.nbiadisorders.org

Learn more at the official website: www.nbiadisorders.org

Mission Statement of Nbia Disorders Association

The NBIA Disorders Association, in its mission to eradicate NBIA disorders, offers support to affected families, educates the public, and stimulates research collaborations on a global scale. By providing assistance to families, the organization offers a sanctuary during challenging times. Through public education, it raises awareness about NBIA disorders, fostering understanding and empathy within communities. In the realm of research, the association funds grants and clinical projects, contributing to the pursuit of a cure. This year, the association allocated $120,065 towards research, awarding three NBIA research grants worth $116,989. The association also partakes in organizing International Scientific Symposia every two to three years. These symposia serve as platforms for researchers to exchange knowledge and foster potential collaborations. The Eighth International Scientific Symposium took place in Lausanne, Switzerland, in October 2022, with the Ninth Symposium scheduled for 2024 in a yet-to-be-determined location.

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Impact




October, 2024

The NBIA Disorders Association plays a crucial role in advancing the understanding and treatment of Neurodegeneration with Brain Iron Accumulation (NBIA) disorders. By raising significant funds—$120,065 in the latest year for research—the Association directly supports scientific and medical research aimed at finding a cure. This funding has enabled the awarding of three research grants totaling $116,989, helping to drive innovation and exploration in the field.

In addition to financial support, the Association actively educates the public about NBIA disorders, providing essential information and resources to affected families. It also fosters collaboration among researchers globally through initiatives like the International Scientific Symposia. These gatherings allow researchers to share knowledge, discuss common challenges, and establish partnerships that can lead to groundbreaking advancements.

The impact of the Association extends beyond research funding. By uniting families, researchers, and the broader community, it enhances awareness and understanding of NBIA disorders, paving the way for potential breakthroughs in treatment and, ultimately, a cure. The ongoing efforts demonstrate a commitment to both immediate support for families and long-term advancement of medical research in this specialized area.




This information is meant to be a general summary of Nbia Disorders Association. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$276,389 (2022)
Expenses
$267,629 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $310
  • Gross Receipts: $276,389

Assets and Liabilities:

  • Total Assets: $846,663
  • Total Liabilities: $188,117
  • Net Assets: $658,546

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Organization Details

Founding Year

1996

Principal Officer

Patricia V Wood

Main Address

2082 MONACO COURT, EL CAJON, CA, 92019

NTEE Category

Code: H030 - Medical research

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