Overview
What is Foundation For Prader-Willi Research Inc?
The Foundation For Prader-Willi Research Inc, situated in Covina, California, is a dedicated nonprofit organization committed to advancing research on Prader-Willi Syndrome (PWS). With a team of 12 individuals, they implement translational research programs, manage a world-class grants program, and develop PWS research tools. Their mission, under the guidance of a scientific advisory board, is to select and fund research projects that are both scientifically sound and highly relevant to individuals with PWS and their families. The foundation supports research aimed at enhancing the understanding and treatment of PWS, ultimately striving to address the challenges associated with this syndrome and improve the health and well-being of those affected.
Official website here: www.fpwr.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 100% (Four-Star out of Four Star rating)
The Foundation For Prader-Willi Research Inc has received a perfect score of 100% from Charity Navigator, indicating exceptional accountability and financial management. This rating reflects the organization's commitment to transparency, with all board members being independent and a well-structured oversight committee ensuring proper audit procedures are followed.
Strengths highlighted in the evaluation include high program expense ratios, indicating that a significant portion of funds is directed towards its mission-related activities. The organization also demonstrates strong fundraising efficiency, with minimal costs associated with raising funds, allowing more resources to be allocated to research and support initiatives for individuals with Prader-Willi syndrome.
Limitations noted were absent in the data, as the foundation appears to operate without any material diversions of assets or significant financial liabilities, showcasing a robust financial health that supports its ongoing mission effectively. Overall, the Foundation For Prader-Willi Research Inc exemplifies a model of excellence in nonprofit governance and financial stewardship.
This AI summary has been generated from information found on Charity Navigator.
Is Foundation For Prader-Willi Research Inc legitimate?
Foundation For Prader-Willi Research Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Foundation For Prader-Willi Research Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $73,478
Professional Fundraising Fees: $0
Other Salaries and Wages: $650,581
For more financial information, click here
Official website here: www.fpwr.org
What is the mission statement of Foundation For Prader-Willi Research Inc?
The Foundation For Prader-Willi Research Inc's mission is centered around eliminating the challenges associated with Prader-Willi Syndrome. They achieve this goal by advancing research and therapeutic development. The organization implements translational research programs, manages a world-class grants program, and develops Prader-Willi Syndrome (PWS) research tools. Under the guidance of their Scientific Advisory Board, they select research projects based on a collaborative input from researchers and parents, focusing on projects that are both scientifically meritorious and highly relevant for individuals with PWS and their families. This approach aims to develop new treatments for PWS and improve the health and well-being of those affected by the syndrome.
Official website here: www.fpwr.org
Who is the CEO of Foundation For Prader-Willi Research Inc?
Susan Hedstrom is the Eff. 3/22, Treasurer Thru 3/22 of Foundation For Prader-Willi Research Inc.
Official website here: www.fpwr.org
What is the revenue of Foundation For Prader-Willi Research Inc?
Foundation For Prader-Willi Research Inc's revenue in 2022 was $5,083,937.
Official website here: www.fpwr.org
Who are the executives of Foundation For Prader-Willi Research Inc and what are their salaries?
The average compensation at Foundation For Prader-Willi Research Inc during 2022 was $60,338. There are 12 employees and 50 volunteers at Foundation For Prader-Willi Research Inc.
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Official website here: www.fpwr.org
Where can I find the form 990 for Foundation For Prader-Willi Research Inc?
Foundation For Prader-Willi Research Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.fpwr.org
Learn more at the official website: www.fpwr.org
Mission Statement of Foundation For Prader-Willi Research Inc
The Foundation for Prader-Willi Research Inc is dedicated to eliminating the challenges associated with Prader-Willi Syndrome (PWS) by advancing research and therapeutic development. Through the implementation of translational research programs, the management of a world-class grants program, and the development of PWS research tools, this nonprofit organization strives to advance research, aiming to develop new treatments for PWS and improve the health and well-being of those affected by the syndrome. Guided by their Scientific Advisory Board, FPWR selects research projects based on the collaborative input of researchers and parents, choosing projects that are both scientifically meritorious and highly relevant for individuals with PWS and their families, ensuring that the organization's efforts are directed towards making a significant impact on the lives of those affected by PWS.
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Impact
October, 2024
The Foundation For Prader-Willi Research Inc significantly impacts the understanding and treatment of Prader-Willi Syndrome (PWS) through targeted research initiatives. By implementing translational research programs and managing a comprehensive grants program, the Foundation actively supports the development of innovative treatments aimed at improving the health and well-being of individuals affected by PWS.
Through its scientific advisory board, the Foundation evaluates and selects research projects that align with the needs and priorities of both researchers and families dealing with PWS. This collaborative approach ensures that the funded projects are not only scientifically robust but also relevant to the daily challenges faced by individuals with PWS. The Foundation is committed to advancing research and therapeutic development, driving advancements that seek to eliminate the challenges associated with this complex condition and enhance the quality of life for those it affects.
This information is meant to be a general summary of Foundation For Prader-Willi Research Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $83,302
- Program Service Revenue: $231,217
- Gross Receipts: $5,326,703
Assets and Liabilities:
- Total Assets: $8,344,580
- Total Liabilities: $3,233,878
- Net Assets: $5,110,702
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
CONFERENCE REVENUE
Revenue
$231,217
Organization Details
Founding Year
2001
Phone
(888) 322-5487Principal Officer
Susan Hedstrom
Main Address
440 N BARRANCA AVE 3620, COVINA, CA, 91723
Website
www.fpwr.orgNTEE Category
Code: G80 - Disease
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