Overview
What is Kleine-Levin Syndrome Foundation In?
Kleine-Levin Syndrome Foundation In is a nonprofit organization committed to conducting research and providing outreach for individuals affected by Kleine-Levin Syndrome. Their mission encompasses both educational initiatives and direct support for patients and their families. Through their efforts, they aim to increase understanding of the condition and offer resources to those impacted by Kleine-Levin Syndrome, collectively known as the 'KLS community.'
Official website here: www.klsfoundation.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 76%, Three-Star out of Four Star rating
The Kleine-Levin Syndrome Foundation has earned a 76% rating from Charity Navigator, reflecting a solid performance in accountability and finance. The foundation scores particularly well in governance with a fully independent board, achieving maximum points for both board size and member independence. The absence of any material diversion of assets also contributes positively to its financial standing.
However, there are notable areas for improvement. The foundation is missing critical policies such as a conflict of interest policy, a whistleblower policy, and guidelines for document retention and destruction, which resulted in a score of zero in these categories. This indicates a lack of comprehensive governance practices that could enhance transparency and trust.
Despite these limitations, the foundation demonstrates strong financial health, with a program expense ratio of 100%, indicating that all funds are directed toward its mission. Overall, while the organization shows promise in certain areas, addressing the missing policies could strengthen its governance framework significantly.
This AI summary has been generated from information found on Charity Navigator.
Is Kleine-Levin Syndrome Foundation In legitimate?
Kleine-Levin Syndrome Foundation In is a legitimate nonprofit organization registered as a 501(c)(3) entity. Kleine-Levin Syndrome Foundation In submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
For more financial information, click here
Official website here: www.klsfoundation.org
What is the mission statement of Kleine-Levin Syndrome Foundation In?
The Kleine-Levin Syndrome Foundation's mission is centered around research, education, and outreach. This non-profit organization is dedicated to advancing understanding and support for individuals affected by Kleine-Levin Syndrome (KLS), providing resources and knowledge to both patients and their families. They actively engage in research efforts to deepen insights into the condition, aiming to discover more about its causes and potential treatments. Additionally, the foundation is committed to spreading awareness and education about KLS, helping to increase acceptance and understanding within communities. Their outreach initiatives also extend to the KLS community, offering support and resources to those impacted by the syndrome.
Official website here: www.klsfoundation.org
What is the revenue of Kleine-Levin Syndrome Foundation In?
Kleine-Levin Syndrome Foundation In's revenue in 2023 was $62,357.
Official website here: www.klsfoundation.org
Who are the executives of Kleine-Levin Syndrome Foundation In and what are their salaries?
There 10 volunteers at Kleine-Levin Syndrome Foundation In.
Here are 3 key members and their salaries:
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
Official website here: www.klsfoundation.org
Where can I find the form 990 for Kleine-Levin Syndrome Foundation In?
Kleine-Levin Syndrome Foundation In's most recent form 990 was submitted in 2023 and can be accessed here.
Official website here: www.klsfoundation.org
Learn more at the official website: www.klsfoundation.org
Mission Statement of Kleine-Levin Syndrome Foundation In
The Kleine-Levin Syndrome Foundation is dedicated to conducting research, providing education, and offering support to individuals and families affected by Kleine-Levin Syndrome (KLS). Their mission is threefold: research, education, and outreach for KLS patients and their families. The organization aims to advance the understanding of this condition through rigorous research, disseminate knowledge about KLS through educational programs, and offer resources and assistance to those impacted by KLS. By engaging in these activities, the Kleine-Levin Syndrome Foundation strives to improve the lives of those living with this syndrome, fostering a sense of community and support among patients and their families.
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Impact
October, 2024
The Kleine-Levin Syndrome Foundation In plays a crucial role in advancing the understanding and treatment of Kleine-Levin Syndrome (KLS) through dedicated research efforts and educational initiatives. By focusing on the unique challenges faced by those affected by KLS, the foundation facilitates vital outreach programs that connect patients and families with resources, support, and information.
Through its commitment to research, the foundation fosters collaboration among scientists and medical professionals to explore the complexities of KLS, ultimately aiming to uncover effective treatments and improve patient outcomes. Educational efforts extend to raising awareness about the condition, ensuring that both the public and healthcare providers recognize its impacts and nuances.
Based in San Jose, CA, the foundation serves as a vital resource for the KLS community, promoting information sharing and connection among individuals affected by this rare syndrome. Its impact extends beyond immediate support, contributing to a broader understanding of KLS and advocating for the needs of patients and their families.
This information is meant to be a general summary of Kleine-Levin Syndrome Foundation In. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2023.
- Investment Income: $192
- Gross Receipts: $62,357
Assets and Liabilities:
- Total Assets: $428,934
- Total Liabilities: $0
- Net Assets: $428,934
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Organization Details
Founding Year
1999
Principal Officer
Richard B Maier
Website
www.klsfoundation.orgNTEE Category
Code: H80 - Medical research
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