Overview
What is The Parent Project For Muscular Dystrophy Research Inc?
The Parent Project For Muscular Dystrophy Research Inc, based in Washington D.C., is a dedicated nonprofit organization that focuses on combating Duchenne Muscular Dystrophy. Their primary mission is to accelerate research, advocate for policy changes, promote optimal medical care, and ensure access to approved therapies for affected individuals and their families. The organization identifies and funds promising research in various therapeutic strategies, stimulates new research, facilitates industry collaborations, and supports early-stage biopharmaceutical companies. A notable initiative is the Duchenne Registry, which collects patient-reported data to bridge the gap between clinicians, researchers, and the patient community, contributing to therapeutic advancements. Additionally, the Care Program aims to improve health outcomes for patients by providing access to expert healthcare providers and approved treatments. The Parent Project for Muscular Dystrophy Research Inc strives to ensure that individuals with Duchenne live longer, stronger lives.
Official website here: www.parentprojectmd.org
What are the reviews and ratings of this charity?
The Parent Project for Muscular Dystrophy Research Inc has achieved an impressive Four-Star out of Four Star rating from Charity Navigator, reflecting a 100% score for Accountability & Finance. This high rating signifies the organization’s strong commitment to financial transparency and sound management practices. The nonprofit has demonstrated outstanding financial efficiency with a program expense ratio of 84.50%, indicating that the majority of its funds are directed towards fulfilling its mission.
Strengths of the organization include a fully independent board comprised of 16 members, along with excellent oversight practices, as noted by perfect scores in areas like financial statement audit and conflict of interest policies. These attributes contribute to a robust infrastructure that supports its operational sustainability and trustworthiness. Moreover, a negligible liabilities to assets ratio further showcases the organization's fiscal health.
Unfortunately, user reviews from GreatNonprofits are currently unavailable, which limits insights into the community's sentiment towards the organization. However, with its exemplary rating, The Parent Project for Muscular Dystrophy Research Inc appears to maintain a strong reputation in terms of financial management, reflecting positively on its potential impact in the field of muscular dystrophy research.
This AI summary has been generated from information found on Charity Navigator.
What do the Facebook reviews say about The Parent Project For Muscular Dystrophy Research Inc?
94% of 60 reviewers on Facebook recommend The Parent Project for Muscular Dystrophy Research Inc. Here is a summary of their reviews:
Many individuals express encouragement and support from the nonprofit's initiatives, highlighting how the organization motivates them to take on activities, such as participating in races, particularly in African countries. This reflects a strong sense of community and empowerment among supporters, as they feel inspired to contribute to the cause and raise awareness.
Overall, the sentiment towards this organization is highly positive, with supporters appreciating its mission and the impact it has on individuals affected by muscular dystrophy. The nonprofit appears to successfully drive engagement and foster a proactive attitude among its community members.
This AI summary has been generated from reviews found on Facebook.
Is The Parent Project For Muscular Dystrophy Research Inc legitimate?
The Parent Project For Muscular Dystrophy Research Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. The Parent Project For Muscular Dystrophy Research Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $296,765
Professional Fundraising Fees: $0
Other Salaries and Wages: $2,434,480
For more financial information, click here
Official website here: www.parentprojectmd.org
What is the mission statement of The Parent Project For Muscular Dystrophy Research Inc?
The Parent Project For Muscular Dystrophy Research Inc, often referred to as PPMD, is dedicated to eradicating Duchenne Muscular Dystrophy. They accomplish this through various means, including funding promising research, advocating for policies, promoting optimal medical care, and educating the public. PPMD's research program actively supports and funds Duchenne research across various therapeutic strategies. They stimulate new research, facilitate industry interactions, and support data modeling consortia to accelerate drug development timelines. PPMD also operates the Duchenne Registry, a patient-reported registry that bridges the gap between clinicians, researchers, and the patient community, thereby improving medical care and fostering therapeutic advancements. Additionally, PPMD's Care Program aims to enhance the quality of life for individuals with Duchenne, providing access to expert healthcare providers, sub-specialists, and approved treatments. They identify gaps in care throughout the lifespan and collaborate with healthcare professionals worldwide to improve health outcomes for all Duchenne patients.
Official website here: www.parentprojectmd.org
Who is the CEO of The Parent Project For Muscular Dystrophy Research Inc?
Patricia A Furlong is the Board Chairman of The Parent Project For Muscular Dystrophy Research Inc. The CEO's salary of The Parent Project For Muscular Dystrophy Research Inc is $292,250 and their total compensation is $304,898.
Official website here: www.parentprojectmd.org
What is the revenue of The Parent Project For Muscular Dystrophy Research Inc?
The Parent Project For Muscular Dystrophy Research Inc's revenue in 2022 was $10,753,014.
Official website here: www.parentprojectmd.org
Who are the executives of The Parent Project For Muscular Dystrophy Research Inc and what are their salaries?
The average compensation at The Parent Project For Muscular Dystrophy Research Inc during 2022 was $109,250. There are 25 employees and 500 volunteers at The Parent Project For Muscular Dystrophy Research Inc.
Here are 17 key members and their salaries (The Parent Project For Muscular Dystrophy Research Inc's CEO's salary is $292,250 and their total compensation is $304,898):
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- Compensation: $292,250
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- Compensation: $151,910
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- Other: $7,088
Official website here: www.parentprojectmd.org
Where can I find the form 990 for The Parent Project For Muscular Dystrophy Research Inc?
The Parent Project For Muscular Dystrophy Research Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.parentprojectmd.org
Learn more at the official website: www.parentprojectmd.org
Mission Statement of The Parent Project For Muscular Dystrophy Research Inc
The Parent Project Muscular Dystrophy (PPMD) is an ambitious organization dedicated to ending Duchenne Muscular Dystrophy. They achieve this mission through a multi-faceted approach, encompassing research, advocacy, education, and promoting optimal medical care.
In terms of research, PPMD actively seeks out and funds the most promising Duchenne research across various therapeutic strategies. They strive to foster a thriving therapeutic pipeline by stimulating new research and facilitating industry collaborations. Additionally, PPMD supports early-stage biopharmaceutical companies to catalyze the development of novel therapies for Duchenne and Becker Muscular Dystrophy.
The organization's advocacy efforts are equally significant. PPMD raises its voice to impact policy and demand optimal care for every family affected by Duchenne. They strive to ensure access to approved therapies for all, and their advocacy has resulted in numerous legislative victories aimed at improving Duchenne and maternal health nationwide.
PPMD's care program is another critical component of their mission. They aim to help individuals living with Duchenne live longer, stronger lives by providing access to expert healthcare providers, a comprehensive team of sub-specialists, and approved treatments. PPMD identifies gaps in care throughout the lifespan of Duchenne patients and collaborates with healthcare professionals globally to improve health outcomes for all. Their Certified Duchenne Care Center Program (CDCC) ensures that centers comply with established standards of care and services for Duchenne patients.
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Impact
October, 2024
The Parent Project For Muscular Dystrophy Research Inc. has made a significant impact in the fight against Duchenne Muscular Dystrophy (DMD) through its extensive research, advocacy, education, and healthcare initiatives. The organization aggressively funds promising near- and long-term research initiatives across various therapeutic strategies, fostering innovation and collaboration within the scientific community. By facilitating industry interactions and supporting data modeling consortia, PPMD enhances the clinical trial landscape, driving forward drug development timelines.
Additionally, PPMD has established the Duchenne Registry, a comprehensive patient-reported database that bridges the gap between patients, clinicians, and researchers. This initiative has empowered over 5,000 families globally to participate as citizen scientists, contributing to the largest collection of data on DMD. The resulting insights not only accelerate therapeutic advancements but also shape better medical care.
On the care front, PPMD’s certified Duchenne Care Center Program ensures that healthcare facilities adhere to established care standards, ultimately improving health outcomes for individuals living with DMD. Through collaborations with healthcare professionals worldwide, the organization identifies and addresses gaps in care, ensuring that those affected by Duchenne can live longer, healthier lives. Overall, PPMD’s multifaceted approach is vital in the relentless pursuit of ending Duchenne Muscular Dystrophy.
This information is meant to be a general summary of The Parent Project For Muscular Dystrophy Research Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $41,696
- Program Service Revenue: $798,475
- Gross Receipts: $11,975,273
Assets and Liabilities:
- Total Assets: $8,648,654
- Total Liabilities: $768,416
- Net Assets: $7,880,238
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
CONFERENCE INCOME
Revenue
$483,304
FEES FOR SERVICE
Revenue
$315,171
Organization Details
Founding Year
1997
Phone
(201) 250-8440Principal Officer
Patricia A Furlong
Main Address
1012 14TH STREET NW 500, WASHINGTON, DC, 20005
Website
www.parentprojectmd.orgNTEE Category
Code: P20Z - Human services
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