Overview
What is Adnp Kids Research Foundation?
The Adnp Kids Research Foundation, located in Brush Prairie, Washington, is a dedicated nonprofit organization focused on supporting individuals affected by ADNP Syndrome, a rare disease. Their primary activities include patient advocacy, education, and scientific research. They are committed to funding treatment studies and drug trials with the ultimate goal of developing a cure for ADNP Syndrome. The foundation is 100% volunteer-driven, channeling resources towards research aimed at the development of potential treatments. Their current projects include preparing for a Phase 2b study and conducting a joint neurodevelopmental rare disease study.
Official website here: www.adnpfoundation.org
Is Adnp Kids Research Foundation legitimate?
Adnp Kids Research Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Adnp Kids Research Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
For more financial information, click here
Official website here: www.adnpfoundation.org
What is the mission statement of Adnp Kids Research Foundation?
The Adnp Kids Research Foundation is dedicated to supporting individuals affected by ADNP Syndrome, a rare disease. Their mission encompasses patient and disease advocacy, education, and scientific research. They aim to fund treatment studies and drug trials for the development of potential treatments for ADNP Syndrome. The organization is driven by a volunteer workforce, committed to advancing research for a cure. Their activities include financing program payments for research, such as preparations for Phase 2b studies and collaborative studies on neurodevelopmental rare diseases.
Official website here: www.adnpfoundation.org
Who is the CEO of Adnp Kids Research Foundation?
Sandra Sermone is the President of Adnp Kids Research Foundation.
Official website here: www.adnpfoundation.org
What is the revenue of Adnp Kids Research Foundation?
Adnp Kids Research Foundation's revenue in 2023 was $158,160.
Official website here: www.adnpfoundation.org
Who are the executives of Adnp Kids Research Foundation and what are their salaries?
There 10 volunteers at Adnp Kids Research Foundation.
Here are 4 key members and their salaries:
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- Other: $0
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Official website here: www.adnpfoundation.org
Where can I find the form 990 for Adnp Kids Research Foundation?
Adnp Kids Research Foundation's most recent form 990 was submitted in 2023 and can be accessed here.
Official website here: www.adnpfoundation.org
Learn more at the official website: www.adnpfoundation.org
Mission Statement of Adnp Kids Research Foundation
Adnp Kids Research Foundation, a 100% volunteer-driven organization, is dedicated to supporting individuals affected by ADNP Syndrome, a rare disease. Its mission encompasses patient and disease advocacy, education, scientific research, and the development of potential treatments and drugs. The foundation is committed to funding treatment studies and drug trials with the ultimate goal of finding a cure for ADNP Syndrome. In pursuit of this objective, Adnp Kids Research Foundation invests in various research programs, such as preparations for Phase 2b studies, collaborative neurodevelopmental rare disease studies, and the development of cell lines. The organization's work is centered on improving the lives of those affected by ADNP Syndrome by advancing scientific understanding and supporting the development of potential treatments.
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Impact
October, 2024
The Adnp Kids Research Foundation is dedicated to transforming the landscape of ADNP Syndrome through a robust focus on patient support, scientific research, and drug development. By advocating for patients and their families, the foundation plays a crucial role in raising awareness about this rare disease, ensuring that affected individuals receive the necessary information and resources.
Their commitment to education extends to both families and the medical community, fostering a deeper understanding of ADNP Syndrome. With a focus on rigorous scientific inquiry, the foundation funds critical research initiatives aimed at developing treatments and exploring potential cures. Notably, their efforts include financial support for the preparation of a Phase 2b clinical study and collaborations on neurodevelopmental research, underscoring their dedication to advancing medical knowledge specific to ADNP Syndrome.
In Brush Prairie, WA, the foundation operates entirely through volunteer support, maximizing the impact of every dollar raised for research and treatment studies. By prioritizing the development of ADNP-specific cell lines and other innovative research avenues, the organization positions itself at the forefront of scientific exploration in this area. Their impactful work not only advocates for patients but also lays the groundwork for promising advancements in the understanding and treatment of ADNP Syndrome.
This information is meant to be a general summary of Adnp Kids Research Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2023.
- Gross Receipts: $158,160
Assets and Liabilities:
- Total Assets: $438,008
- Total Liabilities: $0
- Net Assets: $438,008
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Organization Details
Founding Year
2016
Phone
(360) 831-3069Principal Officer
Sandra Sermone
Main Address
24500 NE 132ND CIR, BRUSH PRAIRIE, WA, 986067220
Website
www.adnpfoundation.orgNTEE Category
Code: H11 - Medical research
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