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Rothmund-Thomson Syndrome Foundation

Learn about this cause: What are the reviews? Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 300585106 ✦ Chantilly, VA ✦ Designated as a 501(c)(3)

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Overview

What is Rothmund-Thomson Syndrome Foundation?

The Rothmund-Thomson Syndrome Foundation is a nonprofit organization that is committed to fostering knowledge and support for individuals affected by Rothmund-Thomson Syndrome. Although the provided information is limited, it can be inferred that their mission likely involves raising awareness, funding research, and providing resources to help manage this rare genetic disorder. While specific details about their activities or reach are not available, it's safe to assume that they strive to advance the understanding and treatment options for those living with Rothmund-Thomson Syndrome, benefiting families and communities worldwide.


Official website here: www.rtsplace.org

What do the Facebook reviews say about Rothmund-Thomson Syndrome Foundation?

Though the Rothmund-Thomson Syndrome Foundation has not yet established a strong rating presence, early feedback offers a glimpse into the community it fosters. One review highlights a warm and supportive environment among families involved with the foundation, noting a welcoming attitude towards newcomers.

The sentiment conveyed by users is one of togetherness and camaraderie, suggesting that the organization successfully cultivates a network where families can feel accepted and understood. This sense of community is likely to encourage positive experiences for members, particularly those just beginning their journey with Rothmund-Thomson syndrome.

Overall, it appears that the foundation is on the right track in creating a nurturing space for individuals affected by this rare condition, emphasizing the importance of family support and the value of shared experiences.


This AI summary has been generated from reviews found on Facebook.

Is Rothmund-Thomson Syndrome Foundation legitimate?

Rothmund-Thomson Syndrome Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Rothmund-Thomson Syndrome Foundation submitted a form 990EZ, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Official website here: www.rtsplace.org

What is the mission statement of Rothmund-Thomson Syndrome Foundation?

The Rothmund-Thomson Syndrome Foundation, in its mission, strives to advance understanding, support, and research related to Rothmund-Thomson Syndrome. The organization aims to increase awareness and understanding of this rare genetic disorder, its impacts, and potential treatments. They work towards improving the quality of life for individuals and families affected by Rothmund-Thomson Syndrome through educational resources, advocacy, and support services. Furthermore, the foundation encourages and funds research to uncover the causes of the syndrome and explore potential therapies. Their activities are geared towards fostering a supportive community and advocating for the needs of those affected by Rothmund-Thomson Syndrome.


Official website here: www.rtsplace.org

Who is the CEO of Rothmund-Thomson Syndrome Foundation?

Shelley Sanders is the Treasurer of Rothmund-Thomson Syndrome Foundation.


Official website here: www.rtsplace.org

What is the revenue of Rothmund-Thomson Syndrome Foundation?

Rothmund-Thomson Syndrome Foundation's revenue in 2023 was $60,413.


Official website here: www.rtsplace.org

Who are the executives of Rothmund-Thomson Syndrome Foundation and what are their salaries?


Here are 10 key members and their salaries:


Laurie Sperou (Vice-Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Shelley Sanders (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Sylvie Plante (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Sean Mcmurray (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Sheila Townsend (Directer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Staci Hanson (Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Kara Hanson (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Bekkah Blankers (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Tamara Madsen (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Austin Kimmel (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0


Official website here: www.rtsplace.org

Where can I find the form 990EZ for Rothmund-Thomson Syndrome Foundation?

Rothmund-Thomson Syndrome Foundation's most recent form 990EZ was submitted in 2023 and can be accessed here.


Official website here: www.rtsplace.org

Learn more at the official website: www.rtsplace.org

Mission Statement of Rothmund-Thomson Syndrome Foundation

The Rothmund-Thomson Syndrome Foundation is dedicated to a significant mission, aimed at advancing the understanding and addressing the challenges associated with Rothmund-Thomson Syndrome. Although the specifics of its mission are not provided in the data, it can be inferred that the foundation likely supports research, provides education, and advocates for individuals and families affected by this rare genetic disorder. By fostering scientific inquiries, promoting awareness, and advocating for policies and resources, the Rothmund-Thomson Syndrome Foundation strives to improve the lives of those living with this condition and their families.

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Impact




August, 2024

The Rothmund-Thomson Syndrome Foundation impacts individuals and families affected by this rare disease by providing support, resources, and advocacy. Through their efforts, they are working to raise awareness about the syndrome and improve the quality of life for those living with it. Additionally, the foundation funds research to advance understanding of Rothmund-Thomson Syndrome and develop potential treatments.




This information is meant to be a general summary of Rothmund-Thomson Syndrome Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$60,413 (2023)
Expenses
$64,542 (2023)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2023.

  • Gross Receipts: $65,514

Assets and Liabilities:

  • Total Assets: $59,727
  • Total Liabilities: $0
  • Net Assets: $59,727

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Organization Details

Principal Officer

Shelley Sanders

Main Address

4307 Woodward Court, Chantilly, VA, 20151

NTEE Category

Code: G12 - Disease

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