Overview
What is The Orphan Disease Pathway Project?
The Orphan Disease Pathway Project is a dedicated nonprofit organization situated in Rocky Hill, Connecticut. Its primary mission is to contribute to the discovery of cures and effective treatments for orphan, or rare, diseases. To achieve this goal, the organization supports research conducted at the Penn Center for Orphan Disease Research and Therapy at the University of Pennsylvania's School of Medicine. By facilitating research on these lesser-known conditions, the Orphan Disease Pathway Project strives to improve the lives of those affected by these diseases.
Official website here: www.orphandiseasepathwayproject.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 79% (Three-Star out of Four Star rating)
The Orphan Disease Pathway Project has received a Three-Star rating from Charity Navigator, reflecting a solid performance primarily in the area of Accountability & Finance. The organization achieved an impressive 79% in this category, indicating a commitment to transparency and responsible financial management. They have a fully independent board, which is a positive indicator of governance.
Strengths include a high program expense ratio of 98.10%, showing that the majority of their resources are directed towards their mission rather than administrative costs. Additionally, they have received full points for their financial audit and have no material diversion of assets, further underscoring their financial integrity.
However, there are notable areas for improvement. The organization lacks a whistleblower policy, document retention and destruction policy, and does not provide access to board meeting minutes. Addressing these gaps could enhance their governance practices and overall accountability.
This AI summary has been generated from information found on Charity Navigator.
Is The Orphan Disease Pathway Project legitimate?
The Orphan Disease Pathway Project is a legitimate nonprofit organization registered as a 501(c)(3) entity. The Orphan Disease Pathway Project submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
For more financial information, click here
Official website here: www.orphandiseasepathwayproject.org
What is the mission statement of The Orphan Disease Pathway Project?
The Orphan Disease Pathway Project is committed to assisting in the discovery of cures and effective treatments for rare diseases, known as orphan diseases. Their primary objective is to foster research in these less studied conditions. As part of their efforts, they have made contributions to the Penn Center for Orphan Disease Research and Therapy at the University of Pennsylvania. This center is dedicated to advancing research and developing solutions for these often overlooked medical conditions.
Official website here: www.orphandiseasepathwayproject.org
Who is the CEO of The Orphan Disease Pathway Project?
George A Weiss is the Trustee of The Orphan Disease Pathway Project.
Official website here: www.orphandiseasepathwayproject.org
What is the revenue of The Orphan Disease Pathway Project?
The Orphan Disease Pathway Project's revenue in 2022 was $1,702,639.
Official website here: www.orphandiseasepathwayproject.org
Who are the executives of The Orphan Disease Pathway Project and what are their salaries?
There is 1 key member and their salary:
- Compensation: $0
- Related: $0
- Other: $0
Official website here: www.orphandiseasepathwayproject.org
Where can I find the form 990 for The Orphan Disease Pathway Project?
The Orphan Disease Pathway Project's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.orphandiseasepathwayproject.org
Learn more at the official website: www.orphandiseasepathwayproject.org
Mission Statement of The Orphan Disease Pathway Project
The Orphan Disease Pathway Project is committed to aiding in the discovery of cures and effective treatments for orphan diseases. These are rare medical conditions that often lack sufficient resources for research and development. The organization's mission is to facilitate research in these areas, working towards improving the lives of those affected. To accomplish this, The Orphan Disease Pathway Project has made contributions to the Penn Center for Orphan Disease Research and Therapy at the University of Pennsylvania's School of Medicine. This partnership underscores the organization's dedication to supporting scientific advancements in the field of orphan diseases.
Shop smarter and support your favorite cause with the Give Freely browser extension. Save money with coupons and donate to charity with a single click. Download now!
Impact
October, 2024
The Orphan Disease Pathway Project has significantly advanced the understanding and treatment of rare diseases by contributing resources and support to the Penn Center for Orphan Disease Research and Therapy at the University of Pennsylvania's School of Medicine. By facilitating research efforts and fostering collaboration among scientists and clinicians, the project aims to discover effective treatments and potential cures for orphan diseases. This focus on rare conditions not only addresses unmet medical needs but also enhances the overall landscape of medical research, potentially leading to breakthroughs that can benefit broader patient populations. Through these initiatives, the project plays a critical role in transforming the lives of individuals affected by rare diseases.
This information is meant to be a general summary of The Orphan Disease Pathway Project. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $109
- Gross Receipts: $1,884,842
Assets and Liabilities:
- Total Assets: $79,380
- Total Liabilities: $23,500
- Net Assets: $55,880
Want to help this charity, for free? You can click here to learn more about Give Freely
Organization Details
Founding Year
2010
Phone
(860) 240-8900Principal Officer
George A Weiss
Main Address
400 CAPITAL BOULEVARD SUITE 201, ROCKY HILL, CT, 06067
NTEE Category
Code: H80 - Medical research
If you are a representative of The Orphan Disease Pathway Project and wish to learn more about how Give Freely can help you raise funds, please click here: https://givefreely.com/nonprofits/. Our services are offered at no cost to your organization.