Overview
What is Global Foundation For Peroxisomal Disorders?
The Global Foundation for Peroxisomal Disorders, based in Tulsa, Oklahoma, is a dedicated nonprofit organization with a mission to enhance the lives of individuals affected by peroxisomal disorders. They accomplish this through various initiatives, including funding research, fostering scientific collaboration, and providing educational programs and support services. Their efforts culminate in empowering both families and professionals in their quest for improved clinical outcomes. The organization's primary focus is on building health and scientific literacy for patients and their caregivers. They achieve this through user-friendly resources on their website, which reached numerous families worldwide in 2022, disseminating essential information, including peer-reviewed treatment guidelines for peroxisomal patients. Additionally, their social media platform boasts over 4,000 followers, with half of the content designed to equip caregivers with health information and tools for clinical outcomes. In person, the Global Foundation for Peroxisomal Disorders organized a biennial conference in 2022, attended by 294 participants, consisting of families, researchers, scientists, healthcare providers, and students. The conference included over 60 sessions focusing on scientific advancements, care provision, mental health support, and more, while also providing childcare through its Warrior Camp model. Furthermore, the conference offered pro bono consultations valued at over $100,000 from medical professionals, scientists, and allied health professionals to families worldwide. To augment these efforts, the organization hosted numerous virtual meetings, webinars, and support groups for parents and caregivers, aiming to increase health literacy, facilitate connections with care providers across the country, and provide emotional and behavioral support for caregivers. Additionally, they actively advocate for policy changes and rare disease patients' rights.
Official website here: www.thegfpd.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 96% (Four-Star out of Four Star rating)
The Global Foundation For Peroxisomal Disorders has achieved an impressive overall score of 96%, earning a Four-Star rating, which indicates a high level of accountability and transparency in its operations. The charity excels in areas such as financial management and organizational governance, with a perfect score of 100% for having an entirely independent board. Additionally, the foundation's program expense ratio is strong at 74.42%, showing a significant commitment to its core mission.
In terms of operational practices, the foundation scored exceptionally well across various metrics, including a perfect score for constituent feedback and the processes in place for using that feedback. The organization also has robust policies regarding conflicts of interest, whistleblowing, and document retention, which contribute to its overall credibility and integrity. Its liabilities to assets ratio is low at 5.63%, indicating a solid financial position.
While the foundation demonstrates strong financial and operational practices, the data suggests a focus on equity strategies, scoring 95 out of 100, which highlights its commitment to inclusivity. However, there may be room for improvement in the area of equity policies and processes, where it scored 5 out of 7. Overall, the Global Foundation For Peroxisomal Disorders stands out for its strong performance and dedication to its mission.
This AI summary has been generated from information found on Charity Navigator.
What do the Facebook reviews say about Global Foundation For Peroxisomal Disorders?
94% of 24 reviewers on Facebook recommend the Global Foundation For Peroxisomal Disorders. Here is a summary of their reviews:
The organization has provided significant support to families dealing with the challenges of peroxisomal disorders, with many expressing appreciation for the compassion and assistance offered during difficult times. Reviewers highlight the dedication of the staff and the valuable resources the foundation provides.
Overall, those who have engaged with the foundation feel a strong sense of community and support, indicating that this nonprofit truly makes a difference in the lives of those affected by these disorders.
This AI summary has been generated from reviews found on Facebook.
Is Global Foundation For Peroxisomal Disorders legitimate?
Global Foundation For Peroxisomal Disorders is a legitimate nonprofit organization registered as a 501(c)(3) entity. Global Foundation For Peroxisomal Disorders submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $88,237
Professional Fundraising Fees: $0
Other Salaries and Wages: $7,342
For more financial information, click here
Official website here: www.thegfpd.org
What is the mission statement of Global Foundation For Peroxisomal Disorders?
The Global Foundation for Peroxisomal Disorders, in its mission, aims to enhance the lives of individuals afflicted with peroxisomal disorders. This is achieved through funding research, promoting scientific collaboration, and offering educational programs and support services to families and professionals. The organization is dedicated to building health and scientific literacy for patients and their caregivers through various communication channels, reaching numerous families worldwide. They host biennial conferences, providing a platform for families, patients, researchers, scientists, physicians, and other professionals to engage in learning, support, and knowledge exchange. The foundation also offers virtual meet-ups, webinars, and support groups to increase health literacy, improve clinical outcomes, and offer necessary emotional support for caregivers. Moreover, they provide access to pro bono consultations from healthcare professionals to families worldwide.
Official website here: www.thegfpd.org
Who is the CEO of Global Foundation For Peroxisomal Disorders?
Melissa Bryce is the Chair of Global Foundation For Peroxisomal Disorders.
Official website here: www.thegfpd.org
What is the revenue of Global Foundation For Peroxisomal Disorders?
Global Foundation For Peroxisomal Disorders's revenue in 2022 was $815,854.
Official website here: www.thegfpd.org
Who are the executives of Global Foundation For Peroxisomal Disorders and what are their salaries?
The average compensation at Global Foundation For Peroxisomal Disorders during 2022 was $47,790. There are 2 employees and 50 volunteers at Global Foundation For Peroxisomal Disorders.
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- Compensation: $83,654
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Official website here: www.thegfpd.org
Where can I find the form 990 for Global Foundation For Peroxisomal Disorders?
Global Foundation For Peroxisomal Disorders's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.thegfpd.org
Learn more at the official website: www.thegfpd.org
Mission Statement of Global Foundation For Peroxisomal Disorders
The Global Foundation for Peroxisomal Disorders is committed to enhancing the lives of individuals affected by peroxisomal disorders. Their mission, in essence, revolves around funding research, fostering scientific collaboration, and offering educational programs and support services to empower families and professionals. The organization aims to improve the quality of life for those with peroxisomal disorders by funding groundbreaking research and encouraging collaboration among scientists and researchers. Furthermore, the Global Foundation for Peroxisomal Disorders engages in educational initiatives, providing resources and support to families and professionals, thereby empowering them to navigate the challenges associated with peroxisomal disorders more effectively.
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Impact
October, 2024
The Global Foundation for Peroxisomal Disorders significantly enhances the lives of individuals affected by peroxisomal disorders through comprehensive initiatives focused on research, education, and community support. By funding research, the organization fosters scientific collaboration that advances understanding and treatment options for these rare disorders. Its commitment to health literacy empowers patients and caregivers with essential information, exemplified by the redesign of their website to improve resource accessibility, and the dissemination of peer-reviewed treatment guidelines.
The organization's biennial conference serves as a crucial platform, bringing together nearly 300 participants, including families, researchers, and healthcare professionals to share knowledge and support. With over 60 sessions covering various aspects of care and advancements in the field, the conference not only promotes education but also provides emotional support and connection among families. The innovative Warrior Camp model offers additional care for children, allowing parents to engage fully in the learning experience.
Furthermore, the GFPD facilitates virtual meet-ups and webinars that enhance health literacy, leading to better clinical outcomes for patients. By linking caregivers with healthcare providers and offering pro bono consultations valued over $100,000, the organization addresses both clinical needs and emotional support. Through these multifaceted initiatives, the Global Foundation for Peroxisomal Disorders plays a transformative role in the rare disease community, championing advocacy, education, and improved care for those affected by peroxisomal disorders.
This information is meant to be a general summary of Global Foundation For Peroxisomal Disorders. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $4,748
- Gross Receipts: $922,786
Assets and Liabilities:
- Total Assets: $851,736
- Total Liabilities: $47,958
- Net Assets: $803,778
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Organization Details
Founding Year
2010
Phone
(918) 998-5798Principal Officer
Melissa Bryce
Main Address
PO BOX 33238, TULSA, OK, 74153
Website
www.thegfpd.orgNTEE Category
Code: G12 - Disease
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