Overview
What is Eb Research Partnership Inc?
Eb Research Partnership Inc, based in New York City, is a leading nonprofit organization committing to funding research aimed at discovering effective treatments and potentially curing Epidermolysis Bullosa (EB), a group of severe and often life-threatening genetic skin disorders affecting children from birth. With a team of seven dedicated individuals, the organization reviews grant applications to ensure they are relevant, innovative, and can significantly improve the quality of life for EB patients. By investing in groundbreaking research and collaborating with experts in the field of biomedicine, Eb Research Partnership Inc aims to unlock new treatment options for all EB subtypes.
Official website here: www.ebresearch.org
What are the reviews and ratings of this charity?
99% rating from Charity Navigator
Eb Research Partnership Inc has achieved an impressive Four-Star out of Four Star rating, reflecting its strong commitment to accountability and finance. The charity boasts a perfect score of 100 in the Accountability & Finance category, indicating robust financial practices, including a fully independent board and thorough oversight measures. Key metrics such as a high program expense ratio and efficient fundraising practices further demonstrate the organization's effective use of donations.
In addition to its financial strengths, the charity scores well in culture and community, earning an 87 out of 100. This suggests a positive organizational culture and an emphasis on equity strategies, which can be vital for fostering community trust and engagement. The presence of comprehensive policies, such as conflict of interest and whistleblower protections, underscores its commitment to ethical governance.
While the organization exhibits many strengths, there may still be opportunities to enhance its equity strategies further. Overall, Eb Research Partnership Inc stands out as a highly rated nonprofit, demonstrating a strong focus on transparency, community involvement, and effective financial management.
This AI summary has been generated from information found on Charity Navigator.
Is Eb Research Partnership Inc legitimate?
Eb Research Partnership Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Eb Research Partnership Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $351,481
Professional Fundraising Fees: $0
Other Salaries and Wages: $273,538
For more financial information, click here
Official website here: www.ebresearch.org
What is the mission statement of Eb Research Partnership Inc?
Eb Research Partnership Inc is the leading organization dedicated to funding research for treatments and a potential cure for Epidermolysis Bullosa (EB), a group of devastating and life-threatening genetic skin disorders that affect children from birth. The organization's mission is to support the most promising, innovative, and commercially viable treatment and potential cure projects for EB through research grants. The grants awarded by Eb Research Partnership Inc incorporate advancements in biomedicine, aiming to improve treatments for all EB subtypes. The organization's Scientific Advisory Board reviews all grant applications to ensure they are relevant, innovative, and have the potential to significantly improve the quality of life for those living with EB.
Official website here: www.ebresearch.org
Who is the CEO of Eb Research Partnership Inc?
Michael Hund is the Chairman of Eb Research Partnership Inc. The CEO's salary of Eb Research Partnership Inc is $352,081 and their total compensation is $352,081.
Official website here: www.ebresearch.org
What is the revenue of Eb Research Partnership Inc?
Eb Research Partnership Inc's revenue in 2022 was $6,450,445.
Official website here: www.ebresearch.org
Who are the executives of Eb Research Partnership Inc and what are their salaries?
The average compensation at Eb Research Partnership Inc during 2022 was $89,288. There are 7 employees and 34 volunteers at Eb Research Partnership Inc.
Here are 33 key members and their salaries (Eb Research Partnership Inc's CEO's salary is $352,081 and their total compensation is $352,081):
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Official website here: www.ebresearch.org
Where can I find the form 990 for Eb Research Partnership Inc?
Eb Research Partnership Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.ebresearch.org
Learn more at the official website: www.ebresearch.org
Mission Statement of Eb Research Partnership Inc
Eb Research Partnership Inc, being the largest organization dedicated to funding research, is committed to finding treatments and a potential cure for Epidermolysis Bullosa (EB), a group of devastating and life-threatening genetic skin disorders that affect children from birth. This nonprofit organization's mission is to fund the most promising, innovative, and potentially commercially viable treatments and potential cures for EB. Their research grants incorporate advancements through the field of biomedicine, aiming to improve treatments for all EB subtypes.
The organization's rigorous review process ensures that the granted funds are relevant, innovative, and have the potential to significantly enhance the quality of life for those living with EB. Eb Research Partnership Inc's Scientific Advisory Board closely examines all grant applications to ensure they meet these criteria. By investing in cutting-edge research, Eb Research Partnership Inc is paving the way for a future where children affected by EB can live without the constant fear of debilitating skin wounds and other associated health issues.
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Impact
October, 2024
Eb Research Partnership Inc plays a crucial role in advancing the understanding and treatment of Epidermolysis Bullosa (EB), a group of severe genetic skin disorders that significantly impact the lives of affected individuals, particularly children. By providing grants and funding for innovative and commercially viable research, the organization accelerates the development of new treatments and potential cures.
The partnership focuses on projects that incorporate cutting-edge advances in biomedicine, ensuring that the research it supports addresses all subtypes of EB. Its scientific advisory board rigorously evaluates grant applications, ensuring that funded projects are not only relevant but also have the potential to meaningfully enhance the quality of life for those living with this debilitating condition. Through its initiatives, Eb Research Partnership Inc fosters collaboration among researchers and thereby contributes to a growing body of knowledge and solutions aimed at alleviating the burden of EB on patients and their families.
This information is meant to be a general summary of Eb Research Partnership Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $283,333
- Gross Receipts: $6,661,234
Assets and Liabilities:
- Total Assets: $22,585,702
- Total Liabilities: $4,598,565
- Net Assets: $17,987,137
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Organization Details
Founding Year
2010
Phone
(646) 844-0902Principal Officer
Michael Hund
Main Address
244 MADISON AVENUE 104, NEW YORK, NY, 10016
Website
www.ebresearch.orgNTEE Category
Code: G80 - Disease
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