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Fighting Duchenne Foundation

Learn about this cause: What are the reviews? Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 272236164 ✦ Dickson, TN ✦ Designated as a 501(c)(3)

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Overview

What is Fighting Duchenne Foundation?

The Fighting Duchenne Foundation is a nonprofit organization situated in Dickson, Tennessee, with the postal address 106 Tennsco Drive, 37055. Their primary mission is to increase awareness about Duchenne muscular dystrophy, an X-linked hereditary disease that affects approximately 1 in 3,500 male births. This debilitating condition leads to the degeneration and necrosis of skeletal muscle fibers. In an effort to combat this disease, the Fighting Duchenne Foundation raises funds to establish an endowment at the Monroe Carell Jr Children's Hospital-Vanderbilt, Nashville, Tennessee. This endowment will support research aimed at discovering a cure for Duchenne muscular dystrophy. In 20XX, the foundation granted $110,715 to Cure Rare Disease - Texas A&M Division of Research, contributing to ongoing gene therapy studies and research for a potential cure. The foundation's dedication extends beyond funding and awareness-raising, as they also engage in homegrown fundraising efforts to support their cause.


Official website here: www.fightdmd.com

What do the Facebook reviews say about Fighting Duchenne Foundation?

Three users have shared their thoughts about the Fighting Duchenne Foundation on Facebook, highlighting a positive sentiment towards the organization. One enthusiastic supporter emphasizes the impactful work the foundation does, noting its ability to provide genuine hope to boys and their families affected by Duchenne muscular dystrophy.

While there are currently no numerical ratings, the strong recommendation from the reviewers reflects a deep appreciation for the foundation's mission and efforts. The pride expressed in the foundation’s initiatives indicates a strong community backing and a belief in its potential to make a difference. Overall, the feedback conveys a sense of optimism and support for the organization's objectives.


This AI summary has been generated from reviews found on Facebook.

Is Fighting Duchenne Foundation legitimate?

Fighting Duchenne Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Fighting Duchenne Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $0

For more financial information, click here


Official website here: www.fightdmd.com

What is the mission statement of Fighting Duchenne Foundation?

The Fighting Duchenne Foundation's mission is centered around raising awareness for Duchenne Muscular Dystrophy, an X-linked hereditary disease that affects approximately 1 in 3500 male births. This condition leads to degeneration and necrosis of skeletal muscle fibers. The primary objective of the foundation is to raise funds to establish an endowment, which will support research aimed at finding a cure for Duchenne Muscular Dystrophy. This research will be conducted through collaborations with institutions like the Monroe Carell Jr Children's Hospital-Vanderbilt in Nashville, Tennessee. The foundation also contributes to research efforts through grants, such as the $110,715 grant given to Cure Rare Disease - Texas A&M Division of Research for gene therapy studies and research to develop a cure for Duchenne's Disease.


Official website here: www.fightdmd.com

What is the revenue of Fighting Duchenne Foundation?

Fighting Duchenne Foundation's revenue in 2023 was $48,758.


Official website here: www.fightdmd.com

Who are the executives of Fighting Duchenne Foundation and what are their salaries?

There 55 volunteers at Fighting Duchenne Foundation.

Here are 7 key members and their salaries:


Terry Marlin (President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jamie Mullican (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Wendell Brown (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Larry Gilbow (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Joe Deweese (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Spook Spann (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jeb Beasley (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0


Official website here: www.fightdmd.com

Where can I find the form 990 for Fighting Duchenne Foundation?

Fighting Duchenne Foundation's most recent form 990 was submitted in 2023 and can be accessed here.


Official website here: www.fightdmd.com

Learn more at the official website: www.fightdmd.com

Mission Statement of Fighting Duchenne Foundation

Fighting Duchenne Foundation is dedicated to raising awareness about Duchenne muscular dystrophy, a hereditary disease that affects approximately 1 in 3500 male births. This condition results in the degeneration and necrosis of skeletal muscle fibers. The organization's primary mission is to fund research aimed at finding a cure for this debilitating disease. To accomplish this, Fighting Duchenne Foundation has established an endowment at Monroe Carell Jr Children's Hospital-Vanderbilt, Nashville, Tennessee. The funds raised by the foundation are used to support research focused on developing a cure for Duchenne muscular dystrophy, specifically through gene therapy studies and research.

In their efforts to combat Duchenne muscular dystrophy, Fighting Duchenne Foundation has demonstrated a strong commitment to scientific advancement. One of their significant contributions is a research fund grant of $110,715 to Cure Rare Disease - Texas A&M Division of Research. This funding supports ongoing research aimed at developing a cure for Duchenne disease, furthering the foundation's mission to eradicate this condition and improve the lives of those affected by it.

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Impact




August, 2024

Fighting Duchenne Foundation's impact includes raising awareness about Duchenne Muscular Dystrophy, a genetic disorder that affects 1 in 3500 male births. The foundation's fundraising efforts have resulted in a significant research fund grant to support studies aimed at developing a cure for Duchenne's disease through gene therapy research. This grant, totaling $110,715, was awarded to the Cure Rare Disease - Texas A&M Division of Research. By funding such crucial research initiatives, Fighting Duchenne Foundation is actively contributing to the advancement of knowledge and potential treatments for this debilitating condition.




This information is meant to be a general summary of Fighting Duchenne Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$48,758 (2023)
Expenses
$62,500 (2023)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2023.

  • Gross Receipts: $89,195

Assets and Liabilities:

  • Total Assets: $361,840
  • Total Liabilities: $0
  • Net Assets: $361,840

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Organization Details

Founding Year

2010

Principal Officer

Terry Marlin

NTEE Category

Code: H125 - Medical research

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