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Danny Did Foundation

Learn about this cause: What are the reviews? Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 271642251 ✦ Evanston, IL ✦ Designated as a 501(c)(3)

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Overview

What is Danny Did Foundation?

The Danny Did Foundation, based in Evanston, Illinois, is a nonprofit organization dedicated to raising public awareness about epilepsy and Sudden Unexpected Death in Epilepsy (SUDEP). They strive to improve communication between medical professionals and families affected by seizures, advocating for the widespread use of seizure detection and prediction devices to potentially prevent seizure-related deaths. The foundation has provided subsidies for these devices to families in financial need and offered guidance on their use to many more. Additionally, Danny Did has granted travel assistance to families to attend epilepsy educational conferences. Their mission extends to sharing SUDEP awareness across billboards, cable television, radio stations, and beyond, aiming to protect individuals with epilepsy and ultimately prevent seizure-related fatalities. With around 5 employees, they cater to the challenges faced by the 3.4 million people living with epilepsy in the U.S. and the over 50 million affected globally.


Official website here: www.dannydid.org

What are the reviews and ratings of this charity?

Charity Navigator Rating: 91% (Four-Star out of Four Stars)

The Danny Did Foundation has achieved a Four-Star rating from Charity Navigator, reflecting its commitment to accountability and financial health. The organization scored 91% in Accountability & Finance, indicating that it operates transparently and efficiently. Notably, the foundation boasts 100% independent board members and has no reported material diversion of assets, which enhances its credibility and trustworthiness.

User feedback highlights the profound impact the foundation has on families affected by epilepsy. Many reviews express gratitude for the timely support in obtaining seizure detection devices, which have significantly improved the quality of life for both children and their caregivers. Clients consistently mention the peace of mind these devices provide, allowing families to sleep better at night, knowing they have support in case of seizures.

While the foundation's strengths are evident, some feedback indicates that individuals sometimes experience delays in receiving assistance. Despite this, the overall sentiment remains overwhelmingly positive, with many clients and volunteers praising the foundation for its proactive approach to raising awareness about SUDEP and its ongoing commitment to help families navigate the challenges of epilepsy.


This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.

What do the Facebook reviews say about Danny Did Foundation?

100% of 27 reviewers on Facebook recommend the Danny Did Foundation. Here is a summary of their reviews:

Many families express profound gratitude for the support and assistance received from the foundation, highlighting its positive impact on their lives. The organization has provided crucial help, offering peace of mind to families dealing with challenging circumstances related to epilepsy.

Overall, the sentiment is overwhelmingly positive, with reviewers appreciating the foundation's commitment to helping families navigate their experiences with epilepsy. It’s evident that the Danny Did Foundation effectively delivers on its mission by making a meaningful difference in the lives of those it serves.


This AI summary has been generated from reviews found on Facebook.

Is Danny Did Foundation legitimate?

Danny Did Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Danny Did Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $251,750
Professional Fundraising Fees: $0
Other Salaries and Wages: $60,247

For more financial information, click here


Official website here: www.dannydid.org

What is the mission statement of Danny Did Foundation?

The Danny Did Foundation's mission is centered around advancing public awareness of epilepsy and the risk of Sudden Unexpected Death in Epilepsy (SUDEP). Their primary goal is to protect individuals with epilepsy and prevent deaths caused by seizures. With a significant number of 3.4 million people in the United States and more than 50 million globally battling epilepsy, the issue of addressing SUDEP is both urgent and logically imperative.


Official website here: www.dannydid.org

Who is the CEO of Danny Did Foundation?

Thomas Stanton is the President of Danny Did Foundation.


Official website here: www.dannydid.org

What is the revenue of Danny Did Foundation?

Danny Did Foundation's revenue in 2022 was $1,454,711.


Official website here: www.dannydid.org

Who are the executives of Danny Did Foundation and what are their salaries?

The average compensation at Danny Did Foundation during 2022 was $62,399. There are 5 employees and 125 volunteers at Danny Did Foundation.


Here are 17 key members and their salaries:


Kurt Florian (President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Julie Dix (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Josh Gabby (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Diane Garvey (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Lynn Hanley (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Kari Heideman (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Tracy Jablonski (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Dan Kotowski (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Dr Jerry Luo (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jeanine Mcshea (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Caroline Mcateer (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jennifer Sime (Vice President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Mike Stanton (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Margaret Storey (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
John Wrenn (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Mary Duffy (Asst Executive Director)
  • Compensation: $101,412
  • Related: $0
  • Other: $0
Thomas F Stanton (Executive Director)
  • Compensation: $150,338
  • Related: $0
  • Other: $0


Official website here: www.dannydid.org

Where can I find the form 990 for Danny Did Foundation?

Danny Did Foundation's most recent form 990 was submitted in 2022 and can be accessed here.


Official website here: www.dannydid.org

Learn more at the official website: www.dannydid.org

Mission Statement of Danny Did Foundation

The Danny Did Foundation, named after a young boy who tragically lost his life due to Sudden Unexpected Death in Epilepsy (SUDEP), is committed to advancing public awareness about epilepsy and the risk associated with SUDEP. Their mission is twofold: to protect individuals with epilepsy and to prevent deaths caused by seizures. With an estimated 3.4 million people in the United States and over 50 million globally living with epilepsy, the issue of proactively addressing SUDEP is both urgent and logical. The foundation's work is dedicated to ensuring that people living with epilepsy are well-informed about the risks and have the necessary resources to protect themselves.

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Impact




October, 2024

The Danny Did Foundation significantly advances public awareness of epilepsy and the associated risks, particularly Sudden Unexpected Death in Epilepsy (SUDEP). By striving for improved communication between medical professionals and families affected by seizures, the foundation educates caregivers and patients about the critical importance of understanding and managing these risks.

In a proactive approach, the foundation subsidized 343 seizure detection devices for families in financial need, empowering them with tools to safeguard their loved ones. Beyond providing these devices, the foundation offered counseling to hundreds of other families, enhancing their knowledge of protective measures for those living with epilepsy.

Additionally, the foundation facilitated travel grants for 39 families, enabling them to participate in epilepsy educational conferences, further enriching their understanding and resources related to this condition.

Through extensive awareness campaigns, including billboard advertisements and media outreach on cable television and radio stations, the foundation has broadened the dialogue around SUDEP, making it a more recognized issue within communities. With over 3.4 million individuals facing epilepsy in the U.S. and more than 50 million worldwide, the foundation's efforts are not only timely but crucial in fostering a safer environment for those affected by epilepsy.




This information is meant to be a general summary of Danny Did Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$1,454,711 (2022)
Expenses
$957,390 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $49,782
  • Gross Receipts: $1,642,593

Assets and Liabilities:

  • Total Assets: $2,564,434
  • Total Liabilities: $17,868
  • Net Assets: $2,546,566

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Organization Details

Founding Year

2010

Principal Officer

Thomas Stanton

Main Address

3008 CENTRAL STREET, EVANSTON, IL, 60201

NTEE Category

Code: G12 - Disease

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