Overview
What is Hope For Hypothalamic Hamartomas?
Hope For Hypothalamic Hamartomas is a nonprofit organization that primarily focuses on assisting individuals affected by Hypothalamic Hamartomas (HH) and their family members. Their mission encompasses promoting research aimed at discovering effective treatments, as well as organizing a biennial Family Forum. This forum serves as a platform for HH patients and their loved ones to connect, share experiences, and gain insights from experts in the field. By supporting patients and caregivers, and driving research efforts, Hope For Hypothalamic Hamartomas works towards improving the lives of those affected by this medical condition.
Official website here: www.hopeforhh.org
Is Hope For Hypothalamic Hamartomas legitimate?
Hope For Hypothalamic Hamartomas is a legitimate nonprofit organization registered as a 501(c)(3) entity. Hope For Hypothalamic Hamartomas submitted a form 990EZ, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Official website here: www.hopeforhh.org
What is the mission statement of Hope For Hypothalamic Hamartomas?
Hope for Hypothalamic Hamartomas, as an organization, is dedicated to assisting patients with Hypothalamic Hamartomas (HH) and their families. Its primary mission is to foster research aimed at discovering effective treatments for this condition. Additionally, Hope for Hypothalamic Hamartomas hosts a biennial Family Forum, providing a platform for community engagement and support. The organization's activities are centered around supporting patients and families, driving research, and fostering a sense of community through its events.
Official website here: www.hopeforhh.org
Who is the CEO of Hope For Hypothalamic Hamartomas?
Erica Webster is the President of Hope For Hypothalamic Hamartomas.
Official website here: www.hopeforhh.org
What is the revenue of Hope For Hypothalamic Hamartomas?
Hope For Hypothalamic Hamartomas's revenue in 2022 was $146,474.
Official website here: www.hopeforhh.org
Who are the executives of Hope For Hypothalamic Hamartomas and what are their salaries?
Here are 5 key members and their salaries:
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Official website here: www.hopeforhh.org
Where can I find the form 990EZ for Hope For Hypothalamic Hamartomas?
Hope For Hypothalamic Hamartomas's most recent form 990EZ was submitted in 2022 and can be accessed here.
Official website here: www.hopeforhh.org
Learn more at the official website: www.hopeforhh.org
Mission Statement of Hope For Hypothalamic Hamartomas
Hope For Hypothalamic Hamartomas, a nonprofit organization, is dedicated to supporting individuals and families affected by Hypothalamic Hamartomas (HH), a rare neurological disorder. Their primary mission is threefold: to provide assistance to HH patients and their caregivers, to promote research aimed at discovering potential treatments, and to organize a biennial Family Forum.
By supporting HH patients and their loved ones, Hope For Hypothalamic Hamartomas aims to alleviate some of the challenges they face. This assistance can take various forms, from emotional support to practical resources, helping these individuals navigate their daily lives.
In terms of research, the organization is actively involved in promoting scientific studies focused on finding effective treatments for HH. Their goal is to contribute to a better understanding of this condition and to ultimately improve the lives of those affected by it.
Furthermore, Hope For Hypothalamic Hamartomas organizes a biennial Family Forum, a significant event that brings together HH patients, their families, and medical professionals. This forum serves as a platform for sharing experiences, learning about the latest research, and fostering a sense of community among those impacted by HH.
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Impact
October, 2024
Hope for Hypothalamic Hamartomas significantly impacts the lives of those affected by hypothalamic hamartomas (HH) by providing essential support to patients and their caregivers. The organization plays a crucial role in fostering a community where individuals can share experiences, obtain valuable resources, and find comfort in knowing they are not alone in their journey.
By promoting research for treatments, it contributes to the advancement of medical knowledge about HH, ultimately leading to potential breakthroughs in managing this condition. The biennial Family Forum organized by the group serves as a vital platform for education, networking, and collaboration among families, researchers, and healthcare professionals, enhancing the understanding of HH and its challenges. Overall, the efforts of Hope for Hypothalamic Hamartomas empower patients and caregivers while working towards improved treatment options and quality of life for those affected by this condition.
This information is meant to be a general summary of Hope For Hypothalamic Hamartomas. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $27
- Gross Receipts: $146,474
Assets and Liabilities:
- Total Assets: $354,838
- Total Liabilities: $0
- Net Assets: $354,838
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Organization Details
Principal Officer
Erica Webster
Main Address
PO BOX 941, Eagle, ID, 83616
Website
www.hopeforhh.orgNTEE Category
Code: P20 - Human services
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