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Chelseas Hope Lafora Children Research

Learn about this cause: What are the reviews? Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 271008382 ✦ Sacramento, CA ✦ Designated as a 501(c)(3)

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Overview

What is Chelseas Hope Lafora Children Research?

Chelseas Hope Lafora Children's Research is a nonprofit organization dedicated to funding research, treatment, and ultimately, a cure for individuals affected by Lafora. Based in Sacramento, California, their mission is to collect donations and invest in studies aimed at combating this specific condition. The organization's activities focus on raising funds to support and advance medical discoveries, ultimately aiming to alleviate the burden of Lafora for affected families.


Official website here: www.chelseashope.org

What do the Facebook reviews say about Chelseas Hope Lafora Children Research?

An impressed attendee described their experience at the annual Lafora conference in La Jolla, San Diego, as one of the most meaningful moments in their life, specifically highlighting the impact it had on their son, Fedrico. They expressed appreciation for the efforts made by various individuals working selflessly to raise awareness, gather data, and seek funding to find a cure for children suffering from Lafora disease.

Furthermore, the review emphasized the encouraging collaboration between researchers and families, which fosters a supportive community. The gratitude towards Chelsea’s Hope and key individuals involved in the organization underscores the positive impact they are having on families affected by this condition. Overall, the sentiment reflects a strong appreciation for the mission and dedication of Chelsea's Hope.


This AI summary has been generated from reviews found on Facebook.

Is Chelseas Hope Lafora Children Research legitimate?

Chelseas Hope Lafora Children Research is a legitimate nonprofit organization registered as a 501(c)(3) entity. Chelseas Hope Lafora Children Research submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $34,460

For more financial information, click here


Official website here: www.chelseashope.org

What is the mission statement of Chelseas Hope Lafora Children Research?

Chelseas Hope Lafora Children's Research is committed to raising funds for the advancement of research, treatment, and ultimately, a cure for individuals affected by Lafora. Their mission is centered around providing financial support to aid in the discovery of a cure for this condition. The organization's primary focus is on funding research to assist in the combat against Lafora.


Official website here: www.chelseashope.org

Who is the CEO of Chelseas Hope Lafora Children Research?

Frank Harris is the President of Chelseas Hope Lafora Children Research.


Official website here: www.chelseashope.org

What is the revenue of Chelseas Hope Lafora Children Research?

Chelseas Hope Lafora Children Research's revenue in 2022 was $652,148.


Official website here: www.chelseashope.org

Who are the executives of Chelseas Hope Lafora Children Research and what are their salaries?

There 5 volunteers at Chelseas Hope Lafora Children Research.


Here are 5 key members and their salaries:


Niki Markou (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Frank Harris (President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Sheila Barter (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jenifer Merriam (Vice President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Lena Ismail (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0


Official website here: www.chelseashope.org

Where can I find the form 990 for Chelseas Hope Lafora Children Research?

Chelseas Hope Lafora Children Research's most recent form 990 was submitted in 2022 and can be accessed here.


Official website here: www.chelseashope.org

Learn more at the official website: www.chelseashope.org

Mission Statement of Chelseas Hope Lafora Children Research

Chelsea's Hope Lafora Children's Research is committed to raising funds for research, treatment, and ultimately, a cure for individuals affected by Lafora. This nonprofit organization's mission is to contribute financially towards the eradication of the Lafora disease, providing a beacon of hope for those affected by this condition. The primary goal of Chelsea's Hope Lafora Children's Research is to fund research aimed at discovering a cure, offering a potentially life-changing solution for those battling this disease.

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Impact




October, 2024

Chelseas Hope Lafora Children Research significantly impacts the landscape of medical research focused on Lafora disease, a rare and debilitating genetic condition. By raising funds specifically for research, treatment, and ultimately a cure, the organization plays a critical role in advancing our understanding of Lafora disease. This funding supports scientists and researchers who are dedicated to identifying effective treatments, improving the quality of life for affected individuals, and steering progress toward potential cures.

Located in Sacramento, California, the organization fosters collaboration among experts in the field, driving innovation and discovery. Its mission not only aims to provide immediate support for those affected but also lays the groundwork for long-term solutions to combat this challenging condition. Through its dedicated efforts, Chelseas Hope Lafora Children Research is a beacon of hope for families impacted by Lafora disease, paving the way for future breakthroughs in medical research.




This information is meant to be a general summary of Chelseas Hope Lafora Children Research. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$652,148 (2022)
Expenses
$265,056 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Gross Receipts: $652,148

Assets and Liabilities:

  • Total Assets: $658,282
  • Total Liabilities: $0
  • Net Assets: $658,282

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Organization Details

Founding Year

2009

Principal Officer

Frank Harris

Main Address

PO BOX 348626, SACRAMENTO, CA, 95834

NTEE Category

Code: H12 - Medical research

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