Overview
What is The Fibrolamellar Cancer Foundation?
The Fibrolamellar Cancer Foundation is a nonprofit organization situated in Greenwich, Connecticut. Established to raise awareness and financial support for Fibrolamellar Carcinoma, a rare form of liver cancer predominantly affecting adolescents and young adults, the foundation currently lacks viable treatment options beyond liver resection surgery. The organization's mission is twofold: to discover a cure and reliable treatment options for those diagnosed with this disease and foster better communication between healthcare professionals and patients. With a team of three dedicated individuals, the foundation grants funds to research organizations to further their studies on Fibrolamellar Carcinoma.
Official website here: www.fibrofoundation.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 100% (Four-Star out of Four Star rating)
The Fibrolamellar Cancer Foundation has achieved an impressive Four-Star rating from Charity Navigator, indicating a high level of accountability and financial health. With a perfect score in Accountability & Finance, the organization demonstrates strong governance practices, including a fully independent board and comprehensive audit oversight. Their financial stability is evident through a low liabilities-to-assets ratio and an exceptional program expense ratio, indicating that the majority of funds are directed towards their mission.
Strengths highlighted in user feedback include the foundation's commitment to transparency and ethical practices. They have strong policies in place regarding conflicts of interest and whistleblower protections, contributing to a trustworthy operational framework. Additionally, the organization's focus on leadership development shows an investment in sustainability and growth, ensuring continued effectiveness in their initiatives.
While the organization shows no significant limitations in the data, it is important for potential donors to remain aware of ongoing community needs in the fight against fibrolamellar cancer. Overall, The Fibrolamellar Cancer Foundation exemplifies financial integrity and effective governance, making it a reliable choice for philanthropic support.
This AI summary has been generated from information found on Charity Navigator.
Is The Fibrolamellar Cancer Foundation legitimate?
The Fibrolamellar Cancer Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. The Fibrolamellar Cancer Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $200,000
Professional Fundraising Fees: $0
Other Salaries and Wages: $286,543
For more financial information, click here
Official website here: www.fibrofoundation.org
What is the mission statement of The Fibrolamellar Cancer Foundation?
The Fibrolamellar Cancer Foundation was established with a mission to increase awareness and fund research for Fibrolamellar Carcinoma, a rare form of liver cancer predominantly affecting adolescents and young adults. Currently, there are limited treatment options beyond liver resection surgery. The foundation's goal is to discover a cure and reliable treatment options for those diagnosed with this rare disease. Additionally, the foundation aims to improve communications among healthcare professionals and patients associated with Fibrolamellar Carcinoma.
Official website here: www.fibrofoundation.org
Who is the CEO of The Fibrolamellar Cancer Foundation?
Kurt Losert is the Co-Chairperson of The Fibrolamellar Cancer Foundation. The CEO's salary of The Fibrolamellar Cancer Foundation is $0 and their total compensation is $0.
Official website here: www.fibrofoundation.org
What is the revenue of The Fibrolamellar Cancer Foundation?
The Fibrolamellar Cancer Foundation's revenue in 2022 was $6,076,635.
Official website here: www.fibrofoundation.org
Who are the executives of The Fibrolamellar Cancer Foundation and what are their salaries?
The average compensation at The Fibrolamellar Cancer Foundation during 2022 was $162,181. There are 3 employees and 50 volunteers at The Fibrolamellar Cancer Foundation.
Here are 12 key members and their salaries (The Fibrolamellar Cancer Foundation's CEO's salary is $0 and their total compensation is $0):
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- Other: $0
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- Other: $0
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- Other: $0
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- Other: $0
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- Other: $0
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- Compensation: $159,650
- Related: $0
- Other: $16,079
- Compensation: $200,000
- Related: $0
- Other: $31,391
Official website here: www.fibrofoundation.org
Where can I find the form 990 for The Fibrolamellar Cancer Foundation?
The Fibrolamellar Cancer Foundation's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.fibrofoundation.org
Learn more at the official website: www.fibrofoundation.org
Mission Statement of The Fibrolamellar Cancer Foundation
The Fibrolamellar Cancer Foundation, established with the aim to raise awareness and research funds for Fibrolamellar carcinoma, a rare form of liver cancer predominantly affecting teens and young adults, has a mission to find a cure and reliable treatment options for those diagnosed with this disease. Currently, the only viable treatment option is liver resection surgery. The foundation's objective extends beyond medical advancements, aiming to enhance communications among healthcare professionals and patients, fostering a collaborative approach in the battle against this rare disease.
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Impact
October, 2024
The Fibrolamellar Cancer Foundation plays a critical role in addressing the challenges associated with fibrolamellar carcinoma, a rare and aggressive form of liver cancer primarily affecting teens and young adults. By raising awareness and funding vital research, the foundation aims to uncover effective treatment options beyond the current reliance on liver resection surgery, which is often insufficient for many patients.
Through grants to research organizations, the foundation supports scientific studies that seek to better understand fibrolamellar carcinoma and develop potential therapies. Additionally, it enhances communication and collaboration between healthcare professionals and patients, fostering a community where knowledge and resources are shared. This concerted effort not only empowers patients and their families but also drives forward the search for cures and improved care, making an impactful difference in the lives of those affected by this disease.
This information is meant to be a general summary of The Fibrolamellar Cancer Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $3,055
- Gross Receipts: $6,266,126
Assets and Liabilities:
- Total Assets: $10,981,422
- Total Liabilities: $1,707,920
- Net Assets: $9,273,502
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Organization Details
Founding Year
2009
Phone
(203) 862-3196Principal Officer
Kurt Losert
Main Address
20 HORSENECK LANE 2ND FLOOR, GREENWICH, CT, 06830
Website
www.fibrofoundation.orgNTEE Category
Code: G193 - Disease
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