Overview
What is Soft Bones Incthe Us?
Soft Bones Inc the US is a nonprofit organization situated in Boonton, New Jersey, with a specific focus on Hypophosphatasia, a lesser-known disease. They operate primarily as an educational and resource-providing entity, catering to individuals diagnosed with the condition, their families, and treating doctors. The organization's mission is to foster awareness about Hypophosphatasia by disseminating informative materials, supporting a network, and sharing updates on research and treatment options. With a dedicated team of seven individuals, Soft Bones Inc the US aims to empower those affected by the disease, offering them a platform for knowledge exchange and mutual support.
Official website here: www.softbones.org
Is Soft Bones Incthe Us legitimate?
Soft Bones Incthe Us is a legitimate nonprofit organization registered as a 501(c)(3) entity. Soft Bones Incthe Us submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Here are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $218,609
For more financial information, click here
What is the mission statement of Soft Bones Incthe Us?
Soft Bones Inc., in the United States, aims to increase awareness about Hypophosphatasia, a particular disease. They accomplish this by offering educational materials, establishing a support network, and sharing information on research and treatment options. This is done to benefit individuals diagnosed with Hypophosphatasia, their families, and treating doctors. Furthermore, Soft Bones Inc. provides free educational resources and materials to those affected by the disease.
Official website here: www.softbones.org
Who is the CEO of Soft Bones Incthe Us?
What is the revenue of Soft Bones Incthe Us?
Who are the executives of Soft Bones Incthe Us and what are their salaries?
The average compensation at Soft Bones Incthe Us during 2022 was $31,230. There are 7 employees at Soft Bones Incthe Us.
Here are 6 key members and their salaries:
- Adam Grenker Esq (Director)
- Dr Brenda Ziegler (Director)
- Karen Carolonza (Vice Preside)
- Heidi Floyd (Secretary)
- Deborah Fowler (President)
- Michelle Labruno (Treasurer)
Official website here: www.softbones.org
Where can I find the form 990 for Soft Bones Incthe Us?
The Soft Bones Incthe Us’s most recent form 990 was submitted in 2022 and can be accessed here
Official website here: www.softbones.org
Learn more at the official website: www.softbones.org
Mission Statement of Soft Bones Incthe Us
Soft Bones Inc., an organization dedicated to hypophosphatasia, aims to raise awareness about this disease. They accomplish this mission by providing educational materials, establishing a supportive network, and sharing information on research and treatment options. This valuable resource is available to individuals diagnosed with hypophosphatasia, their families, and treating doctors. The organization's Educational & Resource Program offers free resources to those affected by the disease, ensuring they have the necessary knowledge and support to navigate their journey.
Impact
This information is meant to be a general summary of Soft Bones Incthe Us. Please take the time to review official sources before making any decisions based upon the content provided here.
Wednesday, July 24, 2024
Soft Bones Inc is making a significant impact in building awareness of the disease of hypophosphatasia. By providing educational materials, support networks, and sharing information about research and treatment options, Soft Bones Inc is helping individuals diagnosed with hypophosphatasia, their families, and treating doctors better understand the disease and available resources. This nonprofit organization based in Boonton, NJ, is dedicated to providing free education and resources to those affected by hypophosphatasia, ultimately improving the quality of life for individuals living with this rare condition. Their focus on medical research underscores their commitment to advancing understanding and treatment options for hypophosphatasia.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Assets and Liabilities:
Organization Details
Phone
(908) 377-8700
Principal Officer
Deborah Fowler
Main Address
141 HAWKINS PLACE 267, BOONTON, NJ, 07005
Website
www.softbones.org
NTEE Category
Code: H50 - Medical research
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