Overview
What is Coalition For Usher Syndrome Research?
The Coalition For Usher Syndrome Research is a nonprofit organization situated in Westford, Massachusetts. Its primary mission is to elevate awareness and expedite research on the most prevalent genetic factor causing combined deafness and blindness, known as Usher syndrome. The organization achieves this by offering support and information to those impacted by Usher syndrome. This is accomplished through their annual Connections Conference, where attendees can gain insights into the latest advancements in treatment development and connect with other affected individuals and families. The Coalition also serves as a vital resource for people with Usher syndrome, connecting them to a supportive community, thereby fostering a sense of unity among affected families. The organization's dedicated workforce consists of three individuals.
Official website here: www.usher-syndrome.org/
What are the reviews and ratings of this charity?
Charity Navigator Rating: 85%, Three-Star out of Four Star rating.
The Coalition for Usher Syndrome Research has earned an impressive 85% rating from Charity Navigator, highlighting its commitment to accountability and finance, where it scored 74%. The organization boasts a fully independent board, high program expense ratio, and has no material diversion of assets, indicating strong financial health. It also excels in leadership and adaptability, achieving a perfect score, which reflects its effective governance and strategic direction.
User feedback on platforms like Great Nonprofits reinforces the positive impact of the Coalition. Many users, including parents and patients, commend the organization for providing crucial support, education, and fostering a sense of community among those affected by Usher syndrome. Reviewers particularly praised the Coalition's conferences and networking opportunities that connect individuals to the latest research and each other, significantly improving their experiences and emotional well-being.
While the Coalition is highly regarded, the data does not highlight any specific limitations or challenges faced by the organization. Overall, the Coalition for Usher Syndrome Research is viewed as a valuable resource for the Usher syndrome community, driving awareness and research efforts while effectively using its limited resources to achieve meaningful change.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is Coalition For Usher Syndrome Research legitimate?
Coalition For Usher Syndrome Research is a legitimate nonprofit organization registered as a 501(c)(3) entity. Coalition For Usher Syndrome Research submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $204,532
For more financial information, click here
Official website here: www.usher-syndrome.org/
What is the mission statement of Coalition For Usher Syndrome Research?
The Coalition For Usher Syndrome Research is committed to increasing awareness and advancing research related to Usher syndrome, which is the most common genetic cause of combined deafness and blindness. Their mission involves providing essential support to individuals affected by Usher syndrome. To achieve this, they organize conferences, such as the connections conference, where attendees can learn about the latest developments in treatment and connect with other affected individuals and families. The organization also serves to establish a supportive community for those with Usher syndrome and their families by connecting them with each other.
Official website here: www.usher-syndrome.org/
Who is the CEO of Coalition For Usher Syndrome Research?
Lanya Mckittrick is the President of Coalition For Usher Syndrome Research.
Official website here: www.usher-syndrome.org/
What is the revenue of Coalition For Usher Syndrome Research?
Coalition For Usher Syndrome Research's revenue in 2022 was $502,883.
Official website here: www.usher-syndrome.org/
Who are the executives of Coalition For Usher Syndrome Research and what are their salaries?
The average compensation at Coalition For Usher Syndrome Research during 2022 was $68,177. There are 3 employees and 75 volunteers at Coalition For Usher Syndrome Research.
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Official website here: www.usher-syndrome.org/
Where can I find the form 990 for Coalition For Usher Syndrome Research?
Coalition For Usher Syndrome Research's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.usher-syndrome.org/
Learn more at the official website: www.usher-syndrome.org/
Mission Statement of Coalition For Usher Syndrome Research
The Coalition for Usher Syndrome Research is dedicated to bringing attention to and expediting research into the most prevalent genetic factor responsible for combined deafness and blindness. This nonprofit organization's mission extends beyond scientific exploration; it also provides vital information and assistance to individuals living with Usher syndrome. This is accomplished through their Connections Conference, where attendees can engage in learning about the latest advancements in treatment development while forming connections with fellow affected individuals and their families. The Coalition for Usher Syndrome Research further strengthens its mission by connecting those affected by the condition, offering a supportive community to help them navigate their journey.
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Impact
July, 2024
The Coalition For Usher Syndrome Research has made a significant impact in raising awareness and accelerating research for Usher syndrome, the most common genetic cause of combined deafness and blindness. Through their efforts, they have been able to provide vital information and support to individuals affected by this condition, ultimately improving their quality of life. Their connections conference serves as a valuable platform for education and community building within the Usher syndrome community.
This information is meant to be a general summary of Coalition For Usher Syndrome Research. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $2
- Program Service Revenue: $109,132
- Gross Receipts: $502,883
Assets and Liabilities:
- Total Assets: $286,985
- Total Liabilities: $3,764
- Net Assets: $283,221
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
Conference Revenue
Revenue
$109,132
Organization Details
Founding Year
2009
Phone
(800) 946-9203Principal Officer
Lanya Mckittrick
Main Address
9 Cornerstone Square STE 400-224, Westford, MA, 01886
Website
www.usher-syndrome.org/NTEE Category
Code: E86 - Health
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