Overview
What is Dupuytren Research Group Inc?
Dupuytren Research Group Inc is a dedicated nonprofit organization based in West Palm Beach, Florida. Their primary focus is on conducting innovative research and global education to enhance the diagnosis, prediction, and prevention of complications related to Dupuytren disease and its treatment. One of their key initiatives is the International Dupuytren Data Bank (IDDB), a unique research project aimed at creating critical resources for a Dupuytren cure. The IDDB involves a survey component for patient-reported data and biomarker research to identify potential biomarkers for Dupuytren disease. Additionally, they have a retrospective chart review of over 2,300 Dupuytren patients, analyzing medical risk factors, topographic patterns, and treatment outcomes. The Dupuytren Research Group also maintains a literature archive, the largest searchable full-text archive of academic publications on Dupuytren disease, providing a valuable resource for researchers worldwide.
Official website here: www.dupuytrens.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 95%
The Dupuytren Research Group Inc has received a high rating of 95% from Charity Navigator, indicating strong performance in accountability and financial health. With a remarkable score of 97 in Accountability & Finance and 100% independent board members, the organization demonstrates a commitment to transparency and ethical oversight. Their efficient use of resources is evident, with a program expense ratio of 84.66%, suggesting that a significant portion of their funding is directed toward their mission.
User feedback highlights the crucial role this organization plays in advocating for individuals with Dupuytren's Disease, a condition affecting hand function without any current cure. Reviewers praise the Dupuytren Research Group for providing valuable information and support, as well as for their efforts in research aimed at finding effective treatments. Many clients and volunteers express gratitude for the resources and advocacy the group offers, particularly in helping them navigate their diagnosis and potential treatment options.
While the organization enjoys overwhelmingly positive feedback, it's important to note that challenges remain in securing a viable cure for Dupuytren's Disease. Nonetheless, the Dupuytren Research Group is recognized as a leader in this field, with efforts largely centered on raising awareness, conducting research, and fostering collaborative relationships with other organizations. Support for their mission is encouraged by the community they serve, reflecting the necessity of their work in advancing understanding and treatment of this debilitating condition.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
What do the Facebook reviews say about Dupuytren Research Group Inc?
100% of 12 reviewers on Facebook recommend Dupuytren Research Group Inc. Here is a summary of their reviews:
The organization appears to resonate strongly with those impacted by Dupuytren's disease. Reviewers express a sense of connection and understanding, indicating that the nonprofit serves as a crucial resource for individuals dealing with this condition. Many appreciate the information and support provided, which helps address the puzzling aspects of the disease, particularly for those without a familial history.
Overall, the sentiment reflects a deep appreciation for the work being done. The Dupuytren Research Group seems to effectively fulfill a need for knowledge and community, making a positive impact on the lives of those living with Dupuytren's.
This AI summary has been generated from reviews found on Facebook.
Is Dupuytren Research Group Inc legitimate?
Dupuytren Research Group Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Dupuytren Research Group Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
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Other Salaries and Wages: $0
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Official website here: www.dupuytrens.org
What is the mission statement of Dupuytren Research Group Inc?
The Dupuytren Research Group Inc's mission is centered around advancing the understanding and potential treatment of Dupuytren disease and related conditions. Their primary goal is to develop and test preventive treatments, with a particular focus on creating a Dupuytren blood test. They aim to conduct innovative research and global education to improve diagnosis, prediction, and prevention of complications associated with Dupuytren disease and its treatment.
The organization has initiated several research projects to achieve its mission. The International Dupuytren Data Bank (IDDB) is a key project, aiming to gather demographic, medical, and Dupuytren-specific patient-reported data to create critical resources for progress towards a Dupuytren cure. The IDDB includes survey and biomarker research components. The group has also undertaken a retrospective chart review of over 2300 Dupuytren patients, aiming to find correlations between medical risk factors, topographic patterns, and treatment outcomes.
Furthermore, the Dupuytren Research Group has compiled a literature archive, which is the largest searchable collection of Dupuytren-related academic publications. This resource is regularly updated and made available to interested researchers at no cost, providing a unique knowledge base for the Dupuytren research community.
Official website here: www.dupuytrens.org
Who is the CEO of Dupuytren Research Group Inc?
Dr Charles Eaton is the Executive Director of Dupuytren Research Group Inc.
Official website here: www.dupuytrens.org
What is the revenue of Dupuytren Research Group Inc?
Dupuytren Research Group Inc's revenue in 2022 was $197,762.
Official website here: www.dupuytrens.org
Who are the executives of Dupuytren Research Group Inc and what are their salaries?
There 5 volunteers at Dupuytren Research Group Inc.
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Official website here: www.dupuytrens.org
Where can I find the form 990 for Dupuytren Research Group Inc?
Dupuytren Research Group Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.dupuytrens.org
Learn more at the official website: www.dupuytrens.org
Mission Statement of Dupuytren Research Group Inc
Dupuytren Research Group Inc, a dedicated organization, is committed to tackling the challenge of Dupuytren disease and related conditions. Their primary mission is to drive innovative research and global education, with a focus on improving diagnosis, prediction, and prevention of complications associated with Dupuytren disease and its treatment.
To achieve this, Dupuytren Research Group Inc embarks on various projects. One of their significant initiatives is the International Dupuytren Data Bank (IDDB). This project aims to overcome barriers in Dupuytren cure development, such as the lack of a disease biomarker and insufficient data on the disease's natural history. The IDDB comprises two components: survey and biomarker research. The survey collects demographic, medical, and Dupuytren-specific data from patients, while the biomarker research program investigates various biomarkers to develop a laboratory test for personalized treatment guidelines and predictive outcomes.
Furthermore, Dupuytren Research Group Inc conducts a retrospective chart review of over 2300 Dupuytren patients treated by Dr. Eaton. This research aims to discover correlations between medical risk factors, topographic patterns of Dupuytren disease, and treatment outcomes. This project will enhance our understanding of the natural history and subcategories of Dupuytren disease, ultimately improving clinical decision-making and personalized treatment recommendations.
Lastly, Dupuytren Research Group Inc houses the largest searchable archive of Dupuytren-related academic publications. This resource comprises over 9000 unique publications dating back 200 years, providing an invaluable knowledge base for Dupuytren researchers worldwide. Dupuytren Research Group Inc's mission is to contribute significantly to the field of Dupuytren disease research and improve patient care through its various initiatives.
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Impact
October, 2024
The Dupuytren Research Group Inc. significantly impacts the field of Dupuytren disease by focusing on innovative research and the development of new diagnostic and treatment methodologies. By establishing the International Dupuytren Data Bank (IDDB), the group addresses two major barriers in Dupuytren care: the absence of a disease biomarker and the lack of comprehensive documentation regarding the disease's natural history. This initiative facilitates a better understanding of patient demographics and disease progression through patient-reported data, with a steady enrollment of individuals contributing to a growing body of research.
Moreover, the organization is pioneering efforts in biomarker identification, shifting from basic gene testing to a more intricate systems biology approach. This includes a pilot Dupuytren Blood Biomarker Discovery study aimed at developing a laboratory test that can provide individualized treatment guidelines and predict treatment outcomes. As research progresses, anticipated publications will contribute vital knowledge to the broader medical community and pave the way for preventive treatments.
The Dupuytren Topography research study further enhances understanding of the disease by analyzing a unique dataset from over 2,300 previously untreated patients. This will help identify correlations between treatment outcomes and various medical risk factors, informing clinical decision-making and promoting personalized treatment strategies.
In addition to primary research efforts, the Dupuytren Research Group maintains the largest searchable archive of academic publications related to Dupuytren disease. This repository, featuring over 9,000 unique publications, serves as a critical resource for researchers globally, ensuring that essential historical and contemporary knowledge remains accessible.
Overall, the Dupuytren Research Group’s comprehensive efforts not only deepen the understanding of Dupuytren disease but also strive toward tangible improvements in prevention, diagnosis, and treatment, ultimately benefiting both patients and the medical community at large.
This information is meant to be a general summary of Dupuytren Research Group Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $15,742
- Gross Receipts: $617,086
Assets and Liabilities:
- Total Assets: $595,262
- Total Liabilities: $2,622
- Net Assets: $592,640
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Organization Details
Founding Year
2008
Phone
(561) 439-8279Principal Officer
Dr Charles Eaton
Main Address
1850 Forest Hill Blvd Ste 201, West Palm Beach, FL, 33406
Website
www.dupuytrens.orgNTEE Category
Code: G122 - Disease
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