Overview
What is Team Telomere Inc?
Team Telomere Inc is a nonprofit organization dedicated to supporting individuals and advancing research in the field of Telomere Biology Disorders. They provide financial aid through scholarships and have secured significant funding, such as the Million Dollar Bike Ride Grant in collaboration with UPenn. The organization's mission encompasses both patient assistance and scientific exploration, aiming to contribute positively to the understanding and treatment of Telomere Biology Disorders.
Official website here: www.http: www.teamtelomere.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: Not Available
Team Telomere Inc. is a nonprofit organization dedicated to supporting individuals and families affected by Dyskeratosis Congenita and other Telomere Biology Disorders (TBD). The organization has received overwhelmingly positive feedback from users, who often describe it as a lifeline during their challenging health journeys. Many reviewers highlighted the strong community support that Team Telomere provides, emphasizing the organization's commitment to connecting patients with vital resources and expert medical advice.
The organization excels in advocacy, education, and providing practical assistance, such as care packages and access to medical professionals knowledgeable about rare diseases. Users frequently commend Team Telomere for its collaborative approach in fostering connections between patients, families, and researchers, which facilitates advancements in understanding and treating TBD. Their efforts to host educational summits and form networks within the medical community further bolster their reputation as a leader in rare disease advocacy.
While the feedback is predominantly positive, there are mentions of the emotional challenges faced by some individuals who feel isolated due to the rarity of their condition. However, the majority of testimonials reflect deep gratitude for the emotional and practical support provided by Team Telomere. Overall, the organization is portrayed as a critical resource in the rare disease landscape, making significant strides in community building and research funding.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is Team Telomere Inc legitimate?
Team Telomere Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Team Telomere Inc submitted a form 990EZ, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Official website here: www.http: www.teamtelomere.org
What is the mission statement of Team Telomere Inc?
Team Telomere Inc. is dedicated to supporting patients living with Telomere Biology Disorders and advancing research in this field. The organization provides funding for related research and offers scholarships. Notably, Team Telomere received a significant grant through the Million Dollar Bike Ride in collaboration with UPenn. The organization's primary aim is to contribute to the better understanding and treatment of Telomere Biology Disorders, ultimately improving the lives of affected individuals.
Official website here: www.http: www.teamtelomere.org
Who is the CEO of Team Telomere Inc?
Katherine Stevens is the Executive Director of Team Telomere Inc.
Official website here: www.http: www.teamtelomere.org
What is the revenue of Team Telomere Inc?
Team Telomere Inc's revenue in 2021 was $168,432.
Official website here: www.http: www.teamtelomere.org
Who are the executives of Team Telomere Inc and what are their salaries?
Here are 10 key members and their salaries:
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Official website here: www.http: www.teamtelomere.org
Where can I find the form 990EZ for Team Telomere Inc?
Team Telomere Inc's most recent form 990EZ was submitted in 2021 and can be accessed here.
Official website here: www.http: www.teamtelomere.org
Learn more at the official website: www.http: www.teamtelomere.org
Mission Statement of Team Telomere Inc
Team Telomere Inc is an organization dedicated to supporting patients living with Telomere Biology Disorders and funding related research. Beyond this, the nonprofit extends its aid by offering scholarships to individuals in need. One significant achievement of Team Telomere Inc is securing a Million Dollar Bike Ride Grant in collaboration with UPenn, which undoubtedly bolsters their efforts in the field of telomere biology. In essence, Team Telomere Inc serves as a beacon of hope for patients affected by Telomere Biology Disorders, providing essential support, funding vital research, and offering educational opportunities to deserving individuals.
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Impact
October, 2024
Team Telomere Inc significantly impacts the lives of individuals affected by Telomere Biology Disorders by providing critical support for patients and advancing research in this specialized field. The organization funds research initiatives that aim to deepen the understanding of these disorders, leading to potential breakthroughs in treatment and management.
Additionally, Team Telomere offers scholarships, helping to alleviate some of the financial burdens faced by patients and their families. The recognition received through the Million Dollar Bike Ride Grant from the University of Pennsylvania underscores its commitment to fostering research and collaborative efforts that can yield positive outcomes for those impacted by these rare genetic conditions. By bridging the gap between patients and scientific inquiry, Team Telomere contributes to a growing community dedicated to improving health and quality of life for those with telomere-related diseases.
This information is meant to be a general summary of Team Telomere Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2021.
- Investment Income: $6,524
- Gross Receipts: $168,432
Assets and Liabilities:
- Total Assets: $152,853
- Total Liabilities: $3,947
- Net Assets: $148,906
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Organization Details
Principal Officer
Katherine Stevens
Main Address
1563 1ST AVE, NEW YORK, NY, 100284004
NTEE Category
Code: G20 - Disease
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