Overview
What is Global Genes?
Global Genes is a nonprofit organization situated in Aliso Viego, California. Their primary objective is to increase public awareness about rare diseases and to globally connect, empower, and educate individuals and related foundations. They accomplish this through various means, including in-person meetings, print and online resources, and online educational platforms. To support their mission, they provide capacity-building, educational, and networking opportunities through a connective network. This nonprofit employs a team of 36 individuals, demonstrating their dedication to serving the rare disease community.
Official website here: www.globalgenes.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 75%
Global Genes has received a Three-Star out of Four Star rating from Charity Navigator, indicating a solid performance primarily in its Accountability and Finance practices. The organization's score reflects strong governance, with an independent board and a comprehensive conflict of interest policy. Its financial efficiency is also commendable, with an impressive program expense ratio of over 84%, demonstrating effective allocation of resources towards its mission.
User feedback highlights Global Genes as an invaluable resource within the rare disease community, with numerous five-star ratings praising its commitment to supporting patients, caregivers, and advocates. Many users commend the organization for its well-organized events, such as the RARE Patient Advocacy Summit, which provide opportunities for networking, education, and empowerment among stakeholders in the rare disease space. The team is noted for its dedication, compassion, and expertise, making a positive and lasting impact on individuals navigating the complexities of rare diseases.
While the organization enjoys a strong reputation, it is important to consider that user reviews predominantly reflect positive experiences, which may not encompass all perspectives. Overall, Global Genes is recognized for its significant contributions to raising awareness, fostering collaboration, and enhancing the lives of those affected by rare diseases.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is Global Genes legitimate?
Global Genes is a legitimate nonprofit organization registered as a 501(c)(3) entity. Global Genes submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $508,751
Professional Fundraising Fees: $0
Other Salaries and Wages: $1,812,826
For more financial information, click here
Official website here: www.globalgenes.org
What is the mission statement of Global Genes?
Global Genes' mission is centered around fostering public awareness for rare diseases. In pursuit of this goal, they strive to globally connect, empower, and educate individuals and foundations affected by rare diseases. They achieve this through various platforms, including in-person meetings, print materials, and online tools, offering capacity building, educational, and networking opportunities. Their mission is to inspire and support the rare disease community.
Official website here: www.globalgenes.org
Who is the CEO of Global Genes?
Craig Martin is the Interim Ceo of Global Genes. The CEO's salary of Global Genes is $420,000 and their total compensation is $420,000.
Official website here: www.globalgenes.org
What is the revenue of Global Genes?
Global Genes's revenue in 2022 was $5,557,435.
Official website here: www.globalgenes.org
Who are the executives of Global Genes and what are their salaries?
The average compensation at Global Genes during 2022 was $64,488. There are 36 employees and 12 volunteers at Global Genes.
Here are 16 key members and their salaries (Global Genes's CEO's salary is $420,000 and their total compensation is $420,000):
- Compensation: $420,000
- Related: $0
- Other: $0
- Compensation: $65,001
- Related: $0
- Other: $0
- Compensation: $160,475
- Related: $0
- Other: $78
- Compensation: $23,750
- Related: $0
- Other: $0
- Compensation: $143,684
- Related: $0
- Other: $5,850
- Compensation: $146,875
- Related: $0
- Other: $81
- Compensation: $158,312
- Related: $0
- Other: $78
- Compensation: $111,064
- Related: $0
- Other: $4,847
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
Official website here: www.globalgenes.org
Where can I find the form 990 for Global Genes?
Global Genes's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.globalgenes.org
Learn more at the official website: www.globalgenes.org
Mission Statement of Global Genes
Global Genes, a prominent organization, is dedicated to increasing public awareness about rare diseases and fostering a global network for individuals and foundations affected by these conditions. Their mission is threefold: to connect, empower, and inspire the rare disease community. Through a multitude of outreach services, Global Genes offers capacity-building, educational, and networking opportunities to patients, caregivers, and disease foundations. They achieve this through various channels, including in-person meetings, print materials, and online tools, as well as providing online education. Global Genes strives to bridge gaps within the rare disease community, providing a platform for individuals to share experiences, access resources, and work towards finding solutions together.
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Impact
October, 2024
Global Genes significantly impacts the rare disease community by increasing public awareness and fostering connections among patients, caregivers, and various disease foundations. Through comprehensive outreach services, it provides educational resources and networking opportunities that enhance the capacity of individuals and organizations involved in rare diseases. This includes in-person meetings, print materials, and online educational tools, all designed to empower those affected and build a more informed and connected community. The organization’s mission to connect, empower, and inspire is central to its efforts, creating a supportive environment for those navigating the challenges of rare diseases. Located in Aliso Viejo, California, Global Genes plays a crucial role in facilitating dialogues and resources that can lead to improved outcomes for individuals and families impacted by these conditions.
This information is meant to be a general summary of Global Genes. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $1,739
- Program Service Revenue: $1,690,520
- Gross Receipts: $5,673,721
Assets and Liabilities:
- Total Assets: $2,294,462
- Total Liabilities: $1,753,204
- Net Assets: $541,258
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
MEMBERSHIP FEES
Revenue
$1,230,634
CONFERENCE SPONSORSHIP
Revenue
$445,400
EXHIBIT BOOTHS
Revenue
$14,486
Organization Details
Founding Year
2008
Phone
(949) 248-7273Principal Officer
Craig Martin
Main Address
28 ARGONAUT SUITE 150, ALISO VIEJO, CA, 92656
Website
www.globalgenes.orgNTEE Category
Code: G12 - Disease
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