Overview
What is Beyond Batten Disease Foundation?
The Beyond Batten Disease Foundation, headquartered in Austin, Texas, is a dedicated nonprofit organization. Its primary objective is to combat Juvenile Batten Disease, a debilitating condition, by funding and partnering with academic institutions, biotechnology firms, and other relevant entities. Their goal is to accelerate the discovery and development of potential treatments or cures for this disease. The foundation also organizes think-tank conferences and forms unique partnerships to propel Juvenile Batten Disease research forward. Their mission is twofold: to eradicate Juvenile Batten Disease through awareness-raising and fundraising efforts for research, ultimately aiming to find a viable treatment or cure.
Official website here: www.beyondbatten.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 96% (Four-Star out of Four Star Rating)
The Beyond Batten Disease Foundation has received a commendable Four-Star rating from Charity Navigator, reflecting its strong commitment to accountability and finance management. The organization's overall score predominantly stems from its high marks in various categories, particularly in Accountability & Finance, where it achieved a score of 96%. This rating is a strong indicator of the charity's effective governance and fiscal responsibility.
One of the foundation's notable strengths is its fully independent board, consisting of eight members, which underscores its commitment to transparency and ethical oversight. Additionally, the foundation has established robust financial practices, evidenced by its perfect scores in key areas such as audit oversight, conflict of interest policies, and the absence of material asset diversions. Furthermore, a significant portion of its expenses, approximately 74.45%, is directed toward its programs, showcasing its dedication to mission-driven work.
While the foundation excels in fiscal matters, it is essential for potential donors and supporters to consider the overall impact of its programs. The focus on financial accountability is commendable, yet the effectiveness and reach of its initiatives in combating Batten disease would also be crucial to evaluate for a comprehensive understanding of the organization’s impact.
This AI summary has been generated from information found on Charity Navigator.
What do the Facebook reviews say about Beyond Batten Disease Foundation?
100% of 9 reviewers on Facebook recommend the Beyond Batten Disease Foundation. Here is a summary of their reviews:
Supporters emphasize the urgent need for greater awareness about Batten disease, highlighting personal stories that make the cause resonate deeply. One reviewer shared the struggles faced by their young grandson suffering from the condition, noting that many people remain unaware of the disease’s severity and implications.
Overall, there is significant appreciation for the foundation's efforts in raising awareness and providing support to affected families, suggesting that they are fulfilling an essential role in the community. The testimonials reflect a collective hope that increased recognition will lead to better resources and understanding for those impacted by this devastating illness.
This AI summary has been generated from reviews found on Facebook.
Is Beyond Batten Disease Foundation legitimate?
Beyond Batten Disease Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Beyond Batten Disease Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
For more financial information, click here
Official website here: www.beyondbatten.org
What is the mission statement of Beyond Batten Disease Foundation?
The Beyond Batten Disease Foundation is committed to eradicating juvenile Batten disease. They achieve this by raising awareness and securing funds for research aimed at discovering a treatment or cure. The organization accelerates this process by providing financial support and contracting services with academic institutions, biotechnology companies, and other organizations capable of aiding in achieving their goals. Beyond Batten Disease Foundation also spearheads the development of think-tank conferences and unique partnerships to drive research into juvenile Batten disease.
Official website here: www.beyondbatten.org
Who is the CEO of Beyond Batten Disease Foundation?
Mary Beth Kiser is the CEO of Beyond Batten Disease Foundation The CEO's salary of Beyond Batten Disease Foundation is $0 and their total compensation is $0.
Official website here: www.beyondbatten.org
What is the revenue of Beyond Batten Disease Foundation?
Beyond Batten Disease Foundation's revenue in 2024 was $538,315.
Official website here: www.beyondbatten.org
Who are the executives of Beyond Batten Disease Foundation and what are their salaries?
There 400 volunteers at Beyond Batten Disease Foundation.
Here are 8 key members and their salaries (Beyond Batten Disease Foundation's CEO's salary is $0 and their total compensation is $0):
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Official website here: www.beyondbatten.org
Where can I find the form 990 for Beyond Batten Disease Foundation?
Beyond Batten Disease Foundation's most recent form 990 was submitted in 2024 and can be accessed here.
Official website here: www.beyondbatten.org
Learn more at the official website: www.beyondbatten.org
Mission Statement of Beyond Batten Disease Foundation
Beyond Batten Disease Foundation is committed to eradicating juvenile Batten disease. They accomplish this by raising awareness and securing funds for research aimed at discovering a treatment or a cure for this debilitating condition. This mission is carried out by granting funds and contracting services to academic institutions, biotechnology companies, and other organizations with the capacity to aid in achieving their goals. The foundation also plays a significant role in initiating think-tank conferences and establishing unique partnerships to propel juvenile Batten disease research forward. By doing so, Beyond Batten Disease Foundation is actively working towards accelerating the discovery and development of medicines that can prevent, treat, and ultimately cure juvenile Batten disease.
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Impact
October, 2024
The Beyond Batten Disease Foundation plays a crucial role in the fight against juvenile Batten disease by raising awareness and funding for research aimed at finding effective treatments and potential cures. Through strategic partnerships with academic institutions and biotechnology companies, it accelerates the discovery and development of innovative medicines. The foundation actively supports various initiatives, including financing research projects and organizing think-tank conferences that bring together experts in the field. By fostering collaboration and driving research efforts, the foundation significantly contributes to advancing knowledge and treatment options for this debilitating condition, ultimately seeking to eradicate juvenile Batten disease.
This information is meant to be a general summary of Beyond Batten Disease Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2024.
- Investment Income: $71,386
- Gross Receipts: $621,335
Assets and Liabilities:
- Total Assets: $3,581,583
- Total Liabilities: $220,016
- Net Assets: $3,361,567
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Organization Details
Founding Year
2008
Principal Officer
Mary Beth Kiser
Website
www.beyondbatten.orgNTEE Category
Code: B90 - Education
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