Overview
What is Foundation For Angelman Syndrome Therapeutics?
The Foundation For Angelman Syndrome Therapeutics (FAST) is a nonprofit organization, based in Austin, Texas, dedicated to discovering a cure for Angelman Syndrome (AS) and related disorders. FAST achieves this mission through an aggressive research agenda, education, awareness, and advocacy efforts. Angelman Syndrome is a neurodevelopmental disorder characterized by global developmental delays and severe speech impairment, with some individuals developing functional speech but most communicating through a mix of gestures, eye gaze, sign language, and augmentative communication devices. FAST, comprised of families and professionals, aims to assist individuals living with AS to reach their full potential and improve their quality of life. The organization funds research at universities and supports an active community of individuals and families affected by AS. FAST's team, consisting of eight employees, is committed to finding effective treatments and ultimately a cure for AS.
Official website here: www.cureangelman.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 98% - Four-Star out of Four Star rating from Charity Navigator.
The Foundation for Angelman Syndrome Therapeutics (FAST) has earned a commendable Four-Star rating from Charity Navigator, reflecting its strong commitment to accountability and effective financial management. With a perfect score of 100 in Accountability & Finance, the organization demonstrates that nearly all donations go directly to research for a cure for Angelman Syndrome, showcasing efficient use of resources. The organization is fully staffed by volunteers, which further strengthens its financial integrity.
User feedback highlights the foundation's vital role in providing hope and community support to families affected by Angelman Syndrome. Many testimonials express gratitude for the organization’s unwavering dedication to funding research and creating a supportive network for parents, caregivers, and individuals with the condition. Reviewers frequently mention the transformative impact of FAST's work, particularly the ongoing clinical trials that offer real prospects for breakthroughs in treatment.
Despite the overwhelmingly positive reviews, some aspects of organizational leadership and adaptability scored lower, reflecting potential areas for improvement. However, the overall sentiment from users underscores a strong belief in FAST's mission and its effectiveness in the Angelman community. The foundation's commitment to transparency and proactive approaches in fostering community engagement remain clear strengths.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is Foundation For Angelman Syndrome Therapeutics legitimate?
Foundation For Angelman Syndrome Therapeutics is a legitimate nonprofit organization registered as a 501(c)(3) entity. Foundation For Angelman Syndrome Therapeutics submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $592,813
Professional Fundraising Fees: $0
Other Salaries and Wages: $781,826
For more financial information, click here
Official website here: www.cureangelman.org
What is the mission statement of Foundation For Angelman Syndrome Therapeutics?
The Foundation for Angelman Syndrome Therapeutics (FAST) is a nonprofit organization focused on finding a cure for Angelman Syndrome (AS) and related disorders through an aggressive research agenda, education, awareness, and advocacy. This neurodevelopmental disorder is characterized by global development delays and severe speech impairment, with most individuals communicating through a combination of gestures, eye gaze, sign language, and communication devices. Individuals with AS exhibit developmental delays and intellectual disabilities due to neuronal impairment, which affects their ability to learn at the same pace as their peers. FAST, an organization comprised of families and professionals, is dedicated to helping individuals with AS realize their full potential and improve their quality of life. They fund research, provide education and advocacy, and offer community support to assist those affected by this condition.
Official website here: www.cureangelman.org
Who is the CEO of Foundation For Angelman Syndrome Therapeutics?
Alana Newhouse is the CEO of Foundation For Angelman Syndrome Therapeutics The CEO's salary of Foundation For Angelman Syndrome Therapeutics is $177,800 and their total compensation is $177,800.
Official website here: www.cureangelman.org
What is the revenue of Foundation For Angelman Syndrome Therapeutics?
Foundation For Angelman Syndrome Therapeutics's revenue in 2023 was $6,525,815.
Official website here: www.cureangelman.org
Who are the executives of Foundation For Angelman Syndrome Therapeutics and what are their salaries?
The average compensation at Foundation For Angelman Syndrome Therapeutics during 2023 was $152,738. There are 9 employees and 291 volunteers at Foundation For Angelman Syndrome Therapeutics.
Here are 16 key members and their salaries (Foundation For Angelman Syndrome Therapeutics's CEO's salary is $177,800 and their total compensation is $177,800):
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Official website here: www.cureangelman.org
Where can I find the form 990 for Foundation For Angelman Syndrome Therapeutics?
Foundation For Angelman Syndrome Therapeutics's most recent form 990 was submitted in 2023 and can be accessed here.
Official website here: www.cureangelman.org
Learn more at the official website: www.cureangelman.org
Mission Statement of Foundation For Angelman Syndrome Therapeutics
The Foundation For Angelman Syndrome Therapeutics (FAST) is a dedicated organization comprised of families and professionals, working together to find a cure for Angelman Syndrome (AS) and related disorders. In simple terms, FAST's mission is to aggressively fund research, provide education, advocate for those affected, and offer community support in the quest to overcome this neurodevelopmental disorder.
Angelman Syndrome is characterized by global development delays and severe speech impairment. People with AS typically communicate using a combination of gestures, eye gaze, adapted sign language, and augmentative communication devices. They experience developmental delays and intellectual disabilities, and current research suggests that while neuronal development occurs correctly, neuronal functioning is impaired. This neuronal impairment affects an individual's ability to learn, as skills are acquired more slowly than in age-matched peers.
FAST is committed to helping individuals with AS realize their full potential and improve their quality of life. By funding an aggressive research agenda, the organization is working tirelessly to find a cure for AS and related disorders. FAST's efforts extend beyond research, as they also provide education and awareness to increase understanding and support for those affected. The organization's advocacy and community support initiatives aim to ensure that individuals with AS and their families have access to the resources and opportunities they need to thrive.
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Impact
October, 2024
The Foundation for Angelman Syndrome Therapeutics (FAST) significantly impacts the lives of individuals with Angelman Syndrome (AS) and their families by advancing research aimed at finding a cure for this neurodevelopmental disorder. Through an aggressive funding agenda, FAST provides grants to universities and research institutions, facilitating critical studies that explore the underlying mechanisms of AS and develop potential therapies.
Their efforts are not limited to research; they also engage in education and advocacy to raise awareness about AS. By promoting understanding of the disorder, FAST helps to foster a supportive environment for individuals with AS, enabling them to communicate effectively using alternative methods, such as gestures and augmented communication devices.
Moreover, FAST creates a community of families and professionals dedicated to enhancing the quality of life for those affected by AS, ensuring they receive the support needed to realize their full potential. This multi-faceted approach not only propels scientific inquiry but also empowers individuals and their families, making a tangible difference in their everyday lives.
This information is meant to be a general summary of Foundation For Angelman Syndrome Therapeutics. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2023.
- Investment Income: $1,969,313
- Program Service Revenue: $355,507
- Gross Receipts: $13,604,418
Assets and Liabilities:
- Total Assets: $63,075,354
- Total Liabilities: $7,259,713
- Net Assets: $55,815,641
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
LICENSING REVENUE
Revenue
$355,507
Organization Details
Founding Year
2008
Principal Officer
Ryan Jacob
Website
www.cureangelman.orgNTEE Category
Code: H12 - Medical research
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