Overview
What is National Pku Alliance Inc?
National Pku Alliance Inc, based in New York City, is a dedicated nonprofit organization with a mission to enhance the lives of individuals living with Phenylketonuria (PKU) and work towards finding a cure. They accomplish this by investing in peer-reviewed and targeted research projects, aiming to advance PKU treatment and ultimately discover a cure. The organization offers education and support to individuals affected by PKU, serving as a national voice for advocacy at the federal level. Their board comprises leaders from local organizations across the nation, as well as representatives from the academic medical community and industry. With a team of eight employees, National Pku Alliance Inc is committed to expanding PKU research and accelerating the timeline for a cure.
Official website here: www.npkua.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 96%
The National PKU Alliance Inc has achieved a Four-Star out of Four Star rating from Charity Navigator, reflecting exceptional performance in accountability and finance. With a score of 93% in this category, the organization demonstrates a strong commitment to transparency, including 100% independent board members and well-maintained financial oversight policies. The program expense ratio of 70.42% indicates that a substantial portion of funds is directed towards its mission-related activities.
User feedback from Great Nonprofits emphasizes the profound impact the organization has on families affected by PKU. One reviewer shared a personal narrative underscoring the support and resources provided by the National PKU Alliance during a challenging diagnosis. This highlights the charity's role not only in raising awareness but also in fostering a community for those navigating the complexities of managing this rare genetic disorder.
While the organization enjoys high praise for its financial integrity and community engagement, continuous feedback indicates that it remains responsive to the needs of those it serves. This responsiveness, coupled with its strong structural governance, solidifies the National PKU Alliance as a reliable resource for families impacted by PKU.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is National Pku Alliance Inc legitimate?
National Pku Alliance Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. National Pku Alliance Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $179,780
Professional Fundraising Fees: $0
Other Salaries and Wages: $278,720
For more financial information, click here
Official website here: www.npkua.org
What is the mission statement of National Pku Alliance Inc?
The National Pku Alliance Inc, abbreviated as NPKUA, is committed to bettering the lives of individuals with PKU and working towards a cure. They achieve this by investing in peer-reviewed and targeted research to accelerate the timeline for a cure. The organization provides education and support to people living with PKU, serving as a vital resource for them. In addition to its research and support efforts, NPKUA advocates for PKU at the federal level, acting as a national voice in this regard. The alliance's board of directors comprises leaders from local organizations across the nation, as well as representatives from the academic medical community and industry.
Official website here: www.npkua.org
Who is the CEO of National Pku Alliance Inc?
Jerry Elkins is the President of National Pku Alliance Inc.
Official website here: www.npkua.org
What is the revenue of National Pku Alliance Inc?
National Pku Alliance Inc's revenue in 2022 was $2,213,963.
Official website here: www.npkua.org
Who are the executives of National Pku Alliance Inc and what are their salaries?
The average compensation at National Pku Alliance Inc during 2022 was $57,312. There are 8 employees and 150 volunteers at National Pku Alliance Inc.
Here are 16 key members and their salaries:
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Official website here: www.npkua.org
Where can I find the form 990 for National Pku Alliance Inc?
National Pku Alliance Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.npkua.org
Learn more at the official website: www.npkua.org
Mission Statement of National Pku Alliance Inc
The National Pku Alliance Inc, as an organization, is dedicated to enhancing the lives of individuals affected by PKU and strives towards discovering a cure. The Alliance, commonly known as NPKUA, invests in peer-reviewed and targeted research with the aim of accelerating the timeline for a cure. This commitment to scientific advancement is a critical part of their mission.
Beyond research, NPKUA provides education and support to those living with PKU. This involves equipping individuals with the knowledge they need to manage their condition effectively. The Alliance serves as a national advocate for PKU at the federal level, ensuring that the voices of those affected by the condition are heard in policy discussions.
The leadership of NPKUA includes representatives from local organizations across the nation, as well as experts from the academic medical community and industry. This diverse board brings a wealth of experience and expertise to the table, enabling the Alliance to make a significant impact in the field of PKU research and advocacy.
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Impact
October, 2024
The National PKU Alliance Inc significantly enhances the quality of life for individuals with Phenylketonuria (PKU) through a multifaceted approach. By investing over $435,718 into research projects, the organization actively contributes to the development of innovative treatments and strives to find a cure for PKU.
The Alliance plays a crucial role in expanding research initiatives and accelerating the timeline for breakthroughs in PKU treatments. By funding peer-reviewed studies, it ensures that the research is credible and impactful, addressing the pressing needs of the PKU community.
In addition to research funding, the National PKU Alliance is a vital source of education and support for those living with PKU. Through its initiatives, it empowers individuals and their families with the knowledge they need to manage the condition effectively.
Furthermore, the organization serves as a national advocacy voice, representing the interests of those affected by PKU at the federal level. With a board composed of leaders from local organizations and experts from the medical and industry sectors, the Alliance is positioned to influence policies and drive systemic changes that benefit the PKU community. Overall, the National PKU Alliance is dedicated to improving lives, advancing research, and fostering a collective drive toward a cure for PKU.
This information is meant to be a general summary of National Pku Alliance Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $32,422
- Program Service Revenue: $44,989
- Gross Receipts: $4,158,234
Assets and Liabilities:
- Total Assets: $4,987,467
- Total Liabilities: $66,532
- Net Assets: $4,920,935
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
CONFERENCE FEES
Revenue
$44,989
Organization Details
Founding Year
2008
Phone
(516) 443-5820Principal Officer
Jerry Elkins
Main Address
945 LEXINGTON AVENUE 269, NEW YORK, NY, 10021
Website
www.npkua.orgNTEE Category
Code: H25 - Medical research
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