Overview
What is Lgs Foundation Inc?
Lgs Foundation Inc, formally known as the Lennox-Gastaut Syndrome (LGS) Foundation, is a compassionate nonprofit organization situated in San Diego, California. With a mission to enhance the lives of those affected by Lennox-Gastaut Syndrome (LGS), the foundation offers various support services. These include patient navigation, family assistance, biennial conferences, and an extensive online community, reaching over 101,000 members in 2022. Their efforts extend internationally, with 51 ambassadors and family navigators in 7 countries. In 2022 alone, they welcomed 784 new members and provided aid to numerous grieving families. The foundation's work encompasses research, awareness, education, and support, aiming to lessen the challenges faced by individuals and families dealing with LGS.
Official website here: www.lgsfoundation.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 90% (Four-Star out of Four Stars)
The LGS Foundation Inc has received an impressive Four-Star rating from Charity Navigator, reflecting its strong commitment to accountability and financial health. With scores of 88 in Accountability & Finance and 91 in Culture & Community, the foundation demonstrates a solid organizational structure supported by 100% independent board members. However, it's worth noting that while the foundation has a whistleblower policy and a document retention policy that are currently missing, it maintains high standards in other areas, such as conflict of interest policies and regularly collecting feedback from constituents.
User feedback highlights the LGS Foundation's significant impact on families affected by Lennox-Gastaut Syndrome (LGS). Many reviews express deep gratitude for the support and resources provided, emphasizing the importance of community and shared experiences in navigating the challenges of LGS. Clients have reported that the foundation not only aids in practical matters, such as understanding the diagnosis and finding treatment options but also fosters emotional connections that help families feel less isolated.
Despite the few noted limitations in policy documentation, the overwhelming consensus among users is that the LGS Foundation is a vital resource for families facing LGS. The foundation’s commitment to advocacy, research funding, and family support has been praised, making it a beacon of hope for many. Overall, the foundation is recognized for its dedication to improving lives and its effectiveness in supporting individuals and families impacted by this rare condition.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is Lgs Foundation Inc legitimate?
Lgs Foundation Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Lgs Foundation Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $129,150
Professional Fundraising Fees: $0
Other Salaries and Wages: $393,585
For more financial information, click here
Official website here: www.lgsfoundation.org
What is the mission statement of Lgs Foundation Inc?
The LGS Foundation, a nonprofit organization, is committed to enhancing the lives of individuals affected by Lennox-Gastaut Syndrome (LGS). This is achieved by fostering research advancements, raising awareness, providing education, and offering family support. The foundation's mission is to serve as a trusted resource for families, offering patient navigator services and emotional support. They host biennial conferences to bring together the LGS community, including patients, families, researchers, clinicians, and professionals. The foundation's online community has grown significantly, reaching over 101,000 members in 2022, and provides a supportive space through a private Facebook group. In addition, the LGS Foundation has ambassadors and family navigators in various countries to assist local families and has funded patient assistance to provide necessary equipment and items to families in need.
Official website here: www.lgsfoundation.org
Who is the CEO of Lgs Foundation Inc?
Tracy Dixon-Salazar Phd is the Executive Director of Lgs Foundation Inc.
Official website here: www.lgsfoundation.org
What is the revenue of Lgs Foundation Inc?
Lgs Foundation Inc's revenue in 2022 was $1,363,205.
Official website here: www.lgsfoundation.org
Who are the executives of Lgs Foundation Inc and what are their salaries?
The average compensation at Lgs Foundation Inc during 2022 was $65,342. There are 8 employees and 150 volunteers at Lgs Foundation Inc.
Here are 8 key members and their salaries:
- Compensation: $129,150
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- Other: $0
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Official website here: www.lgsfoundation.org
Where can I find the form 990 for Lgs Foundation Inc?
Lgs Foundation Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.lgsfoundation.org
Learn more at the official website: www.lgsfoundation.org
Mission Statement of Lgs Foundation Inc
The LGS Foundation, a nonprofit organization, is committed to enhancing the lives of individuals affected by Lennox-Gastaut Syndrome (LGS). This is accomplished through several avenues: advancing research, increasing awareness, promoting education, and offering family support. The primary goal of the LGS Foundation is to improve the quality of life for those living with this condition, providing them with the resources and assistance they need to navigate their journey.
The organization recognizes that receiving a diagnosis of LGS can be overwhelming, leaving families with numerous unanswered questions. To address this, the LGS Foundation offers patient navigator and family support services, ensuring that no one has to face this challenge alone. The foundation also hosts a biennial professional and family conference, bringing together patients, families, caregivers, researchers, clinicians, and other professionals to create a united community.
In addition to these initiatives, the LGS Foundation has an extensive online presence, with over 101,000 members across various platforms in 2022. They also maintain a private Facebook support group with over 6,200 members. The organization also boasts a network of 51 ambassadors and family navigators in 7 countries, providing local support to families navigating the LGS journey. In 2022, the LGS Foundation welcomed over 784 new members and distributed over 500 New Family Welcome Kits to help families get started on their LGS journey. Moreover, the foundation has provided financial assistance to bereaved families who have lost loved ones to LGS, offering much-needed support during their time of grief.
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Impact
October, 2024
LGS Foundation Inc has a significant impact on the lives of individuals and families affected by Lennox-Gastaut Syndrome (LGS). By providing vital resources and support, the foundation addresses the overwhelming challenges that arise from an LGS diagnosis. Families benefit from patient navigation services, ensuring they are not alone as they face this complex journey.
The foundation fosters community and connection through a biennial professional and family conference, uniting patients, caregivers, researchers, and clinicians. Their growing online community of over 101,000 members and a dedicated private support group help individuals share experiences and find solace in each other. With 51 ambassadors and family navigators across seven countries, they extend localized support to families wherever they are.
In 2022 alone, the LGS Foundation welcomed 784 new members and distributed over 500 New Family Welcome Kits, providing essential information and resources. They offer crucial assistance to bereaved families and have allocated over $100,000 to support families with necessary medical equipment. Overall, the LGS Foundation plays a transformative role in raising awareness, advancing research, and enhancing the wellbeing of those impacted by LGS.
This information is meant to be a general summary of Lgs Foundation Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $190
- Program Service Revenue: $182,895
- Gross Receipts: $1,363,205
Assets and Liabilities:
- Total Assets: $1,598,197
- Total Liabilities: $382,191
- Net Assets: $1,216,006
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
Registration
Revenue
$159,161
Contracts
Revenue
$23,734
Organization Details
Founding Year
2008
Principal Officer
Tracy Dixon-Salazar Phd
Main Address
6030 Santo Road STE 1 STE 420878, San Diego, CA, 92142
Website
www.lgsfoundation.orgNTEE Category
Code: G80 - Disease
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