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New York City Hemophilia Chapter Inc

Learn about this cause: What are the reviews? Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 261915425 ✦ New york, NY ✦ Designated as a 501(c)(3)

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Overview

What is New York City Hemophilia Chapter Inc?

New York City Hemophilia Chapter Inc, established as a not-for-profit 501(c)(3) organization in 2009, serves the bleeding disorders community within the Greater New York City area. Their mission is to foster a sense of community, promote education, and advance research, aiming to improve the well-being of individuals affected by these disorders. They achieve this through various activities, such as their annual Hemophilia Walk that attracts thousands and raises awareness within and beyond the community. The chapter also offers a platform for information, education, advocacy, shared experiences, and community support.


Official website here: www.nyhemophilia.org

What are the reviews and ratings of this charity?

Charity Navigator Rating: Needs Improvement - Two-Star out of Four Star rating (73%)

The New York City Hemophilia Chapter Inc has received a two-star rating from Charity Navigator, indicating that while there are some positive aspects, there are also significant areas needing improvement. The organization has a strong accountability and finance score of 73%, with notable strengths such as having 100% independent board members and a low liabilities to assets ratio of 8.81%. Additionally, the program expense ratio stands at a commendable 70.59%, suggesting a good focus on its mission-related activities.

However, the organization faces critical weaknesses, particularly in transparency and governance practices. The lack of financial statements and missing policies for whistleblowers and document retention indicate areas where the organization could improve its accountability and operational integrity. Furthermore, the absence of the tax form on the nonprofit's website raises concerns regarding transparency for potential donors and stakeholders.

Overall, while the New York City Hemophilia Chapter Inc demonstrates some effective governance structures, the gaps in financial transparency and policy documentation highlight the need for improvement to enhance donor confidence and operational effectiveness.


This AI summary has been generated from information found on Charity Navigator.

What do the Facebook reviews say about New York City Hemophilia Chapter Inc?

92% of reviewers recommend the New York City Hemophilia Chapter Inc based on their experiences. Here is a summary of their reviews:

Many individuals express immense gratitude for the organization, with one reviewer stating they would give it "10 stars" if possible, highlighting the remarkable impact it has on the community it serves. Reviewers appreciate the support and resources provided for those affected by hemophilia and other bleeding disorders.

Overall, the sentiment about this nonprofit is overwhelmingly positive. It appears that the chapter successfully fulfills its mission, earning the trust and appreciation of those who benefit from its services.


This AI summary has been generated from reviews found on Facebook.

Is New York City Hemophilia Chapter Inc legitimate?

New York City Hemophilia Chapter Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. New York City Hemophilia Chapter Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $254,204

For more financial information, click here


Official website here: www.nyhemophilia.org

What is the mission statement of New York City Hemophilia Chapter Inc?

The New York City Hemophilia Chapter (NYCHC) is a non-profit organization established in 2009, dedicated to supporting individuals and families affected by bleeding disorders. Their mission is to foster a sense of community among these individuals, providing them with essential information, education, and advocacy. Through various activities, NYCHC aims to expand research, increase knowledge, and improve the overall well-being of those affected. One of their notable initiatives is the annual Hemophilia Walk, which raises awareness of bleeding disorders within and beyond the community.


Official website here: www.nyhemophilia.org

Who is the CEO of New York City Hemophilia Chapter Inc?

Dr Regina Legere-Buccell is the Principal Officer of New York City Hemophilia Chapter Inc.


Official website here: www.nyhemophilia.org

What is the revenue of New York City Hemophilia Chapter Inc?

New York City Hemophilia Chapter Inc's revenue in 2022 was $561,944.


Official website here: www.nyhemophilia.org

Who are the executives of New York City Hemophilia Chapter Inc and what are their salaries?

The average compensation at New York City Hemophilia Chapter Inc during 2022 was $63,551. There are 4 employees at New York City Hemophilia Chapter Inc.


Here are 10 key members and their salaries:


Brian Dixon (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Alice Arapshian (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Alan Neaigus (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Kurt Wiesenmaier (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Daniella Marcelli (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Dr Regina Legere-Buccellato (President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Erin Cirelli (Vice President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Elizabeth Cedeno (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Julia Golier (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jeremy Griffin (Executive Director)
  • Compensation: $150,000
  • Related: $0
  • Other: $0


Official website here: www.nyhemophilia.org

Where can I find the form 990 for New York City Hemophilia Chapter Inc?

New York City Hemophilia Chapter Inc's most recent form 990 was submitted in 2022 and can be accessed here.


Official website here: www.nyhemophilia.org

Learn more at the official website: www.nyhemophilia.org

Mission Statement of New York City Hemophilia Chapter Inc

The New York City Hemophilia Chapter, a not-for-profit organization established in 2009, is dedicated to addressing the needs of individuals and families affected by bleeding disorders in the Greater New York City area. Their mission is multifaceted, encompassing the fostering of a sense of community among those affected. This is achieved through a range of activities designed to educate, inform, and expand research and knowledge about bleeding disorders. The organization's primary goal is to improve the well-being of these individuals, thereby fostering a supportive environment for them.

One of the key ways the New York City Hemophilia Chapter accomplishes its mission is through its annual Hemophilia Walk. This event attracts a large number of participants, both within and outside the community, raising awareness about bleeding disorders. By organizing such events, the organization plays a significant role in promoting understanding and support for individuals and families affected by these conditions. The New York City Hemophilia Chapter's mission is a testament to its commitment to improving the lives of those in its community, providing them with the information, education, and advocacy they need to navigate their challenges.

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Impact




July, 2024

New York City Hemophilia Chapter Inc's impact is significant in fostering a sense of community among individuals affected by bleeding disorders in the Greater New York City area. Through various activities focused on education, information sharing, advocacy, and community support, NYCHC works to improve the well-being of those impacted by these disorders. The organization's annual Hemophilia Walk, which attracts thousands of participants, plays a crucial role in raising awareness about bleeding disorders within and beyond the community. NYCHC's efforts contribute to enhancing the quality of life and support network available to individuals and families dealing with these conditions.




This information is meant to be a general summary of New York City Hemophilia Chapter Inc. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$561,944 (2022)
Expenses
$688,892 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $396
  • Program Service Revenue: $308,832
  • Gross Receipts: $561,944

Assets and Liabilities:

  • Total Assets: $374,289
  • Total Liabilities: $43,213
  • Net Assets: $331,076

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Programs

Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.

OTHER PROGRAM SERVICE

Revenue

$237,766

NEWSLETTER ADVERTISING

Revenue

$31,690

ADVOCACY

Revenue

$26,095

Organization Details

Founding Year

2008

Principal Officer

Dr Regina Legere-Buccell

Main Address

500 7TH AVENUE MAILROOM 8A, NEW YORK, NY, 10018

NTEE Category

Code: G194 - Disease

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