Overview
What is New Jersey Rett Syndrome Associatio?
The New Jersey Rett Syndrome Association is a nonprofit organization situated in Freehold, New Jersey. Their primary mission is to foster public comprehension of Rett Syndrome, a neurological disorder, and its aspects. They aim to reduce the associated stigma by educating the community about Rett Syndrome as a medical condition and a public health concern. Additionally, the organization engages in research to deepen the understanding of Rett Syndrome and its treatment. Their work is instrumental in maintaining a supportive network for individuals and families affected by this disorder.
Official website here: www.njrsa.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 56%, One-Star out of Four Stars
The New Jersey Rett Syndrome Association has received a One-Star rating from Charity Navigator, indicating significant areas for improvement in accountability and finance. The organization scored 56% overall, with particular weaknesses noted in governance practices, such as lacking a conflict of interest policy, whistleblower policy, and a document retention policy. While the organization has no material diversion of assets and boasts a solid program expense ratio of 91.85%, there are concerns regarding its board independence, as it has no independent members.
Despite the governance issues, the organization demonstrates fiscal responsibility with a favorable liabilities to assets ratio of 0.00%, which suggests it does not have significant debt. The presence of meeting minutes indicates some level of operational transparency, but the absence of critical documents like the tax form on their website raises questions about accessibility and transparency.
Overall, while the New Jersey Rett Syndrome Association effectively directs a high percentage of its expenses toward programs, the lack of independent oversight and missing governance policies can undermine public trust. Addressing these limitations could enhance its accountability and improve its overall rating in the future.
This AI summary has been generated from information found on Charity Navigator.
Is New Jersey Rett Syndrome Associatio legitimate?
New Jersey Rett Syndrome Associatio is a legitimate nonprofit organization registered as a 501(c)(3) entity. New Jersey Rett Syndrome Associatio submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
For more financial information, click here
Official website here: www.njrsa.org
What is the mission statement of New Jersey Rett Syndrome Associatio?
The New Jersey Rett Syndrome Association's mission is centered around increasing public awareness and understanding of Rett Syndrome, its nature, and available treatments. They aim to reduce the stigma associated with this disease by educating the community about it as a health issue. Furthermore, the organization conducts research on Rett Syndrome and works to maintain a supportive network for those affected by the condition.
Official website here: www.njrsa.org
Who is the CEO of New Jersey Rett Syndrome Associatio?
Robin Diamond is the Trustee of New Jersey Rett Syndrome Associatio.
Official website here: www.njrsa.org
What is the revenue of New Jersey Rett Syndrome Associatio?
New Jersey Rett Syndrome Associatio's revenue in 2022 was $56,958.
Official website here: www.njrsa.org
Who are the executives of New Jersey Rett Syndrome Associatio and what are their salaries?
Here are 6 key members and their salaries:
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
Official website here: www.njrsa.org
Where can I find the form 990 for New Jersey Rett Syndrome Associatio?
New Jersey Rett Syndrome Associatio's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.njrsa.org
Learn more at the official website: www.njrsa.org
Mission Statement of New Jersey Rett Syndrome Associatio
The New Jersey Rett Syndrome Association aims to foster public comprehension of Rett Syndrome, encompassing its characteristics and treatment. By undertaking educational initiatives, the organization strives to diminish the stigma surrounding the disease, positioning it as a significant health concern for the community. Furthermore, the association conducts research on Rett Syndrome to advance our understanding of this neurological disorder. The ultimate goal is to establish and maintain a strong foundation of knowledge about Rett Syndrome, thereby contributing to its broader recognition as a public health issue.
Shop smarter and support your favorite cause with the Give Freely browser extension. Save money with coupons and donate to charity with a single click. Download now!
Impact
August, 2024
The impact of the New Jersey Rett Syndrome Association is to increase public understanding of Rett syndrome, its nature, and treatment. They also focus on researching Rett syndrome to reduce stigma through community education. Additionally, the organization maintains a focus on Rett syndrome as a disease and public health issue. Their efforts contribute to raising awareness, promoting education, and supporting research in the field of Rett syndrome.
This information is meant to be a general summary of New Jersey Rett Syndrome Associatio. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Gross Receipts: $56,958
Assets and Liabilities:
- Total Assets: $63,418
- Total Liabilities: $0
- Net Assets: $63,418
Want to help this charity, for free? You can click here to learn more about Give Freely
Organization Details
Founding Year
2007
Phone
(908) 204-0106Principal Officer
Robin Diamond
Main Address
417 BRICKYARD ROAD, FREEHOLD, NJ, 07728
Website
www.njrsa.orgNTEE Category
Code: H80 - Medical research
If you are a representative of New Jersey Rett Syndrome Associatio and wish to learn more about how Give Freely can help you raise funds, please click here: https://givefreely.com/nonprofits/. Our services are offered at no cost to your organization.