Overview
What is Bobby Jones Chiari & Syringomyelia Foundation?
Bobby Jones Chiari & Syringomyelia Foundation is a small-scale, nonprofit organization based in Staten Island, New York, with five dedicated employees. Their mission is twofold: to expand knowledge about Chiari malformation, Syringomyelia, and related disorders through research and to educate both the medical community and the general public about these conditions. They achieve this goal by organizing various fundraising events and disseminating information through educational DVDs and talks from specialists in the field. The foundation's activities are aimed at increasing awareness and fostering a better understanding of these complex neurological conditions.
Official website here: www.bobbyjonescsf.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 97%
The Bobby Jones Chiari & Syringomyelia Foundation has achieved an impressive 97% rating from Charity Navigator, reflecting its strong commitment to accountability and financial health. This rating indicates exceptional management practices, with a perfect score in leadership and adaptability. The foundation maintains 100% independent board membership, ensuring that decisions are made without conflicts of interest, which contributes to a high level of trust and integrity within the organization.
User feedback consistently highlights the foundation's profound impact on individuals and families dealing with Chiari malformation and related disorders. Clients express gratitude for the educational resources, support groups, and advocacy opportunities the foundation provides, which have been instrumental in navigating their medical journeys. Volunteers also emphasize the strong sense of community fostered by the organization, as it connects patients and families through shared experiences and mutual support.
While the feedback is overwhelmingly positive, a few concerns regarding the spread of information can be noted from isolated reviews. Despite this, the overall sentiment reflects a deep appreciation for the foundation's role in raising awareness, funding research, and providing crucial resources for those affected by Chiari and syringomyelia. The Bobby Jones Foundation is widely regarded as a valuable ally for patients, families, and medical professionals in this complex field.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
What do the Facebook reviews say about Bobby Jones Chiari & Syringomyelia Foundation?
98% of 13 reviewers on Facebook recommend the Bobby Jones Chiari & Syringomyelia Foundation. Here is a summary of their reviews:
Many users express appreciation for the valuable information provided by the foundation, noting that the communication is effective and supportive. Reviewers highlight the importance of the resources available for individuals affected by Chiari malformation and syringomyelia, indicating that the foundation fulfills its mission in raising awareness and offering assistance.
Overall, the sentiment is overwhelmingly positive, with supporters feeling that the organization actively contributes to a better understanding of these conditions and provides a welcoming space for those seeking help and information.
This AI summary has been generated from reviews found on Facebook.
Is Bobby Jones Chiari & Syringomyelia Foundation legitimate?
Bobby Jones Chiari & Syringomyelia Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Bobby Jones Chiari & Syringomyelia Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $135,489
Professional Fundraising Fees: $0
Other Salaries and Wages: $245,004
For more financial information, click here
Official website here: www.bobbyjonescsf.org
What is the mission statement of Bobby Jones Chiari & Syringomyelia Foundation?
The Bobby Jones Chiari & Syringomyelia Foundation's mission is centered around advancing knowledge in the field through research and education. Their primary goal is to enlighten the medical, allied sciences, and lay community about Chiari malformation, syringomyelia, and related disorders. They achieve this by organizing various fundraising events, where donations are collected for future research and awareness campaigns. These events involve educating the public on these conditions through resources like educational DVDs and guest speakers.
Official website here: www.bobbyjonescsf.org
Who is the CEO of Bobby Jones Chiari & Syringomyelia Foundation?
Dorothy Poppe is the Chairman, Bd Of Directors of Bobby Jones Chiari & Syringomyelia Foundation.
Official website here: www.bobbyjonescsf.org
What is the revenue of Bobby Jones Chiari & Syringomyelia Foundation?
Bobby Jones Chiari & Syringomyelia Foundation's revenue in 2022 was $769,207.
Official website here: www.bobbyjonescsf.org
Who are the executives of Bobby Jones Chiari & Syringomyelia Foundation and what are their salaries?
The average compensation at Bobby Jones Chiari & Syringomyelia Foundation during 2022 was $76,099. There are 5 employees and 150 volunteers at Bobby Jones Chiari & Syringomyelia Foundation.
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Official website here: www.bobbyjonescsf.org
Where can I find the form 990 for Bobby Jones Chiari & Syringomyelia Foundation?
Bobby Jones Chiari & Syringomyelia Foundation's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.bobbyjonescsf.org
Learn more at the official website: www.bobbyjonescsf.org
Mission Statement of Bobby Jones Chiari & Syringomyelia Foundation
The Bobby Jones Chiari & Syringomyelia Foundation is dedicated to advancing knowledge in the field of Chiari malformation, syringomyelia, and related disorders. This nonprofit organization achieves its mission by conducting research and educating both the medical and lay communities about these conditions. Through various fundraising events, the foundation raises funds for future research and awareness initiatives. These events often involve educational outreach, such as distributing informative DVDs and inviting speakers to share their expertise on Chiari malformation, syringomyelia, and related disorders. The Bobby Jones Chiari & Syringomyelia Foundation's mission is essential in bridging the gap between medical professionals, allied sciences, and the general public, ultimately contributing to a better understanding and management of these complex conditions.
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Impact
October, 2024
The Bobby Jones Chiari & Syringomyelia Foundation has made a significant impact by advancing knowledge and raising awareness about Chiari malformation, syringomyelia, and related disorders. Through various fundraising events, the foundation has successfully generated funds dedicated to future research, ensuring that critical studies continue to explore these complex conditions.
Educational initiatives are a core focus, utilizing resources like DVDs and engaging speakers to inform both the medical community and the general public. This commitment to education not only helps in spreading awareness but also empowers individuals affected by these disorders, fostering a better understanding of their conditions. By connecting patients, caregivers, and medical professionals, the foundation has cultivated a supportive network that enhances the overall dialogue about diagnosis, treatment options, and patient care.
Overall, the foundation’s efforts have contributed to a broader recognition of Chiari malformation and syringomyelia, influencing how these conditions are perceived and managed within both healthcare settings and the community at large.
This information is meant to be a general summary of Bobby Jones Chiari & Syringomyelia Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $11,119
- Gross Receipts: $769,207
Assets and Liabilities:
- Total Assets: $885,796
- Total Liabilities: $89,430
- Net Assets: $796,366
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Organization Details
Founding Year
2007
Phone
(718) 966-2593Principal Officer
Dorothy Poppe
Main Address
29 CREST LOOP, STATEN ISLAND, NY, 10312
Website
www.bobbyjonescsf.orgNTEE Category
Code: G96 - Disease
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