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Lymphangiomatosis & Gorhams Disease Alliance Inc

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 261224181 ✦ Saint petersburg, FL ✦ Designated as a 501(c)(3)

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Overview

What is Lymphangiomatosis & Gorhams Disease Alliance Inc?

Lymphangiomatosis & Gorhams Disease Alliance Inc is a nonprofit organization dedicated to supporting individuals affected by complex lymphatic anomalies on a global scale. Their mission encompasses providing essential resources, funding research, and spreading awareness about these conditions. By doing so, they aim to improve the lives of those affected and contribute to the medical community's understanding of these rare diseases.


Official website here: www.ldgalliance.org

Is Lymphangiomatosis & Gorhams Disease Alliance Inc legitimate?

Lymphangiomatosis & Gorhams Disease Alliance Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Lymphangiomatosis & Gorhams Disease Alliance Inc submitted a form 990EZ, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Official website here: www.ldgalliance.org

What is the mission statement of Lymphangiomatosis & Gorhams Disease Alliance Inc?

The Lymphangiomatosis & Gorhams Disease Alliance Inc is committed to serving globally, offering support to patients, funding research, and increasing awareness for complex lymphatic anomalies. Its mission, expressed in third person, is geared towards providing a platform that assists individuals affected by these conditions, advances scientific understanding through funding, and fosters a broader understanding of these rare diseases. The organization's activities are centered around offering patient support, financially backing research, and advocating for elevated awareness of lymphangiomatosis and Gorhams Disease.


Official website here: www.ldgalliance.org

Who is the CEO of Lymphangiomatosis & Gorhams Disease Alliance Inc?

Michael Kelly is the Executive Director of Lymphangiomatosis & Gorhams Disease Alliance Inc.


Official website here: www.ldgalliance.org

What is the revenue of Lymphangiomatosis & Gorhams Disease Alliance Inc?

Lymphangiomatosis & Gorhams Disease Alliance Inc's revenue in 2023 was $121,403.


Official website here: www.ldgalliance.org

Who are the executives of Lymphangiomatosis & Gorhams Disease Alliance Inc and what are their salaries?


Here are 6 key members and their salaries:


Scott Weisner (President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Scott Goldfarb (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Mitch Maersch (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Tiffany Ferry (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Louise Murgia (Director Of Operations)
  • Compensation: $47,216
  • Related: $0
  • Other: $0
Michael Kelly (Executive Director)
  • Compensation: $57,038
  • Related: $0
  • Other: $0


Official website here: www.ldgalliance.org

Where can I find the form 990EZ for Lymphangiomatosis & Gorhams Disease Alliance Inc?

Lymphangiomatosis & Gorhams Disease Alliance Inc's most recent form 990EZ was submitted in 2023 and can be accessed here.


Official website here: www.ldgalliance.org

Learn more at the official website: www.ldgalliance.org

Mission Statement of Lymphangiomatosis & Gorhams Disease Alliance Inc

Lymphangiomatosis & Gorhams Disease Alliance Inc, a global organization, is dedicated to providing support, funding research, and raising awareness for individuals affected by complex lymphatic anomalies. Their primary mission is to assist patients living with Lymphangiomatosis and Gorham's Disease, two rare and often misunderstood conditions. By offering global patient support, the alliance aims to connect individuals affected by these diseases, providing them with a network of understanding and resources.

In addition to patient support, Lymphangiomatosis & Gorhams Disease Alliance Inc invests in research to advance the understanding and treatment of these conditions. Their funding for research is a crucial aspect of their mission, as it enables medical professionals to explore potential cures and improve the quality of life for those affected. By raising awareness for these conditions, the alliance aims to foster a better understanding within the medical community and wider society, ultimately leading to improved diagnosis and care for patients.

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Impact




October, 2024

Lymphangiomatosis & Gorhams Disease Alliance Inc plays a crucial role in supporting individuals affected by complex lymphatic anomalies, specifically lymphangiomatosis and Gorham's disease. By offering global patient support, the organization addresses the unique challenges faced by patients and their families, providing them with essential resources and a community of understanding.

Their commitment to funding research is vital in advancing scientific knowledge and developing potential treatments for these rare conditions. This financial backing encourages researchers to explore innovative solutions and fosters collaboration within the medical community.

Moreover, the Alliance's efforts in raising awareness are key to increasing public and medical understanding of these complex disorders. By educating healthcare professionals and the general public, they help to reduce the stigma and isolation that patients may experience, ultimately leading to earlier diagnosis and improved care.

In summary, Lymphangiomatosis & Gorhams Disease Alliance Inc significantly impacts the lives of those affected by lymphatic anomalies through dedicated patient support, vital research funding, and crucial awareness initiatives.




This information is meant to be a general summary of Lymphangiomatosis & Gorhams Disease Alliance Inc. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$121,403 (2023)
Expenses
$280,940 (2023)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2023.

  • Investment Income: $2,845
  • Gross Receipts: $121,403

Assets and Liabilities:

  • Total Assets: $421,865
  • Total Liabilities: $2,948
  • Net Assets: $418,917

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Organization Details

Principal Officer

Michael Kelly

Main Address

7901 4TH STREET NORTH, SAINT PETERSBURG, FL, 33702

NTEE Category

Code: G99 - Disease

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