nonprofit logo

Lymphangiomatosis & Gorhams Disease Alliance Inc

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 261224181 ✦ Saint petersburg, FL ✦ Designated as a 501(c)(3)

Shop smarter and support your favorite cause at the same time! With the Give Freely browser extension, you'll automatically save money with coupons, and partner stores will donate to your chosen charity - at no extra cost to you. Start giving back with a single click. It's safe, free, and spam-free, guaranteed!

Overview

What is Lymphangiomatosis & Gorhams Disease Alliance Inc?

Lymphangiomatosis & Gorhams Disease Alliance Inc is a nonprofit organization dedicated to supporting individuals affected by complex lymphatic anomalies on a global scale. Their mission encompasses providing essential resources, funding research, and spreading awareness about these conditions. By doing so, they aim to improve the lives of those affected and contribute to the medical community's understanding of these rare diseases.


Official website here: www.ldgalliance.org

Is Lymphangiomatosis & Gorhams Disease Alliance Inc legitimate?

Lymphangiomatosis & Gorhams Disease Alliance Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Lymphangiomatosis & Gorhams Disease Alliance Inc submitted a form 990EZ, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $86,831
Professional Fundraising Fees: $0
Other Salaries and Wages: $0

For more financial information, click here


Official website here: www.ldgalliance.org

What is the mission statement of Lymphangiomatosis & Gorhams Disease Alliance Inc?

The Lymphangiomatosis & Gorhams Disease Alliance Inc is committed to serving globally, offering support to patients, funding research, and increasing awareness for complex lymphatic anomalies. Its mission, expressed in third person, is geared towards providing a platform that assists individuals affected by these conditions, advances scientific understanding through funding, and fosters a broader understanding of these rare diseases. The organization's activities are centered around offering patient support, financially backing research, and advocating for elevated awareness of lymphangiomatosis and Gorhams Disease.


Official website here: www.ldgalliance.org

What is the revenue of Lymphangiomatosis & Gorhams Disease Alliance Inc?

Lymphangiomatosis & Gorhams Disease Alliance Inc's revenue in 2024 was $271,042.


Official website here: www.ldgalliance.org

Who are the executives of Lymphangiomatosis & Gorhams Disease Alliance Inc and what are their salaries?

There 25 volunteers at Lymphangiomatosis & Gorhams Disease Alliance Inc.

Here are 8 key members and their salaries:


Louise Murgia (Director Of Operations)
  • Compensation: $70,781
  • Related: $0
  • Other: $0
Michael Kelly (Executive Director)
  • Compensation: $35,930
  • Related: $0
  • Other: $0
Tiffany Ferry (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Mitch Maersch (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Scott Goldfarb (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Kevin Martin (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Sean Chastain (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Scott Weisner (President)
  • Compensation: $0
  • Related: $0
  • Other: $0


Official website here: www.ldgalliance.org

Where can I find the form 990 for Lymphangiomatosis & Gorhams Disease Alliance Inc?

Lymphangiomatosis & Gorhams Disease Alliance Inc's most recent form 990 was submitted in 2024 and can be accessed here.


Official website here: www.ldgalliance.org

Learn more at the official website: www.ldgalliance.org

Mission Statement of Lymphangiomatosis & Gorhams Disease Alliance Inc

Lymphangiomatosis & Gorhams Disease Alliance Inc, a global organization, is dedicated to providing support, funding research, and raising awareness for individuals affected by complex lymphatic anomalies. Their primary mission is to assist patients living with Lymphangiomatosis and Gorham's Disease, two rare and often misunderstood conditions. By offering global patient support, the alliance aims to connect individuals affected by these diseases, providing them with a network of understanding and resources.

In addition to patient support, Lymphangiomatosis & Gorhams Disease Alliance Inc invests in research to advance the understanding and treatment of these conditions. Their funding for research is a crucial aspect of their mission, as it enables medical professionals to explore potential cures and improve the quality of life for those affected. By raising awareness for these conditions, the alliance aims to foster a better understanding within the medical community and wider society, ultimately leading to improved diagnosis and care for patients.

Shop smarter and support your favorite cause with the Give Freely browser extension. Save money with coupons and donate to charity with a single click. Download now!

Impact




October, 2024

Lymphangiomatosis & Gorhams Disease Alliance Inc plays a crucial role in supporting individuals affected by complex lymphatic anomalies, specifically lymphangiomatosis and Gorham's disease. By offering global patient support, the organization addresses the unique challenges faced by patients and their families, providing them with essential resources and a community of understanding.

Their commitment to funding research is vital in advancing scientific knowledge and developing potential treatments for these rare conditions. This financial backing encourages researchers to explore innovative solutions and fosters collaboration within the medical community.

Moreover, the Alliance's efforts in raising awareness are key to increasing public and medical understanding of these complex disorders. By educating healthcare professionals and the general public, they help to reduce the stigma and isolation that patients may experience, ultimately leading to earlier diagnosis and improved care.

In summary, Lymphangiomatosis & Gorhams Disease Alliance Inc significantly impacts the lives of those affected by lymphatic anomalies through dedicated patient support, vital research funding, and crucial awareness initiatives.




This information is meant to be a general summary of Lymphangiomatosis & Gorhams Disease Alliance Inc. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$271,042 (2024)
Expenses
$310,725 (2024)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2024.

  • Investment Income: $5,655
  • Program Service Revenue: $13,500
  • Gross Receipts: $271,042

Assets and Liabilities:

  • Total Assets: $421,865
  • Total Liabilities: $2,948
  • Net Assets: $418,917

Want to help this charity, for free? You can click here to learn more about Give Freely

Programs

Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.

SPONSORSHIPS

Revenue

$13,500

Organization Details

Principal Officer

Michael Kelly

NTEE Category

Code: G99 - Disease

If you are a representative of Lymphangiomatosis & Gorhams Disease Alliance Inc and wish to learn more about how Give Freely can help you raise funds, please click here: https://givefreely.com/nonprofits/. Our services are offered at no cost to your organization.