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Rett Syndrome Research Trust Inc

Learn about this cause: What are the reviews? Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 260687439 ✦ Trumbull, CT ✦ Designated as a 501(c)(3)

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Overview

What is Rett Syndrome Research Trust Inc?

Rett Syndrome Research Trust Inc, situated in Trumbull, Connecticut, is a dedicated nonprofit organization with a mission to combat Rett Syndrome and associated MECP2 disorders. They achieve this by providing funding to distinguished research institutions and companies, contributing to innovative studies aimed at developing treatments and potential cures. With a team of eight dedicated individuals, this organization has become a significant player in the fight against these disorders, working tirelessly to advance medical knowledge and improve the lives of those affected.


Official website here: www.rsrt.org

What are the reviews and ratings of this charity?

**Rett Syndrome Research Trust Inc - Charity Navigator Rating: 91% (Four-Star out of Four Stars)**

Rett Syndrome Research Trust Inc has received a commendable Four-Star rating from Charity Navigator, driven primarily by its impressive Accountability & Finance score of 91%. This rating highlights the organization’s strong commitment to responsible management of its assets and transparency. The charity boasts a fully independent board and adheres to stringent financial practices, as indicated by a lack of material asset diversions and comprehensive policy listings.

While the organization excels in financial accountability, it is important to note that aspects such as Impact & Measurement, as well as Leadership & Adaptability, have not been scored. This means that the overall effectiveness and the direct impact of its programs on the community, although implied through financial metrics, remain unassessed at this time.

User reviews from GreatNonprofits could not be fetched, leaving a gap in understanding the personal experiences and sentiments of those directly affected by the charity’s work. However, the current financial metrics and governance model suggest a well-regarded organization in its operational practices.


This AI summary has been generated from information found on Charity Navigator.

Is Rett Syndrome Research Trust Inc legitimate?

Rett Syndrome Research Trust Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Rett Syndrome Research Trust Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $1,108,689

For more financial information, click here


Official website here: www.rsrt.org

What is the mission statement of Rett Syndrome Research Trust Inc?

Rett Syndrome Research Trust Inc is dedicated to advancing treatments and ultimately finding a cure for Rett Syndrome and related MECP2 disorders. Their primary focus is on funding research at leading institutions and companies working in this field. The organization's mission is to contribute significantly to the scientific understanding and potential solutions for individuals affected by these conditions. By supporting groundbreaking research, Rett Syndrome Research Trust Inc aims to improve the lives of those affected by these disorders and bring hope for a brighter future.


Official website here: www.rsrt.org

Who is the CEO of Rett Syndrome Research Trust Inc?

Monica Coenraads is the Trustee of Rett Syndrome Research Trust Inc. The CEO's salary of Rett Syndrome Research Trust Inc is $220,000 and their total compensation is $220,000.


Official website here: www.rsrt.org

What is the revenue of Rett Syndrome Research Trust Inc?

Rett Syndrome Research Trust Inc's revenue in 2022 was $7,097,993.


Official website here: www.rsrt.org

Who are the executives of Rett Syndrome Research Trust Inc and what are their salaries?

The average compensation at Rett Syndrome Research Trust Inc during 2022 was $138,586. There are 8 employees at Rett Syndrome Research Trust Inc.


Here are 14 key members and their salaries (Rett Syndrome Research Trust Inc's CEO's salary is $220,000 and their total compensation is $220,000):


Adrian Bird (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Alba Tull (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Brad Zelinger (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Brian Whitmer (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Heidi Epstein (Vice Chairman)
  • Compensation: $0
  • Related: $0
  • Other: $0
Ingrid Harding (Co-Founder And Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Lawrence Mattis (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Marc Tesler (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Marci Valner (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Monica Coenraads (Chief Executive Officer)
  • Compensation: $220,000
  • Related: $0
  • Other: $0
Rachael Stevenson (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Rachel Rothschild (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Stephanie Bohn (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Tony Schoener (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0


Official website here: www.rsrt.org

Where can I find the form 990 for Rett Syndrome Research Trust Inc?

Rett Syndrome Research Trust Inc's most recent form 990 was submitted in 2022 and can be accessed here.


Official website here: www.rsrt.org

Learn more at the official website: www.rsrt.org

Mission Statement of Rett Syndrome Research Trust Inc

Rett Syndrome Research Trust Inc is an organization dedicated to advancing treatments and potentially finding a cure for Rett Syndrome and related MECP2 disorders. This nonprofit's mission is centered around funding leading research institutions and companies that are actively working on these conditions. By investing in these initiatives, Rett Syndrome Research Trust Inc aims to accelerate the development of groundbreaking treatments and ultimately, a cure for individuals affected by these disorders.

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Impact




October, 2024

Rett Syndrome Research Trust Inc drives significant progress in the pursuit of effective treatments and potential cures for Rett Syndrome and related MECP2 disorders. By funding leading research institutions and companies, the organization catalyzes innovative scientific efforts, facilitating groundbreaking studies that aim to improve the lives of those affected. Located in Trumbull, CT, its focused mission and strategic funding initiatives create a collaborative environment for researchers, fostering advancements that hold the promise of hope for individuals and families impacted by these conditions. The trust’s commitment to scientific discovery not only enhances understanding of the disorder but also paves the way for therapeutic breakthroughs, ultimately striving to transform outcomes in a field that has long awaited progress.




This information is meant to be a general summary of Rett Syndrome Research Trust Inc. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$7,097,993 (2022)
Expenses
$4,042,165 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $30,058
  • Program Service Revenue: $39,122
  • Gross Receipts: $7,315,588

Assets and Liabilities:

  • Total Assets: $14,883,080
  • Total Liabilities: $3,932,779
  • Net Assets: $10,950,301

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Programs

Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.

LICENSING

Revenue

$29,122

BIOREPOSITORY

Revenue

$10,000

Organization Details

Founding Year

2007

Principal Officer

Monica Coenraads

Main Address

67 UNDER CLIFF ROAD, TRUMBULL, CT, 06611

NTEE Category

Code: E12 - Health

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