Overview
What is Cure Tay-Sachs Foundation?
The Cure Tay-Sachs Foundation, based in Phoenix, Arizona, is a nonprofit organization dedicated to funding research initiatives with the potential to treat and ultimately cure Tay-Sachs Disease (TSD). This hereditary disorder is transmitted when both carrier parents pass the Tay-Sachs gene to their child, and it currently has a 100% mortality rate for children infected with the infantile or juvenile forms. The foundation aims to change this grim reality by supporting promising research projects. With a focus on three forms of TSD - the classic or infantile form, the juvenile onset form, and the late-onset form known as LOTS - the Cure Tay-Sachs Foundation is committed to advancing medical breakthroughs and improving the lives of those affected by this debilitating disease.
Official website here: www.curetay-sachs.org
What do the Facebook reviews say about Cure Tay-Sachs Foundation?
100% of 14 reviewers on Facebook recommend the Cure Tay-Sachs Foundation. Here is a summary of their reviews:
The community-centered focus of the foundation stands out prominently in the feedback. Supporters appreciate how the organization fosters a sense of belonging, emphasizing the importance of connecting with others who share similar experiences. Many users express gratitude for the foundation's commitment to advocating for answers and funding research that is critical to their needs.
Overall, the sentiment is overwhelmingly positive, with reviewers feeling that the foundation genuinely understands their challenges and actively works towards driving progress. It’s clear that participants find a meaningful connection and tangible support through this nonprofit, making it a vital resource for those affected by Tay-Sachs disease.
This AI summary has been generated from reviews found on Facebook.
Is Cure Tay-Sachs Foundation legitimate?
Cure Tay-Sachs Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Cure Tay-Sachs Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $48,000
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
For more financial information, click here
Official website here: www.curetay-sachs.org
What is the mission statement of Cure Tay-Sachs Foundation?
The Cure Tay-Sachs Foundation is established with the goal of funding research initiatives that demonstrate potential to treat and ultimately cure Tay-Sachs Disease (TSD). This hereditary disease is transmitted when both carrier parents pass the Tay-Sachs gene to their child. TSD presents in three forms: the classic or infantile form, the juvenile onset form, and the late-onset form known as LOTS. Sadly, children affected by the infantile or juvenile form currently have a 100% mortality rate, with no survivor documented thus far. The foundation aims to alter this dismal prognosis.
Official website here: www.curetay-sachs.org
Who is the CEO of Cure Tay-Sachs Foundation?
Rick Karl is the Director of Cure Tay-Sachs Foundation.
Official website here: www.curetay-sachs.org
What is the revenue of Cure Tay-Sachs Foundation?
Cure Tay-Sachs Foundation's revenue in 2022 was $448,202.
Official website here: www.curetay-sachs.org
Who are the executives of Cure Tay-Sachs Foundation and what are their salaries?
There 100 volunteers at Cure Tay-Sachs Foundation.
Here are 13 key members and their salaries:
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Official website here: www.curetay-sachs.org
Where can I find the form 990 for Cure Tay-Sachs Foundation?
Cure Tay-Sachs Foundation's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.curetay-sachs.org
Learn more at the official website: www.curetay-sachs.org
Mission Statement of Cure Tay-Sachs Foundation
The Cure Tay-Sachs Foundation, established with a vision to make a significant impact, is dedicated to funding research initiatives that hold promise in treating and ultimately curing Tay-Sachs Disease (TSD). This hereditary disorder is transmitted when two carrier parents pass the Tay-Sachs gene to their child. TSD has three variants: the classic or infantile form, the juvenile onset form, and the late-onset form known as LOTS. Tragically, children afflicted with the infantile or juvenile form currently have a 100% mortality rate, with no survival cases reported to date. The Cure Tay-Sachs Foundation aims to challenge this grim reality and change the prognosis for these affected children.
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Impact
October, 2024
Cure Tay-Sachs Foundation plays a critical role in advancing research aimed at treating and potentially curing Tay-Sachs disease (TSD), a hereditary disorder with devastating consequences. By funding promising research initiatives, the foundation focuses on the three forms of TSD: the classic infantile form, the juvenile onset form, and the late-onset form known as LOTS. The foundation addresses an urgent need, as children affected by the infantile and juvenile forms of TSD currently face a 100% mortality rate, with no known survivors.
Through its efforts, Cure Tay-Sachs Foundation seeks to shift the narrative surrounding TSD. The foundation not only helps researchers explore innovative treatments but also raises awareness about the genetic nature of this disease, emphasizing the importance of early diagnosis and carrier screening for parents. By fostering collaboration within the scientific community and supporting groundbreaking studies, the foundation is committed to changing the future for families affected by Tay-Sachs disease, aiming for breakthroughs that could ultimately lead to effective therapies and, potentially, a cure.
This information is meant to be a general summary of Cure Tay-Sachs Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $27,368
- Gross Receipts: $1,269,369
Assets and Liabilities:
- Total Assets: $2,287,110
- Total Liabilities: $0
- Net Assets: $2,287,110
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Organization Details
Founding Year
2007
Phone
(216) 251-9070Principal Officer
Rick Karl
Main Address
2409 E LUKE AVE, PHOENIX, AZ, 85016
Website
www.curetay-sachs.orgNTEE Category
Code: H128 - Medical research
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