Overview
What is United Mitochondrial Disease Foundation Inc?
United Mitochondrial Disease Foundation Inc, located at 8085 Saltsburg Road 200, Pittsburgh, PA 15239, is a nonprofit organization with a focus on mitochondrial disorders. With a team of 17 dedicated individuals, their mission is to drive research, education, and support for the diagnosis, treatment, and potential cure of these disorders. They aim to assist affected individuals and families, providing them with the resources they need during challenging times. Their activities are geared towards advancing knowledge and fostering a supportive community for those impacted by these disorders.
Official website here: www.umdf.org
What are the reviews and ratings of this charity?
Rating from Charity Navigator: 99%, Four-Star out of Four Star rating.
The United Mitochondrial Disease Foundation (UMDF) has achieved a remarkable 99% score on Charity Navigator, indicating a high level of accountability and financial transparency. The charity’s strengths lie in its independent board, effective financial oversight, and a high program expense ratio, demonstrating a commitment to utilizing funds directly for programs that support individuals affected by mitochondrial diseases. Their focus on collecting and using feedback shows an organization that values input from the community it serves.
However, user reviews indicate some concerns about transparency and financial practices. A reviewer noted that despite significant spending on patient support, most of this assistance appears to involve volunteer efforts, raising questions about where funds are truly allocated. Additionally, there are mentions of a lack of dialogue within the organization, and criticisms about stalled projects, which could deter potential supporters and patients seeking reliable support.
Despite the criticisms, many users express gratitude for the support UMDF provides to families impacted by mitochondrial diseases. Positive testimonials highlight the organization’s role in fostering community, disseminating information, and advocating for research. Overall, UMDF stands as a well-rated nonprofit organization with a significant impact, although it faces challenges in addressing some concerns raised by its community.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
What do the Facebook reviews say about United Mitochondrial Disease Foundation Inc?
100% of 22 reviewers on Facebook recommend the United Mitochondrial Disease Foundation Inc. Here is a summary of their reviews:
Supporters express a strong appreciation for the organization's commitment to helping individuals with mitochondrial diseases. Reviewers commend the foundation for its dedication and effective services, finding it to be a vital resource for families and individuals affected by these conditions.
Overall, the sentiment showcases a high level of satisfaction with the nonprofit’s efforts and impact, highlighting its valuable role in the community and the compassionate way it addresses the needs of those it serves.
This AI summary has been generated from reviews found on Facebook.
Is United Mitochondrial Disease Foundation Inc legitimate?
United Mitochondrial Disease Foundation Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. United Mitochondrial Disease Foundation Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $359,566
Professional Fundraising Fees: $0
Other Salaries and Wages: $891,233
For more financial information, click here
Official website here: www.umdf.org
What is the mission statement of United Mitochondrial Disease Foundation Inc?
The United Mitochondrial Disease Foundation Inc is committed to promoting research and education aimed at diagnosing, treating, and ultimately curing mitochondrial disorders. Their mission extends to providing support for individuals and families affected by these disorders. They actively fund research to discover potential cures and treatments, working towards a future where these diseases can be managed more effectively. Their efforts also include offering assistance and resources to those directly impacted by mitochondrial disorders.
Official website here: www.umdf.org
Who is the CEO of United Mitochondrial Disease Foundation Inc?
Brian T Harman is the Board Of Trustees of United Mitochondrial Disease Foundation Inc. The CEO's salary of United Mitochondrial Disease Foundation Inc is $179,442 and their total compensation is $205,801.
Official website here: www.umdf.org
What is the revenue of United Mitochondrial Disease Foundation Inc?
United Mitochondrial Disease Foundation Inc's revenue in 2022 was $3,572,403.
Official website here: www.umdf.org
Who are the executives of United Mitochondrial Disease Foundation Inc and what are their salaries?
The average compensation at United Mitochondrial Disease Foundation Inc during 2022 was $73,576. There are 17 employees and 970 volunteers at United Mitochondrial Disease Foundation Inc.
Here are 18 key members and their salaries (United Mitochondrial Disease Foundation Inc's CEO's salary is $179,442 and their total compensation is $205,801):
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- Compensation: $179,442
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- Compensation: $140,187
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- Other: $23,163
- Compensation: $130,649
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- Other: $19,459
Official website here: www.umdf.org
Where can I find the form 990 for United Mitochondrial Disease Foundation Inc?
United Mitochondrial Disease Foundation Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.umdf.org
Learn more at the official website: www.umdf.org
Mission Statement of United Mitochondrial Disease Foundation Inc
The United Mitochondrial Disease Foundation Inc is dedicated to advancing research and education aimed at diagnosing, treating, and ultimately curing mitochondrial disorders. Their mission is twofold: to promote scientific breakthroughs and to offer support to individuals and families affected by these conditions. By funding research, the foundation strives to uncover the underlying causes of mitochondrial disorders and develop effective treatments, with the ultimate goal of finding a cure. Simultaneously, they provide assistance and resources to those directly impacted, offering a much-needed lifeline during challenging times.
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Impact
October, 2024
United Mitochondrial Disease Foundation Inc plays a crucial role in advancing the understanding and treatment of mitochondrial disorders. By funding research, the organization supports scientific inquiry aimed at discovering effective therapies and potential cures for these complex diseases. Additionally, it provides essential education for healthcare professionals and affected families, helping to improve diagnosis and treatment options.
The foundation also offers vital support services for individuals impacted by mitochondrial disorders, fostering a sense of community among patients and their families. This holistic approach not only addresses immediate health challenges but also empowers those affected with knowledge and resources, enhancing their overall quality of life. Through its efforts, the United Mitochondrial Disease Foundation significantly contributes to raising awareness and promoting ongoing research in the field, ultimately driving progress toward better outcomes for those living with mitochondrial diseases.
This information is meant to be a general summary of United Mitochondrial Disease Foundation Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $263,807
- Program Service Revenue: $401,193
- Gross Receipts: $4,062,198
Assets and Liabilities:
- Total Assets: $5,075,622
- Total Liabilities: $2,009,088
- Net Assets: $3,066,534
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
Symposium & Seminars
Revenue
$401,193
Organization Details
Founding Year
1995
Phone
(412) 793-8077Principal Officer
Brian T Harman
Main Address
8085 Saltsburg Road 200, Pittsburgh, PA, 15239
Website
www.umdf.orgNTEE Category
Code: G80 - Disease
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