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Bleeding Disorders Association Of South Carolina

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 237400632 ✦ Greenville, SC ✦ Designated as a 501(c)(3)

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Overview

What is Bleeding Disorders Association Of South Carolina?

The Bleeding Disorders Association of South Carolina is a nonprofit organization situated in Greenville, South Carolina. Their primary mission is to advocate and increase awareness for individuals with bleeding disorders and their families, offering educational and supportive services. They accomplish this through events like the Family Educational Camp, which is a free, three-day event offering educational sessions, networking opportunities, and family connections. This year, they incorporated a health equity summit within the event to address disparities within the bleeding disorders community. The camp catered to various age groups, providing educational tracks for children and adults. The association also promotes ongoing research to enhance the quality of life for those affected.


Official website here: www.hemophiliasc.org

Is Bleeding Disorders Association Of South Carolina legitimate?

Bleeding Disorders Association Of South Carolina is a legitimate nonprofit organization registered as a 501(c)(3) entity. Bleeding Disorders Association Of South Carolina submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $63,000
Professional Fundraising Fees: $0
Other Salaries and Wages: $12,750

For more financial information, click here


Official website here: www.hemophiliasc.org

What is the mission statement of Bleeding Disorders Association Of South Carolina?

The Bleeding Disorders Association of South Carolina's mission is centered around raising awareness and advocating for individuals with bleeding disorders and their families. The organization provides education and supportive services to improve their quality of life. They promote ongoing research to enhance the understanding and treatment of bleeding disorders. The association hosts events, such as the Family Educational Camp, to offer educational and supportive services, and networking opportunities for families affected by bleeding disorders. They also address health inequities within the community through events like health equity summits.


Official website here: www.hemophiliasc.org

Who is the CEO of Bleeding Disorders Association Of South Carolina?

Sue Martin is the Director of Bleeding Disorders Association Of South Carolina.


Official website here: www.hemophiliasc.org

What is the revenue of Bleeding Disorders Association Of South Carolina?

Bleeding Disorders Association Of South Carolina's revenue in 2022 was $370,179.


Official website here: www.hemophiliasc.org

Who are the executives of Bleeding Disorders Association Of South Carolina and what are their salaries?


Here are 11 key members and their salaries:


Suzanne Martin (Director)
  • Compensation: $63,000
  • Related: $0
  • Other: $0
Wendy Legrand (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Christine Evans (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
James Whitmire (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Edna Rabb (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Taylor Upton (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Susie Maloy (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Shelley Crisp (President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Aaron Smith (Vice President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Joey Karkowiak (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Samantha Javorka (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0


Official website here: www.hemophiliasc.org

Where can I find the form 990 for Bleeding Disorders Association Of South Carolina?

Bleeding Disorders Association Of South Carolina's most recent form 990 was submitted in 2022 and can be accessed here.


Official website here: www.hemophiliasc.org

Learn more at the official website: www.hemophiliasc.org

Mission Statement of Bleeding Disorders Association Of South Carolina

The Bleeding Disorders Association of South Carolina is dedicated to raising awareness and advocating for individuals with bleeding disorders and their families. Their mission is to provide education, supportive services, and promote ongoing research to enhance the quality of life for those affected. They achieve this by organizing events like the Family Educational Camp, a three-day event offering educational and supportive services to families with bleeding disorder members. The camp, which is free of charge, includes sessions on insurance education, treatment, research, and self-advocacy, among other topics. The association also focuses on addressing health inequities within the South Carolina bleeding disorders community, as demonstrated in their Health Equity Summit held during the Family Educational Camp. Overall, the Bleeding Disorders Association of South Carolina works tirelessly to support and improve the lives of individuals and families affected by bleeding disorders.

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Impact




October, 2024

The Bleeding Disorders Association of South Carolina significantly impacts individuals and families affected by bleeding disorders through its advocacy, educational initiatives, and support services. By raising awareness and providing critical resources, the organization helps improve the quality of life for those impacted by these conditions.

A key event hosted by the association is the Family Educational Camp, which offers a unique three-day experience for families with members who have bleeding disorders or are carriers. This event not only facilitates valuable educational sessions led by national experts on various issues such as treatment options, insurance navigation, and self-advocacy in healthcare but also fosters community connections. Attendees benefit from networking opportunities and the chance to share experiences, strengthening their support systems.

In addressing health disparities, the association integrates a health equity summit into its programs, highlighting crucial discussions around health inequities within the South Carolina bleeding disorders community. This inclusive approach ensures that all voices are heard, and that participants gain insights that are relevant and empowering.

With specific educational tracks tailored for different age groups, the association ensures that both children and adults receive relevant information. The event draws families from across the state, creating a shared space for learning, support, and camaraderie, which can be particularly vital in a community that often feels isolated.

Overall, the Bleeding Disorders Association of South Carolina plays a pivotal role in enhancing awareness, education, and advocacy efforts, all of which contribute to a more informed and connected community for individuals affected by bleeding disorders.




This information is meant to be a general summary of Bleeding Disorders Association Of South Carolina. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$370,179 (2022)
Expenses
$376,933 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $765
  • Program Service Revenue: $12,350
  • Gross Receipts: $427,567

Assets and Liabilities:

  • Total Assets: $435,698
  • Total Liabilities: $2,546
  • Net Assets: $433,152

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Programs

Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.

Advertising E-mail/Direct

Revenue

$6,250

Advertising Newsletter

Revenue

$6,100

Advertising Website

Organization Details

Founding Year

1998

Principal Officer

Sue Martin

Main Address

25 Woods Lake Rd 300, Greenville, SC, 29607

NTEE Category

Code: L99 - Housing

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