Overview
What is Hereditary Disease Foundation?
The Hereditary Disease Foundation, located in New York City, is a dedicated nonprofit organization with a mission to advance treatments and potential cures for hereditary diseases, particularly Huntington's disease. Established 52 years ago, the foundation has a passion for funding innovative research to further the understanding and development of diagnostics and therapies for neurodegenerative diseases. Over the years, they have been instrumental in significant breakthroughs, such as identifying the Huntington's disease marker in 1983 and the HD gene in 1993. The foundation supports groundbreaking research, often serving as a catalyst for larger funding from agencies like the National Institutes of Health. Currently, their focus is on modifier studies and research mechanisms of HD neurogeneration, aiming to impact not only Huntington's disease but also other brain disorders. With a workforce of 4, they provide grants for basic research projects and postdoctoral fellowships to nurture the next generation of scientists in this field.
Official website here: www.hdfoundation.org
What do the Facebook reviews say about Hereditary Disease Foundation?
90% of the 8 reviewers on Facebook recommend the Hereditary Disease Foundation. Here is a summary of their reviews:
Many users praise the organization for its dedication and impact in the fight against Huntington's disease. The comments highlight the foundation's commitment to leading research efforts towards effective treatments and potential cures. Overall, the sentiment is overwhelmingly positive, with reviewers expressing gratitude for the organization's work and its influence in the community.
In essence, individuals feel hopeful about the direction the foundation is heading, noting that it plays a crucial role in raising awareness and funding for research. This dedication resonates strongly with those affected by hereditary diseases, fostering a sense of trust and appreciation for the organization’s efforts.
This AI summary has been generated from reviews found on Facebook.
Is Hereditary Disease Foundation legitimate?
Hereditary Disease Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Hereditary Disease Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $164,765
Professional Fundraising Fees: $0
Other Salaries and Wages: $370,594
For more financial information, click here
Official website here: www.hdfoundation.org
What is the mission statement of Hereditary Disease Foundation?
The Hereditary Disease Foundation's mission is centered around funding innovative research to combat Huntington's disease and make strides in understanding other brain disorders. Their goal is to fund research that could lead to the development of treatments and potential cures for Huntington's disease. The organization has a history of supporting groundbreaking research, such as identifying the Huntington's disease marker in 1983 and the HD gene in 1993. They continue to fund research that pushes boundaries and often contributes to initial findings that help researchers secure funding from other agencies. The Hereditary Disease Foundation currently focuses on modifier studies and research mechanisms of HD neurogeneration and biomarkers for HD-induced neurodegeneration. They offer various types of funding, such as basic research grants and postdoctoral fellowships, to support research in this field.
Official website here: www.hdfoundation.org
Who is the CEO of Hereditary Disease Foundation?
Meghan Donaldson is the CEO of Hereditary Disease Foundation The CEO's salary of Hereditary Disease Foundation is $110,000 and their total compensation is $110,000.
Official website here: www.hdfoundation.org
What is the revenue of Hereditary Disease Foundation?
Hereditary Disease Foundation's revenue in 2024 was $7,899,221.
Official website here: www.hdfoundation.org
Who are the executives of Hereditary Disease Foundation and what are their salaries?
The average compensation at Hereditary Disease Foundation during 2024 was $133,840. There are 4 employees and 50 volunteers at Hereditary Disease Foundation.
Here are 23 key members and their salaries (Hereditary Disease Foundation's CEO's salary is $110,000 and their total compensation is $110,000):
- Compensation: $110,000
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- Compensation: $42,765
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- Compensation: $143,929
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- Other: $55,917
- Compensation: $116,065
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- Other: $30,005
- Compensation: $108,500
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- Other: $0
Official website here: www.hdfoundation.org
Where can I find the form 990 for Hereditary Disease Foundation?
Hereditary Disease Foundation's most recent form 990 was submitted in 2024 and can be accessed here.
Official website here: www.hdfoundation.org
Learn more at the official website: www.hdfoundation.org
Mission Statement of Hereditary Disease Foundation
The Hereditary Disease Foundation, a renowned organization, is dedicated to funding innovative research with the primary goal of curing Huntington's disease and making significant strides in addressing other brain disorders. Their mission is to support groundbreaking studies that aim to uncover novel therapies and cures for Huntington's disease, as well as contribute to the understanding and development of diagnostics and treatments for various neurodegenerative diseases.
Over the past five decades, the Hereditary Disease Foundation has demonstrated a remarkable track record of funding catalytic and paradigm-shifting research. Some of their notable achievements include identifying the Huntington's disease marker in 1983, discovering the HD gene in 1993, and supporting gene silencing approaches since 2002. Their commitment to pushing the boundaries of research has resulted in data that often serves as the foundation for researchers to secure larger, long-term funding from other organizations, such as the National Institutes of Health.
The Hereditary Disease Foundation's current focus is on two key areas: modifier studies and research on mechanisms of Huntington's disease neurogeneration, biomarkers, and therapy for HD-induced neurodegeneration. They provide funding for a variety of research projects, including basic research grants that contribute to identifying and understanding the fundamental defects in Huntington's disease and postdoctoral fellowships to cultivate interest in Huntington's disease research among bright young scientists.
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Impact
October, 2024
The Hereditary Disease Foundation significantly advances the understanding and treatment of Huntington's disease and other brain disorders through strategic funding of innovative research. Over its 52-year history, the foundation has been at the forefront of pivotal discoveries, including identifying the Huntington's disease marker in 1983 and the gene responsible for the condition in 1993.
By fostering an environment for groundbreaking studies, the foundation supports catalytic research that challenges existing paradigms, such as gene silencing methods since 2002. Its funding priorities emphasize critical areas, including modifier studies related to DNA repair pathways and the underlying mechanisms of neurodegeneration associated with Huntington's disease.
The Basic Research Grants Program promotes projects that unravel fundamental defects of Huntington's disease, while the Postdoctoral Fellowships inspire a new generation of scientists dedicated to this field. The research funded not only enhances immediate scientific understanding but also provides essential data that helps researchers secure additional long-term funding from larger agencies like the National Institutes of Health.
In this way, the Hereditary Disease Foundation plays a crucial role in shaping the future of therapeutic options for Huntington's disease, ultimately aiming to improve care and outcomes for those affected by neurodegenerative disorders.
This information is meant to be a general summary of Hereditary Disease Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2024.
- Investment Income: $357,558
- Gross Receipts: $14,021,176
Assets and Liabilities:
- Total Assets: $16,776,193
- Total Liabilities: $1,380,514
- Net Assets: $15,395,679
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Organization Details
Founding Year
1968
Principal Officer
Meghan Donaldson
Website
www.hdfoundation.orgNTEE Category
Code: H200 - Medical research
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